Body feels heavy, numb, tense, tight, stiff, weak, rigid - headache - eye pain - brain fog - voices

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Hello all,

I'm a male and I'm 23 years old. Below is the detailed list of symptoms of my undiagnosed illness. If anyone has heard of any illness like this, please let me know! I hate living like this! This undiagnosed illness has caused me to drop all of my classes at college. It also stopped me from doing the things I love such as playing soccer, basketball, and weight-lifting. As a result, I'm in bed laying around all day because I cannot do anything besides rest, which doesn't even feel like proper and refreshing rest, since I am in a lot of pain. I've seen almost all types of doctors and have done multiple body exams and the end result is always that there is nothing physically wrong with me. Please help! Thank you!


-Dull tension band-like headache in between my eyebrows, around my entire forehead, and on my hairline. Sometimes, I also get random sharp pains around my head. The more I focus on something (electronics, books, moving people or cars), and move my head and eyes around, the worse this pain gets.

-Eye pain: dull pain on top of and the back of eyes. Also, my eyes constantly feel as if they have been overly worked. My eyes feel like they're straining. Sometimes, my eyes feel like they're burning. The more I focus on something (electronics, books, moving people or cars), and move my head and eyes around, the worse this pain gets.

-Cloudy/foggy and unclear vision: my vision doesn't feel as opened up and clear as it was when I was healthy. It feels as if there is a cloud over my eyes and head. My vision isn’t connecting with the world around me, especially after engaging in and focusing in on any daily-life activities such as reading books, communicating with others, looking at electronic screens (cell-phone, laptop, TV), walking down the street (while focusing on moving things such as people and cars), playing sports, driving, and even being a passenger in a car.

*These past 3 symptoms above are worst when I am in a car as a passenger or as the driver. The symptoms are worst as a passenger since I get to look through every window around me. In addition, I get very nauseous.

  • Sensitivity to light: Bright lights hurt my eyes a lot! I must lower the brightness on all of my devices to look at electronic screens. In general, when I look at electronic screens or any type of bright light, my symptoms fire up even more. I squint so much when I am in the sun (even when I am not directly facing the sun). This enhances my eye pain and headache.

-Sensory-processing issues: For example, when I'm outside and I'm focusing on my surroundings, the people or cars moving around me causes my vision to immediately disconnect with the world. I am immediately in a tailspin, which causes me to have cloudy/foggy vision and feel lost. This happens every time that I go outside. It happens at home as well, but it does not happen as much as it does outside. This is probably because there is less activity at home. It happens at home when I focus on things such as the TV, cell-phone, laptop, or a book. Generally, the more that I focus on anything, the worse the pain gets.

-Heavy, numb, tense, tight, stiff, weak, and rigid overall body: those are all of the words that I can describe how my body feels. I feel like I have lost a good amount of feeling in my entire body, which is why I say "numb." These symptoms disallow me to play sports at the competitive level that I used to play them. I have become very slow, heavy, tense, tight, stiff, weak and rigid. In case you're wondering, I'm 5' 11" and I weigh 160 pounds. These symptoms also disallow me to lift weights since my arms or legs uncontrollably shake when weight-lifting even with a very low weight. Also, when I do push-ups, my arms uncontrollably shake. Now, physical activity always feels like a drag and gives me absolutely no pleasure. I don't feel like I'm gaining any muscle when working out. I am also too weak and heavy to enjoy working out and there is nothing that I can do about it until I restore my body back to its normal health. For me, physical activity feels like fighting a huge resistance and not being able to conquer/overcome that resistance. Not the healthy and light resistance that a healthy body normally goes against, but a heavier resistance that makes me feel as if I am not engaging my muscles while physically moving (but they actually are being engaged). As a result, I'm always paying attention to how bad I'm feeling and generally how weak I am. The more that I run or the more that I lift, the more heavy, numb, tense, tight, stiff, weak, and rigid that my body gets. In addition, my tendons and joints feel very weak, tight and stiff, especially my wrists, hip flexors, knees and ankles. For example, it is irritating to hold a bottle of water, especially for a longer period of time. It just feels heavy and my body wants my hands to be free so badly. If I do push myself to the absolute limit and jog let's say 1 mile, I'll wake up the next day a lot more sore than usual and extra heavier in the legs, making there no way for me to exercise on that next day. When I was healthy, my legs were very light and fast. Now, they're heavy and slow. Also, it is impossible for me to feel relief from stretching. It hurts to stretch, especially my hamstrings.

-It is very hard to hold my body up when standing or sitting. I have a very weak posture.

-Heavy legs: my feet feel as if they are sinking or applying a lot of pressure into the ground or my shoes.

-Aching legs (at a low intensity, but still irritating).

-Tight muscles (seems like it could be solely neurological tightness).

-Restless legs: it’s hard to sit still or lay down. Very hard to find a comfortable position. Generally, on a scale of 1-10, 10 being the most restless, my legs feel like a 5 all the time. Sometimes, I wake up in the middle of the night and my legs feel like a 10, and I'm left tossing and turning around the bed until the restlessness calms down.

