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I'm trying to find people in similar situations that are either dealing better than I am, have some treatment that is working or have come out the other side.
Before reading about my symptoms I believe its relevant to point out that I bought my house just over 7 years ago. My house has a cellar and only original floorboards separating the cellar to my living area (with half inch gaps between each board). I also have found black mold in other areas of my home. I didn't catch onto this/piece together until recently.
My issue started around 6.5 years ago when I was diagnosed with M.E or Chronic Fatigue Syndrome. I suffered from extreme tiredness, sensitivity to light, muscle and joint pain, brain fog and confusion. I then later got diagnosed with acid reflux.
Around 5.5 years ago I caught a cold and took a small blow to the nose at the same time. This resulted in difficultly breathing and a permanently blocked nose. I went to the doctors more times than I care to remember, they said everything looked fine but eventually got referred to an ENT after much pressure! I was on antihistamines and a nasal steroid spray too. The ENT took one look and diagnosed me with a deviated septum, enlarged turbinates and a bone spur all blocking my breathing.
My first surgery saw the ENT trim my turbinates, reposition and reshape them. I was desperate for this to work but it didn't. I got some light relief and the issue mainly stayed in one nostril. Time went on and I had another surgery around 12-15 months later. This time a probe inserted to heat the turbinate tissue and reduce their size. I had more luck with this but still have a really blocked nose and little quality of life.
Recently I caught the flu and ended up with pressure in my ears that won't go away.
I have had an allergy test in the past and the results were cat dander, grass pollen, dust mites and mold. I did have two cats but these were rehomed to another family member and I have had no improvement. I think that my issue may have been caused from breathing in damp for a long period of time? I had no allergic symptoms for the 18 months before my nose blocked. Could this be mold poisioning or simply a severe allergy? I would assume I'd have had an initial reaction to it when I first moved in.
Has anyone been treated for allergies with enlarged turbinates are actually recovered? I think we are going to move house to see if that helps too.
I have asked for a referral to an allergist to see if this can help in any way.
the last 6 years of my life have been hell. I've lost friends, upset family, lost a partner due to my inability to cope. I feared empty nose syndrome for a long time due to the two surgeries too.
Update: last week I purchased two air purifiers with HEPA filters and I had my best week in the 6 years I have mentioned. This was however short lived and I now feel worse than ever again. Could this be an allergy and can it still get better?
Please advise or share similar experiences. Hopefully there is a success story out there
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