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Body aches

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amethystbex
amethystbex

Hi everyone i am new to this forum but have read lots and its been really useful. I was diagnosed around four months ago now and was expecting correspondence from my GP for CBT (not yet had this) but thats not why I am posting. I wanted to know if other people have body aches, mine are back, knees and upper arm,aches and stiffness is this a ME symptom?

Thanks in advance for your replys

0 likes, 9 replies

9 Replies

  • dawn97
    dawn97 amethystbex

    Posted

    Hi there , I've had fibromyalgia for 14yrs & recently been told m .e . also !!! I have every pain on your list & thought that was fibro ? But if you look at the symptoms of both there's a big cross over of symptoms !!  It's the fatique that has worsened over yrs to a point that I've gone back to a rhymatologist (  not again !!!!!). & start the whole proses again but you must make a list of how you are feeling & include everything  ( even if you don't want to !!). The more questions you can ask the more information you can get !!  I wish you all the best take care dawn x
  • peter01102
    peter01102 amethystbex

    Posted

    pain side is its sister fibromyalgia . 

    cbt is s chat for 4-6 visits which does help 80% of cases- but b4 u go make a list on what u want them to deal with . mood.sleep.pain. coping with cfs etc .

    doctors sooner give out anti depression tablets which some it works . and  could cause more sleep problems etc to do with them tablets.

    doctors on cfs are ltd info to this syndrome,

     

  • amethystbex
    amethystbex

    Posted

    dawn& peter

    thank you for your replys. those are not my only symptoms. i am very typical CFS/ME only symptom i dont have is sleep  problems. my aches are my biggest issue and  a good indication ( i am now noticing) of how tired i feel. i just needed to know that others feel so old and i guess.

    thank you both for answers i apreciate it smile

    • peter01102
      peter01102 amethystbex

      Posted

      there is a tip  do a diary for 2 months.

      baths help BUT WARNING ,. u go in and u will want to stay in there as time and pain and go temp away . - this is with me .

      20 mins in take 2 hours . get out like a 100 year old man the skin ;-) .

       

  • Qwase
    Qwase amethystbex

    Posted

    Hi amethystbex. From what I've experienced, limited-granted!!, the aches and pains are normal. I have joint and muscle pain which can get very bad. I don't really have much else to add but you definitely aren't alone. I feel ANCIENT. I use the word 'granny' a lot. It is horrible but you're not alone. I know that probably doesn't help but it is worth remembering. Hope you're taking care. 
  • JerseyKaz
    JerseyKaz amethystbex

    Posted

    Yep! For me it started with just ankles and lower legs, then after about a year or so the tiredness and lack of energy, then the upper body especially upper arms, shoulders and neck. I'm 40 something feeling like going 140 something some days! Also as Peter said, hot baths are amazing therapy! Good luck cheesygrinJK
    • amethystbex
      amethystbex JerseyKaz

      Posted

      some times i  wonder if iimagine sympotoms or pressume anything is cfs.

      Its good to know that others are same (well its not but you know what i mean)

      hot baths are fab but cab be tiring sometimes pete and yes qwase i feel OLD! not all the time but usually at night when trying to get comfortable in bed.

      Thanks for your info everyone its so valuable.

    • dawn97
      dawn97 amethystbex

      Posted

      This cfs makes us all question our sanity !!( is it in my head ??) truth is its loads of symptoms different on different days depending on so many things & differ person to person !!! That's why it so hard to be understood even by those closest to us !!  when I have to explain myself these days  ( As apposed to how I used to by giving hour long lectures to people & visibly see them glaze over & make the first available reason to leave me ) I just say if Pain were blue  you'd be looking at a smurf & you'd be surprised how many of us smurfs there are out there !!! Please be assured your not alone ! Take care all dawn x

       

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