-Poor sleep quality: I wake up very tired with the same symptoms that I went to sleep with. For example, I usually sleep 13 hours a night and when I wake up, it feels as if I haven't gotten any rest. I don't feel refreshed at all.

-Extreme fatigue, tiredness, and laziness: I’m always tired, no matter how much I sleep. I'm lazy all of the time and any physical activity feels like a literal drag while also fighting a huge resistance.

-Difficulty speaking: light voice (my old voice was deeper), weak voice box and stuttering (sometimes). It's hard to push out words and it's irritating to speak. I also notice that I use so much energy and effort to speak.

-Tight throat.

-Tight tongue and mouth (my mouth/lips tremble sometimes, specifically when I was posing for photos at a wedding).

-Chest tightness.

-Facial tightness and head heaviness.

-Weak breathing: my breath feels heavy. I also notice that I hold my breath (with my mouth) unintentionally sometimes. Breathing with just my nose is not enough, it feels like I need more air.

-Brain fog: difficulty concentrating, unclear mind, and mind constantly blanking out when thinking.

-I get random gasps for air.

-Rumbling palpitations in the chest and pounding heart (sometimes).

-Clogged nose: lost a great amount of my smell.

-Short-term memory loss.

-Anxiety: I have a fear of speaking to people and going outside for two separate reasons. I have a fear of speaking to people because I have so much pain along with a weak voice and a foggy mind that does not think clearly (this makes it hard to communicate with others and gives a high chance of stuttering and embarrassing myself with my slow thought process). Also, I have a fear of going outside because I am in pain, I am lost and worried in the streets and in crowds, since there is so much going on. I am always nervous, uncomfortable, and worrisome with anything that I do, especially in public. Specifically, I am most anxious when I speak in public or on the phone with anyone (employees at stores and friends). For example, ordering my food at a restaurant or deli store can be one of the hardest tasks for me. It causes a lot of stress to my body and I constantly must convince myself to be confident and speak up (while at the same time, I hope that I don’t stutter). My mouth and tongue move very rigidly and that's why I believe it's hard for me to speak up and feel comfortable while doing so. In addition to that, I feel like I don't have enough breath when speaking. Overall, I believe that my anxiety could be because my body forgot how to be relaxed and how to properly breathe. My physical symptoms came before my anxiety. I believe that my physical symptoms have caused my anxiety.

-Ringing in both ears and sometimes in one ear. I always have low-volumed ringing in both ears, but sometimes it becomes loud out of nowhere.

-Locked ankles: it feels as if my tendons and joints are very tight and stiff.

-Hair loss on hairline, "hair"/scalp pain when my hands goes through my hair, and hair does not behave properly (does not stick up on its own as it used to. It falls down even if blow dryed. My hair also curls. It never used to curl in these directions. I've always had straight hair). Also, my hair falls out a lot whenever I go through it. Mostly, during and immediately after showers. I notice the hairs on my hands and on my towel.

-Random spirts of pain around the body (rarely happens anymore). Usually in the upper legs and ankles.

-Erectile dysfunction: the only issue is I have a very weak erection. Not at all as strong of an erection as it used to be when I was healthier.

-A lot of unintentional cracking in different bones of my body including my neck, shoulders, both ankles, right elbow, groin, and the bones next to my hip flexors.

-Loss of balance with locked ankles.

-Easily triggered motion sickness/nausea in the car.

-Cold hands and feet.

-Pink skin mark on left chest pec: It immediately appears when I am exposed to heat or I am sweating. It is slightly visible when I am not in a shower, not in any other hot area, or not sweating. It is no specific color, but you can tell that it was there because it leaves a unnoticeable light mark on my skin (the mark is a tad bit darker than my natural skin color). Others would never notice it when it is not exposed to heat or sweat. But, when it is exposed to those conditions, it is very noticeable. Generally, this skin condition comes and goes. It is not permanent.

In addition to all of these physical symptoms, I experience a voice that speaks through me, through my mouth. As it speaks through my mouth, I simultaneously hear this voice in my mind. It is a manly voice. If I completely let go and let this voice do what it wants to do, it speaks out loud (as my voice), out of my mouth. This rarely happens anymore, even if I let go. Now, if the voice does decide to speak up, it usually speaks inside of my mouth (while my mouth is closed), which is uncontrollable by me. This rarely happens anymore as well. Now, it usually happens when I think about the voice or anything related to it. The voice always said its objective is to make me suffer. It also claims to have given me all of the pain that I suffer from in the list above. It also claims to control my body. The voice or whatever is controlling the voice makes me lick my lips (something I NEVER had the habit of doing) and laugh uncontrollably and randomly in serious situations. This voice knows all of my thoughts and responds to my thoughts. It is as if something is watching and listening to my life. I also feel that I have intrusive thinking where it feels as if the voice is placing bad thoughts into my brain. For example, it always gives me the imagination and feeling of spitting at the person in front of me. Then, I have to fight and resist that thought. Also, as I was about to fall asleep one day, I felt two hands grab my shoulders and I immediately woke up. The feeling of those hands felt very real.

