Posted , 8 users are following.
end July started with symptoms of pmr had blood tests and they don't show anything untoward off steroids and symptoms are back again Doctor not convinced by blood tests that I should have steroids am now off them
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kathy61958 Guest
Posted
Good for you! My Rheumatologist is a rare gem in the medical world. Only the patient knows how their body feels. I have 20mg tablets, 5mg tablets and 1 mg tablets. I go up or down depending on how my body feels. If I wake up and my arms & legs feel like I spent two days lifting weights, I’ll go back up to 15mg.
If I’ve done well for two weeks, I’ll taper to 10mg and see how I feel.
PMR isn’t a short stay disease. It’s a long, slow, agonizing process. I always check in with my Rheumatologist when I’m going up or down, so he’s always aware, but I only have to see in every 90 days.
Once I actually do well at 10mg (hasn’t happened yet) I will begin to taper 1mg per month. Those last 10mg’s really need to go down at a snail’s pace.
Most people with PMR relapse once or twice and have to start all over again, but keep your chin up! We have PMR, not ALS😉??