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Movement Disorders

Also known as Akathisia, Ataxia, Cerebral Palsy, Chorea, Dyskinesia, Dystonia, Essential Tremor, Huntington's Disease, Parkinson's Disease, Sydenham's Chorea, Tetrabenazine, Tic Disorders, Tourette's Syndrome, Tremors, Writer's Cramp

All discussions in this group

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  • Benign Hereditary Chorea

    Hello,  I have a 2 and a half year old daughter who was diagnosed with the above since birth, there was a 50% chance she would have this as her dad carries the gene. I don't know anyone else who has this, I think it is quite rare, noone in my area (Tayside, Scotland) has a condition …

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  • Tremors (Severe) - Vitamin D deficiency

    I suffered for years with tremors that increase to a total body tremor and felt unwell and fatigued... The tremors became very severe by the age of 40 and found it hard to function. It's worth looking into this - my consultant decided to look at my vitamin d levels and the result was they were …

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  • Ataxia

    Hello! About five years ago I had a brain injury (Central Pontine Myelinysis) and I am grateful two be alive and had such a great recovery. The one thing that I feel is holding me back is my Ataxia. I exercise daily, take a B Complex daily, cut out most caffeine and alcohol, and take a small dose …

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  • Internal tremors especially in my head

    I'm a 28 year old female that lives a realitivly stress free life that is healthy and active. A month ago I randomly started feeling a INTERNAL  shaking tremoring sensation in my upper body this lasted for a week and went away. In this time I had a MRI of the head and an ECG that both came …

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  • Overall question...

    Over the past 7-8 months I have been experiencing strong fatigue, stiffness in my legs and truck, insomnia, and within the last month I have completely lost swing in my right arm.  Several days ago I visited a movement disorder specialist, that I was referred to by my primary doctor, and he is …

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  • Is this signs of parkinsons

    I havenot been feeling right 4 the last 2 years 58 years old, and menopausel, have have a internal trembling on and off the last 4 months, weak mussels in top of legs feels some days as toes want to curl up when I walk, I do have wear and tear in the bottom of back comfiemed by Mri scan, numbness …

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  • Miss diagnosed for 20 years

    I also have the Tardive dyskinesia in my mouth! I was miss diagnosed for 20 years after having 2 TMI I had a psychotic episode! I was just recently told that in Fact I may never of had another psychotic episode after that they had me on Zyprexa and gave me samples for many years! But for a year …

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  • Benign Fasciculation Syndrome and Tremors

    A BFS patient in another website said that BFS is not progressive, there is just periods where it can be worse or better. I'm about to turn 20 and can say that my condition has advanced. When I was in mid-adolescence tremors, myoclonus and spasms almost never occurred. Now it's just the …

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  • finger/wrist/foot tremor - shaking when move

    Hi, Since a couple of months now, I am experiencing some weird shaking and it is becoming very difficult now.. I uploaded a video in hope that someone could maybe help me or even maybe it could help other people. Here it is : The main caracteristic is that the shaking/tremor I experience is only …

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  • Writing hand anxiety?

    Hi everyone.  I’m super frustrated with an intermittent problem that crops up regularly whereby my writing hand/fingers/wrist/arm muscles get tight, shakes, twitches, etc when I write.  For example when trying to sign my name (illegible) or fill-in a form.  It appears to be anxiety ( …

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  • Canabis oil used with prescribed medication

     My husband has Parkinsons and is interested in trying Canabis Oil to treat his pain, and maybe more....  we are worried that it might react with his present medication which is Sinemet, Rogotein patches, Amlodipine and Zapain (strong pain killers).   Do any of you take these …

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  • Cervical Dystonia getting better

    I've had slight tremors in my neck for years, and the past 2 to 3 years it got worse.  Especially when I'm nervous, but basically all the time, at least slightly.  It always looks like I'm shaking my head "no".  Went to 2 neurologists - 1 said Essential Tremor, …

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  • Abdominal Dyskinesia

    I’ve been diagnosed with TD three years ago. I’ve been taking Xenazine since. A few months ago I started to have abdominal spasms or contractions. My neurologist changed the Xenazine dosage from 50mg a day to 75mg. I started the new dosage this morning. I felt horrible. Heavy, light headed, dizzy. …

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  • depessed

    you send out there. I what to die so sleep i which i had lots of sleeper so i can take them all . I fill i have no family around  who comes. i what to kill my self so i can rest and be left alone but i never get eve next doors start some time i like to get a council flat but becouse i have a …

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  • OT Assessment

    Not really sure where I should post this so please bear with me. I have cerebral palsy and chronic mental health issues. I live alone but finding it extremely difficult to manage day to day living. This is due to both a combination of my physical impairment and mental state. My cp makes it …

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  • I’m really worried this is Parkinson’s!!

