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Body and feet jumping

Posted , 2 users are following.

jane_14092
jane_14092

Don’t know if anyone suffers with this and it sounds really stupid as well but sometimes my whole body jumps,not just a little bit either, I will actually twist round or jump up but now it has gone to my foot and leg as well,started off with toes moving then the sole of my foot would kind of ripple but now my foot goes crazy for a few minutes then stops,it is going so fast and it is really starting to worry me what is going on.

Three years ago I woke and my face had dropped one side,one eye wouldn’t open and the other wouldn’t close,my forehead had no movement,my speech was awful and I couldn’t eat or drink properly because the mouth was part open and also tongue stayed to the left of my mouth.

The hospital gave me a headache scan and said it wasn’t a stroke but admitted me to the stroke ward overnight. It was said my larynx wasn’t opening and closing properly so all food puréed and all drinks thickened. I was told it was Bells Palsey and told it would get better in up to six weeks,3 years later I am still the same and I wonder if this foot jumping is connected in some way

0 likes, 3 replies

3 Replies

  • lucie41026
    lucie41026 jane_14092

    Posted

    jane14092,

    Have you seen a neurologist? I feel for you. I have tardive dyskinesia, akathisia, and abdominal dyskinesia. Your symptoms should really be discussed with a neurologist. I have never heard or read about your symptoms. I have been seeing a neurologist specializing in tardive dyskinesia for three years now and i am on special medication. It helps but as you may know this condition is sadly incurable. I wish you the best of luck. 

  • jane_14092
    jane_14092

    Posted

    So sorry you are suffering so much.

    I did see a neurologist three years ago as I woke up one morning looking like I had a stroke,one side of my face was drooping down,one eye I couldn’t open the other I couldn’t close,had no movement to my forehead or eyebrows,my head tilting so my ear touched my shoulder,my voice very slurred and hard to understand, couldn’t eat or drink as unable to swallow

    I was in a stroke ward overnight but was told next year that it was Bells Palsey and would clear in up to six weeks, 3 years down the line I am still the same,all my food is puréed and thickener in my drinks,have to have a baby’s sippy cup because of my neck tilting I can’t drink from a normal one also told now my larynx isn’t working properly so that is why I choke.

    Saw the neurologist and he asked what medications I was on as I have other disabilities,told him and he said two of the tablets I take shouldn’t be taken together and definitely not long term and he thinks I have brain damage so made an appointment for a scan. I got a copy of the letter that he then sent to my GP and he was saying in that he wasn’t sure if it was all in my head,so two totally different responses so I felt if he thought then then I couldn’t go back to see him again,didn’t trust him to be telling me the truth.

    Sorry for the long winded reply 

  • lucie41026
    lucie41026 jane_14092

    Posted

    Oh Jane14092, don’t worry about the details you included in your text! The more information the better. Maybe someone participating in this forum will identify with your symptoms. I wish some doctor will finally help you and give you some relief. I am very sorry for what you’re going through. Please don’t give up!
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