Blood patch after csf leak

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I had a c section 11 weeks ago, since then got admitted to hospital with spinal headache ; they had punched a hole in my spinal fluid

Since then I've been so dizzy, foggy head, unable to barely look after the baby and 4 year old

I'm on anti depressants due to this

I've persisted in contacting the hospital for help and today they've offered me the blood patch (I refused this upon admission the first time due to risks) but now it seems this may be the only way back to health

So my question is, has anyone had a successful blood patch and if so how long after the csf leak did you have it done

I'm desperate to get better

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  • Posted

    Oh.sorry to hear about your dilema, here what I know, I never have done it..

    ''Potential benefits Risks and potential complications Alternatives • Relief of headache caused by leaking cerebrospinal fluid • Infection • Bleeding • Reaction to any contrast dye or to any medication used in the procedure • Epidural injection of saline • Caffeine administered intravenously (through an IV)

    What is it? An epidural blood patch is a procedure to treat a headache caused by leaking cerebrospinal fluid (CSF), a complication that can happen after a spinal tap, an epidural for labor and delivery, or another procedure that requires a spinal puncture. The blood patch involves injecting a small amount of blood into the epidural space around the spinal canal, near the site of the previous puncture. As the blood clots, it forms a “patch” that seals the site and stops the leak of CSF. Why do I need it? Headache after a spinal tap or epidural is caused by low pressure of the fluid in the spinal canal. (The low pressure is due to an internal leak at the injection site, with CSF draining from the epidural space faster than the body can replenish it.) In many cases, this headache — sometimes called a “low-pressure headache” or a “spinal headache” — will go away on its own as the site heals and the body continues to make new fluid to fill the space. However, if your headache is severe, your doctor may recommend a blood patch to restore normal CSF pressure in your spinal canal. To diagnose a low-pressure headache, your doctor will look for these common characteristics: • Your headache began 12 to 96 hours after a spinal tap, epidural, or other spinal puncture procedure. • The pain is worse when you sit up or stand, and is relieved when you lay flat. How is a blood patch done? A doctor or other medical provider withdraws a small amount of blood from your arm and injects it into your spine near the CSF leak. The procedure usually takes about 30 minutes, and most people report feeling pressure or some pain. You may be given medication to help you relax, but you’ll stay awake throughout the procedure. 

    I wish you luck, I will take it if they offer me

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    • Posted

      Thank you, I refused it on day 5 post labour only because the risks we're meningitis and paralisation

      But now I'm left with dizziness foggy head and blurred vision (although I can still see clear I know it's fuzzy) only this week after being prescribed diazepam I've started to feel better an drew been able to drive and now I'm 11 weeks post partum

      My question is, if I refuse the patch again would I get better on my own? Or be like this for life? And also would there be effect on my brain in the long run if it continues to leak

      I really can't afford to go backward if it doesn't work

      I hope whatever u decide it works, please keep me informed

      Good luck

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    • Posted

      Well your specialist advice you to have it - its for your own interest, they will not suggested it otherwise-its up to you...but do not let thing go too long
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    • Posted

      Thanks

      That's why I've tried to push myself this week to do things I've not managed in 11 weeks

      The thing is, I don't know if any of these symptoms are anxiety

      I'm so confused

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    • Posted

      where do you live if you are in the UK you will be able to ask your gp to refer you to pain management consist of: - counselling (CBT); pain treatment; physio; massage, also gp can issue a voucher from well being to get you free access on weight management....
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