Posted , 6 users are following.
I had a biopsy of rash by meatus on penis and it said differential diagnosis LP or early stage LS. Waiting 3 months to get into a research hospital clinic. Meantime, clob which I hear is the treatment for both LP and LS?
Anyone here have an either or diagnosis like mine? I am male so LS seems unlikely but genital LP is unlikely too!
Advice?
0 likes, 11 replies
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ellen57898 jj2013B
Posted
when i had my biopsy of my vulva, i had both LP and lichen S. My doctor said it was not unusual to see both. He started treating me immediately. First with high potency steroid creams. We must have tried half a dozen different meds. Finally, he found a cream that worked. I have been using ELIDEL cream very successfully for a few years and my Lp is in total remission. Unfortuneatlly, I was recently diagnosed with Oral LP. Again, seeing an excellent periodontist who had made special trays that fit over my teeth and gums. Medication is put on these trays and it has been fairly successful.Why do you have to wait so long for treatment? I am in the US and although my dental insurance does not cover much of my OlP, my medical insurance covers my LP of my nether regions. i have posted before about ELDEL. Hoping you start getting some relief soon. LP is an awful disease.
jj2013B ellen57898
Posted
Thank you so much for your helpful reply. I am also on Elidel. Started 6 weeks ago but past 3.5 weeks I switched to clobetasol twice a day. Did the clob not work for you? I'm hoping it "knocks down" the LP/LS so that I can switch to something like Elidel.
I had to change insurance (I am also in USA) and that doesn't take effect until July 1. (We have a "benefit choice period" in May). My current insurer is a great HMO but when the local derms are stumped, they refer to the big city university hospital dermatalogists. My derm has been active 25 years and has NEVER seen genital LP or LS in a man. Based on cross-nation studies, I think it is much less likely to be diagnosed in USA. The most helpful people have been women on here and similar forums. Thanks so much.
jj2013B ellen57898
Posted
PS: You wrote "my gyn sent me to an incredible specialist that only treat issues of the vulva and vagina" and I notice you see gyn and not dermatologist. The university clinic I will go to has a vulvovaginals disorders clinic and one of their dermatologist works with women who have LP and LS. I don't think there is anything like a vulva clinic for men?
constantine111 jj2013B
Posted
Mine is also on penis for more than 2 years. Nothing helped.
jj2013B constantine111
Posted
That is so depressing. It is not terribly painful but the location makes sex impossible (intercourse, masturbation isn't affected). It looks awful. Looks like STD although all STDs ruled out and biopsy says LP and/or LS. Pics attached.
Can you have sex? I find I can do it but I will pay.
jj2013B constantine111
Posted
Did you have biopsy?
constantine111 jj2013B
Posted
Brother i understand you, Mine is not that much but anyway it is in there. Your derm should warn you about skin thinning. Clobetasole is the most potent steroid available. I used a weak steroid for 10 days but it thinned my skin anyway. I advice you to consult your doctor. I have been using herbal products and it seems to help me. I had sex with condom with no problem.
constantine111
Posted
1 month ago extreme itching started again and stopped 3 days ago. Maybe it is attacking again. This s**t is a lifelong problem. I have been searching web for 3 years. No cure. Protopic didn't help me. Maybe it will help you. There is only humira left to use. Waiting for remission after 3 years.
MBetter constantine111
Posted
notice what you ate after the itching started, did you eat alot of dairy or sugar? this is related to diet that would cause outbreaks, your prob allergic to something your eating and when your urine comes in contact it causes issues.
MBetter jj2013B
Posted
itmay be your lucky day , Alright, so i believe i have LS or LP, same spot as you, side of meatus, i have discovered this forum which may help you: - all in all you buy 100% tea tree oil and dmso, this basically burns the skin away, as you get consistent skin peels, i followed this process for 2 years and got a peel every 6-7 days, apply mixture with qtip, first night apply 7 times, 2nd day/night apply 8 times, this can be spread over mutiple days, as long as you apply this mixture 15 times before stopping for the cycle, the skin will swell first few applications but you will get used to it, over the course of the next few days the skin will scab over and eveentually peel away. i have a few questions for you: does this rash itch you?, and are you circumzised? - I am not a docter and am not giving you medical advice, simply stating a process that has worked for me and many others on that forum, i never had an itch but i did have shiny crinckled skin which seemed rather sore, and shiny, started after a bought of inflammation from having fun with a partner using baby perfume instead of baby oil, dont ask lol, suspected it was lichen scerlosis althought i plan on getting this confirmed by a dermatologist since my urologist is a dope and tells me there nothing wrong, just going to get a biospy to confirm, did yours require stitches, and was it a punch biopsy?
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brenda56335 jj2013B
Posted
well men get lichen sclerosus (from what I read) if they have not been circumcised. So getting that done if that's where it is takes care of it. With women no kind of surgery gets ride of it