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Bleeding for a month but CRP normal

Posted , 7 users are following.

sage96208
sage96208

Hiya,

So I've been bleeding for about a month and it seems like a lot but my bloods came back today as normal so no inflammation inductors. I'very been taking clipper 5mg for about two weeks and no improvement. I also have bloating, pain that feels like kidney pain and stomach pain though not all the time. I'm also quite constipated as that seems to be my symptom rather than diarrhoea.

My other meds are:-

Asacol 2.1g twice daily

Azathioprine 50mg

Prulalopride 2mg

Prednosolone suppositories 5mg twice daily

Masalazine 1g once a day

Though I find the suppositories difficult to keep in even at night time because of my wind and bits of blood to come out and so don't feel they do much.

Anyone got any suggestions? I'm seeing the gastro tomorrow and I think because of my blood work they'll think I'm needy and exaggerating the amount of blood I loose and the bloating etc

1 like, 11 replies

11 Replies

  • jill18833
    jill18833 sage96208

    Posted

    Have you tried the enema at night,may be easier to retain? X
    • sage96208
      sage96208 jill18833

      Posted

      Hi, yes I take them both morning and night and both are difficult as I get up in the night with wind. It's really annoying, just blood and suppository come out
  • Lauraaliceflo
    Lauraaliceflo sage96208

    Posted

    After a bad flare earlier this year I was bleeding lots for a good 3 months and I was the same - bloods all tested fine and no inflammation markets. It stopped about 4 weeks ago, saw my consultant today and he wasn't worries about it said it was normal to take quite a while for that symptom to go. I've managed to get off all my meds now, just stick to an SCD diet and take probiotics. Anyways - just wanted to say don't let the blood worry you too much, hope it goes soon for u tho xx
    • sage96208
      sage96208 Lauraaliceflo

      Posted

      Thanks very much, that's really good to know that someone else has experienced the same thing.it's difficult to not get stressed about it. I haven't tried an scd diet yet the dietician told me it wouldnt make any diffedence :-/ .I've started to keep a food diary but may well research scd and give it a go.
    • Lauraaliceflo
      Lauraaliceflo sage96208

      Posted

      My doctors told me diet wouldn't make any difference too, it wasn't until I was facing biologics that I was scared into giving SCD diet a good go and to my absolute amazement it worked, it has done for lots of people too.  To be fair the science behind it makes a lot of sense.  It does sound fairly impossible to begin with, there are a lot of foods you have to give up, but it never points out that there are loads of foods you can still eat - it's a lot easier to stick to than it sounds.  I figured I'd try anything before having to take biologics, especially as if those don't work I'd lose my colon! Fortunately it's worked for me - have a look into it - nothing to lose :-) Good luck with this rotten disease! xx
    • sage96208
      sage96208 Lauraaliceflo

      Posted

      I think its quite short sighted of them to not think that any diet can help- from my appointment today i have been given an 8 week course of Prednisolone oral starting at 40mg.They are getting me another urgent flexi sig (my 4th in a year) and hopefully a referal to a dietician.

      After that- they'vve given me an information leaflet for infliximab. My GI is convinced that i have both UC and IBS so thats some more great news! :-)

    • jill18833
      jill18833 sage96208

      Posted

      Yep think I have IBS as well as UC (proctosioiditis)... hell we are lucky eh? Apparently a very high proportion of people with UC also have IBS! After having daily abdo pain I tried the Fodmap diet for two weeks,has defo helped a load x
  • ehsan18513
    ehsan18513 sage96208

    Posted

    Have you tried ellimination process for food intake. I had bleeding for over one year with no help from specialist, apart from $1200 or more fees they charged me. Started elliminating Gluten, including bread, weetbix, and pasta. After 3 weeks bleeding totally stopped, and everything back to normal. My specialist was reluctant to agree with me, but what the heck, I cured myself...

    Could also try elliminating dairy, milk, etc. 

    My motto, sometimes you are your own best doctor.

    Cheers

    • stewart21177
      stewart21177 ehsan18513

      Posted

      Hi, taking of milk maybe try semiskimmed or worse skimmed, whole milk really can set me off. Yes you are your own best doctor since the medicos will insist trying this, and you can't have too much of that because we don't want you addicted to steroids even if they're the only ones that work. I feel alot better because of the high silica water I drink. All the drugs they give you aren't that clever. Did you try prednisalone or where you only given the highly unpleasant melasalazine type drugs? I'll never EVER take that again.
    • ehsan18513
      ehsan18513 stewart21177

      Posted

      Sorry Steart about my previous reply, I was confused with Crohn's diseas not colitis. My problem was proctitis, not colitis, for which I have no more symptoms after a diet change.

      Cheers

  • ehsan18513
    ehsan18513 sage96208

    Posted

    Hi

      Yes I tried melasalazine with harsh side effects. I developed skin rash all over, and that was the time I stopped all medications and concentrated on diet. My problem was Gluten. Medical practitioners disagree on this since fresh blood relates to large intestine, while gluten affects joining small and large intenstine which means darker blood (Culitis). And you do not want it becoming chronic, may lead to cancer. That is where my prognosis differs from specialists.

    Cheers.

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