Bleeding has started again

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Hi all hope you are all well and bearing up, so since my scare last weekend regarding temparture and beiung told to reduce my steroids down from 60mg to 30mg, well i am now on 30 but the last few days i have started to lose fresh and old blood again and stools are all slimy nasty loose and frequent, i am getting quite fedup keep going back to the hospital and doctors only to have the drugs played with, at present I am on 4grams Pentasa 30mg Steroids, 30 mg Lanzoprole and 40mg Citilipram. I eat healthy as i can with a breakfast of poached eggs on toast or toast and a fruit smoothis i take additional vitamin supplements. I heat sandwichs and have a light tea drink plenty of water and other fluids. However i am a loss on what to do, as today i have frequently go to the toilet and feel not right, any advice or guidance many thanks in advance John

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  • Posted

    Hi John.

    My colitis got worse when my steriods were cut back. I ended up back on a higher dose.


    Junk food per see doesn't exsist. If one continually eats the same thing then it becomes unhealthy. So a Big Mac won't hurt providing its not every day.

    You must eat meat. Shepards pie is ideal.

    Exercise is important

    So is sleep.

    Good luck


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  • Posted

    Hi John. U might need to up steroids and only drop by 5 to 10 mgs when u taper. Re fruit smoothies.....with some people their uc does not tolerate fruit's the fructose ....hav u googled psyllium husk and psyllium can be helpful plus probiotic VSL#3. MJ
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  • Posted

    John I would ring the bowel nurse at the hosp gastro if u are getting worse, otherwise you could be heading for a severe flare up. Sounds like you need to try different meds. Also i would go on the low residue diet if you havent already. Good luck john hope your symptoms improve.
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  • Posted

    Hi all I have now been back to the doctors and they have upped my steroids to 45mg and spoken to me taken blood temp at 38.8 so a little high so ism home now hoping this will sort it.

    i am keeping a diary on what I eat and maybe the fruit smoothies are not good so stopped drinking them for now to see what happens thanks for all advice and guidance just getting quite down as I don't like being controlled by this as I run a business and want to get back to work 

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