Body feels extremely hot one min. freezing the next
Posted , 6 users are following.
I have been seen 3 times by my primary and 3 times by the ER. they keep
doing the same test blood work urine test, and i have no answers.
i'm beyond frustrated with the same old scenario every day , plus i have dry eyes dry mouth every day as well .I have severe arthritis as well and in 2010 and 2011 had both complete hip surgeries , i also have fibromyalgia i have pain that feels like it's in the spine and i also suffer from massive headaches ,which i always thought it was sinusitis apparently it's not i'm so sick of this need answers. 
1 like, 7 replies
margaret22116 sharon74028
Posted
Your primary is not really capable of diagnosing Sjogren's. There is currently no absolute single blood test to use to diagnose this condition. You need to see a specialist with more knowledge of how to deal with this. Have you seen a rheumatologist?
sharon74028 margaret22116
Posted
Hi Margaret , thank you for the advise ,i will be contactacting one asap !!
i thought i would have to see a neurologist opposed to a rheumatologist either way i thank you sooooo
much ''
Megheart sharon74028
Posted
Briefly, it is not uncommon for people with autoimmune conditions, such as Sjögren's Syndrome to experience Dysautonomia. Temperature instability as you describe could fall into this category.
it would be worth reading up on Dysautonomia. Other dysautonomic symptoms are balance problems, POTS (Postural Orthostatic Tachycardia Syndrome), GI dysfunction and many more.
You do need to see a Rheumatologist as Margaret has said.
sharon74028 Megheart
Posted
Thank you as well . Megheart .. i don't feel so a lone now every one as well as my Doctors was not taking me serious ugh !!
amkoffee sharon74028
Posted
As the other two people that commented said you need to go see a rheumatologist if you're not seeing one already. The rheumatologist is the one who should be treating your fibromyalgia and arthritis anyway.
sharon74028 amkoffee
Posted
Will do tytyty means a lot !!! amkoffee ''
tj268 sharon74028
Posted
Hello sharon, I agree about seeing a rheumy but it was actually a Neuro who dx'ed me through blood work and symptoms. I also get freezing/burning up feelings with no fever time to time. Just went though it 2 days ago...but also had an abscess encompassing basically my whole left armpit cut open at the Dr. It is horrible when it happens and I truly feel for you!!!