    I’m a 26 y/o male who up to a year ago was perfectly healthy.  It all started September 2017 with a couple of  weeks of constipation, and several trips to the GP.  After this I started to experience mild anxiety attacks, heart palpitations, dizziness and lightheadedness, chest pain …

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  • Body and feet jumping

    Don’t know if anyone suffers with this and it sounds really stupid as well but sometimes my whole body jumps,not just a little bit either, I will actually twist round or jump up but now it has gone to my foot and leg as well,started off with toes moving then the sole of my foot would kind of ripple …

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  • Tics/jumps and random neck movement

    Hello, My include blackouts, migraines, tremors, shaking, easy dehydration, and sinus/inflammation. At 18 I had an EEG done, which showed normal results, however around the same time, symptoms started to worsen as I started experiencing random head and neck movements. I also started experiencing …

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  • developing product for patients with hand tremors

    I am an engineering student from the US working on a project at the National University of Singapore, and I am developing a product to make it easier for people with hand tremors to unlock doors using keys. My team and I have been unable to find many people with hand tremors willing to talk to us, …

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  • Essential Tremor Disorder

    I was diagnosed 2.5 years ago with ET at that time it was only affecting my predominantly in my left hand, minimally on my right hand, and my speech. Now I have full body tremors which get really intense when my anxiety level rises my legs over the past 4 months began to feel extremely weak and I …

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  • Essential tremors and alchohol

    My friend suffers from severe shaking in both hands to the extent that he cannot carry a cup or glass of liquid as it would simply spill all over the place. Last night, him and his wife were at my place and we sat outside and had a few glasses of red wine. I was astonished to notice that after a …

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  • tardive dyskinesia years after diagnosis with pain

    For 7 years I've just lived with tardive dyskinesia.  I'm 67 now.  I suspain my daily neck pain is a result of this movement disorder.  I clench teeth and do chewing motions most of the time.  I also turn head side to side a lot.  its the pain that bothers me.  

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  • Has anyone else got or had medication induced akathisia?

    Hi Just wondering if there's anyone else out there who either has or has had akathisia as a result of taking ssris or anti pcyhotics? It seems like an uncommon thing. I am very sensitive to meds and have severe akathisia from SSRIs. I got it on citalopram, came off that and was put on …

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  • Spreading of tremors, with muscle spasm and muscle jerking

    Hi,  I'm currently 20 years old and I've been experiencing weird symptoms. I had been diagnosed with writers cramp and action tremor which is very obvious in my right hand. I was very wary of it being MS or arthritis but I've done all the necessary test (MRI of the brain and spine …

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  • Swelling in Arm

    Hello everyone. My 75 year old Uncle has Parkinson’s Disease & has been admitted to hospital with swelling in his arm & hand. I went to visit him today & staff wouldn’t disclose any information with regard to his condition. Uncle has no idea why he is in hospital so can’t tell me. His …

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  • My Essential Tremor will worsen?

    Hello everyone! I am 23 years old male, and I've been diagnosed with Essential Tremor 4 years ago. Fortunately my hand tremor very-very mild and it does not bother me. Every ET will worsening over time, or mine can be stay mild throughout life? Thanks! Best Regards!   

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  • My daughter has had BHC since the age of 6 and is now 19.

    Her condition worsened through the initial years but has stabilized since then. She has normal cognition and attends mainstream college. We live in Mumbai India and don't know of any families that have this disease.  Has anyone tried treatments that have helped ? Has anyone considered stem …

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  • Annoying "Jerkiness" in muscles and can't figure out what it is

    Hello there, So I have had this strange "jerkiness" in my muscles for about 7 months, and it has not gotten any better (nor any worse).  I'm not sure what the heck is going on, but I'm just trying to find some clues on what is going on so I could hopefully get my body back …

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  • Tardive Dyskinesia Help

    I joined this site to share some information.  My wife has TD and has had it for a year or so and it keeps her from getting a restful sleep among other thing.  She has tried the Vitamin E treatment and no success.  The doctor put her on Buspar to see if that would help and no change.& …

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