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Bloating lower and upper stomach / mass in uterus

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TANYATSBS
TANYATSBS

Hi all. I stumbled across this site and I am relieved that I am not going crazy .. there are others out there suffering like me.  I have been suffering with upper abdomen and lower abdomen bloat for near 3 years now. Been to doctor after doctor who initially fought I just had gas.  This doctor stopped me from seeing any doctor for a further 9 months then I got the courage to go again.  I look as if I am 9 months pregnant.  The last few months have been agonising.. no relief now where as 12 months ago at least I got some relief at night but I am distended all the time now and the pain is worse - enough to be on panadeine forte.  I had an initial CT scan last year which bought up minor cysts on the left ovary and a diagnosis of mesentric panniculitis (which my doctor said infection in the lining of the stomach and small bowel with stomach nodules that needed to be monitored).  I was referred to a specialist but I never went back due to pressures of work and financial stress.   As problem didn't go away and was getting worse I went back to doctor and had second CT scan which bought up cysts on the ovary and an unknown mass in the uterus was seen.  I am having a vagninal ultrasound next week to investigate further.  All this is now making sense.  I have back pain, pressure in the bladder all the time.  My stomach looks exactly like when I was heavily pregnant.  I have had a lot of fluid in the legs which I am not sure if is related to this problem as the fluid started when the stomach bloating started. I feel like an old woman and my quality of life is diminished considerably.  I work for myself and am in employment and I am struggling as I get tired and the look of me is embarrassing to say the least. Clothes won't fit and I have never been this heavy in my life.   The doctor put me on fluid pills and I have lost weight since being on them.   Thank you all for your stories. It gives me hope. I must keep going.  

0 likes, 13 replies

13 Replies

  • shadae1876
    shadae1876 TANYATSBS

    Posted

    Your most welcome I am going through the exact same thing currently at hospital and will be doing my surgery tomorrow morning really stressed but God is in control I hope all goes well for you so you can go back to your normal life
  • shadae1876
    shadae1876 TANYATSBS

    Posted

    Your most welcome I am going through the exact same thing currently at hospital and will be doing my surgery tomorrow morning really stressed but God is in control I hope all goes well for you so you can go back to your normal life
    • krmarine
      krmarine shadae1876

      Posted

      What kind of surgery did you decide on?  and how old are you if you don't mind me asking. 

  • heather34376
    heather34376 TANYATSBS

    Posted

    Firstly good luck with your surgery Shadae - secondly Tanya you may find you have a fibroid. They should really MRI you I'd be reluctant to have too many CT's. Symptoms sound like it could be.

    • sandra69486
      sandra69486 heather34376

      Posted

      Hello heather and Tanya I have bloating and fibroids too it's miserable

      Waiting ,

      not knowing what to do for the best I have had two MRI scans !

      2 blood tests !

      and now I'm to have a CT scan ! Why heather do you

      Say don't have a CT , is it bad ??

      Hugs and good luck to you both xx

    • heather34376
      heather34376 sandra69486

      Posted

      Hi Sandra, If they have done 2 MRI's why do they need a CT? Usually for soft tissue MRI is better. It also does not use radiation, like X Rays & CT. The dose of radiation used with a CT scan is significantly more than used in an X Ray. I had one in January & me Dr said, You don't want too many CT's if it can be helped. However if it is necessary then fair enough as long as you know why.

    • sandra69486
      sandra69486 heather34376

      Posted

      I'm not sure , it's all so confusing , IV been on easmya tablets to try

      And shrink my fibroids , the second MRI showed little change in

      The size of the fibroids but said they were too big to measure

      Accurately with a MRI and would need a CT scan for a clearer

      Picture ! Something was high in my blood test too that suggested

      I either have gum problems or I could have a small chance

      That cancer could be present with my fibroids ! I'm a nervous

      Reck waiting to see if I have cancer ,while my hot flushes are ,

      Giving me panic attacks , and my mood swings are making me

      Crazy , depressed one minute and happy as Larry the next , IV really

      Had enough !!!!!

    • reece92026
      reece92026 sandra69486

      Posted

      Sandra, I know your pain. I am sorry you're having to wait to know your own health. I hate having to be told so much later whether you have something or not. I will keep you in my prayers. I have a surgery coming up in a few weeks and Im nervous too. Hope you can calm down some and have better days.

      ~Reece

    • sandra69486
      sandra69486 reece92026

      Posted

      Thankyou so much ,are you having similar problems too ? Been

      Reading about the menapaus ! Can't believe women can suffer

      Like this for up to 7 years !! And IV also found out fibroids can

      Be hereditary and my daughter might suffer all this too ! I'm so

      Fed up !

    • reece92026
      reece92026 sandra69486

      Posted

      Yes they are hereditary. My mother had a hysterectomy in 1982 and all of her sisters, then my younger sister had one a few years ago and she was only 35 at the time. Now its my turn at 41, when I should have just had one when I had the myomectomy at age 30. If I had, then I wouldn't be dealing with this today. Anyway, sorry for the rant. I get so frustrated too.

  • krmarine
    krmarine TANYATSBS

    Posted

    It sounds like a fibroid to me. I have the same symptoms and they will call the fibroid a mass. MRI is better and it is what will be required if you ever consider an embolization and would also be very useful if you needed surgery so they can see exactly the size and location. CT also exposes you to radiation and MRI does not. 
  • reece92026
    reece92026 TANYATSBS

    Posted

    Hi Tanya, I feel your pain. My surgery is May 16th and I'm having abdominal hysterectomy which should fix all of my issues. I didn't understand the weight gain either, as I am bigger than I've ever been now too. I hope after surgery my tummy stops looking pregnant!

  • JVA1
    JVA1 TANYATSBS

    Posted

    Hi long story short, I was found to have a fibroid measuring 8x8cm posterior intramural which was pushing my uterus into my bladder reducing its capacity by more than 50% hence the bladder pressure and frequent urination, bloating etc but thankfully no heavy periods.

    The NHS gynae wanted to put me on Esmya for 3months with a follow up apt to discuss other treatments.

    I read up on the side effects of Esmya and it's limitations and wasn't comfortable taking tablets that were a short term fix so I booked a private consultation for another opinion which was the best thing I did! Prior to my apt I did a lot of research online about the various treatments and also had two ladies at work who had both followed different paths of treatment for fibroids but ultimately ended up with hysterectomies, one a total keyhole and the other a sub total abdominal.

    Due to the size of my fibroid and my age being 41 and I'd already had my lovely son now 6yrs old, I decided to have a sub total hysterectomy as I really didn't want to find myself in this same position again in the future. If I'd opted for a myomectomy it would've had to be an abdominal cut anyway as the fibroid is large and I'm a petite size 6!

    I had my op 9wks ago and I was honestly so scared, I was in tears but I knew it was the right thing so I needed to be brave. The nurses were great and I was up and about with my catheter removed at 7am the day after the op. It was painful getting out of bed but a folded towel with pressure applied against my tummy really helps. My recovery went well and I'm almost back to feeling myself and so pleased the fibroid has gone!

    My advice would be to ensure that you get a second opinion and research all options so you can make an informed decision as to what is right for you.

    Good luck

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