Here are some of the things that the voice tells me:

  • “You can’t beat me”
  • “You’re a pu***. I’ll beat you up with my bare hands”
  • “Keep going you pu***"
  • “I’m not scared of you”
  • “I’ll take care of you and make you suffer”

The reason why I call this illness an undiagnosed illness is because I had all of this physical pain 5 years before the voices came along and no doctor could figure out what was wrong with me. In terms of the voices, which started a year ago, I was diagnosed with undifferentiated schizophrenia. But the odd part is that I have never heard of anyone else with voices speaking through their mouth. It's usually through the mind with schizophrenia. Since the voice stopped talking (when I don't think about it), my main concern is my pain now. Should I believe that the voice is giving me the pain? This would mean that I would need to fully get rid of the voice to get rid of the pain. 2 months before the voices came to me, I had no physical pain. I was healed for those 2 months. In those 2 months, I discovered that if I let go of my body completely and stop thinking about my physical pain, then the pain would go away and it did. This method doesn't work anymore, but at that time I didn't hear a voice. After those 2 months, only the voices started (I had multiple in the beginning), no pain. The pain began 2-3 weeks of hearing my first voice. The voice told me that I would have to take the pain that it's giving me, since I'm a prophet. So, could this mean that the entity controlling the voices gave me pain? And that for the past 6 years of having this illness, this entity was always inside of me and was always giving me pain, it just wasn't speaking to me?

I wrote this description in one shot because it's so hard to concentrate and revise, so please let me know if you have any questions!

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6 Replies

  • Posted

    bloody hell you have a lot going on, I will give you my opinion but that is all it is I'm not a doctor. first of all I would go and get an eye test for your vision issues. I used to work in a opticians and they look deep into the back of your eye and can diagnose all sorts of things. you could need glasses I'm assuming that you dont wear any now, once you get that done that rules your head/eye issues. the voice that you hear is obviously some sort of mental issue as doctor said probably schizophrenia there are numerous different symptoms and not everyone suffers with the same issues. as for all the other stuff going on well it could all be linked to anxiety and overthinking I suffer with health anxiety and have all sorts of physical symptoms that cause me great panic as I think I have something seriously wrong with me. lots of things the same as you, joint stiffness pain, heaviness shakiness muscle tremors and twitches etc. anxiety is a very powerful illness that can do awful things to your mind and body. but as I said I am not a doctor and I think you would benefit from seeing a neurologist, just to make sure everything is working as it should be. you will need to go to your doctor who will refer you. once you tell them all your symptoms they would do a range of tests to rule certain things out. then when you get the all clear from them you could maybe benefit from some counselling and medication to help with your mental health issues then hopefully the physical symptoms will improve. hope you get help soon and get on the road to recovery. do you not have any family who can support you. big hugs x

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    • Posted

      Thank you! But I've already been to an ophthalmologist, optometrist, and neurologist and all say that there's nothing wrong with me. I've been to my general doctor and I have been referred all over the place. The doctors I've seen can't find anything wrong with me. And my anxiety isn't that severe. I do have those fears that I stated above, but I can breakthrough those fears easily, as long as I'm ready to face my pains around people in public. Thank you again for your response!

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    • Posted

      well if you've seen all those specialists and they say nothing is wrong than surely that is a good thing. I dont really know what to say other than to try and get some mental help, you may think your anxiety isn't that high but if you're going through all the above than your body and mind will be going through immense stress x

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  • Posted

    Hello, just one thing that I recently discovered and it might be the core of it. But before I proceed may I ask you a question or request? Have you ever breath with a ventilator machine? Just try it for one hour and breath as much and as deep as you can with it, expand your diaphragm when breath in and and contract when breath out (put your attention on up and down of your chest and re-divert back to it every time you realise you are distracted ), you might experience some body changes but don't stop keep breathing for an hour and let me know how it goes. Looking forward to hear back from you !

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  • Posted

    You certainly have a long list but many of them are symptoms of Sarcoidosis - doctors confuse this auto immune disease with all sorts of other illnesses/diseases including cancer, arthritis, chronic fatigue syndrome and many more.

    Sarcoidosis can effect EVERY organ in your body inside and out. It more commonly shows up in the lung with a build up of calcium granules which cause scarring of the lung. However, it can also start with the eyes - you think you have conjunctivitis then suddenly you can't see. It can lie dormant for years or become rampant reducing a perfectly healthy individual to an invalid and disabled person within a year. In UK there is a Sarcoidosis Support Group set up and staffed by those with the condition and fundraise to provide scholarships for research. Nobody else in the world is researching this very debilitating disease. Read up and maybe you might find some answers for your own condition as mental health is also a feature due to the high anxiety and depression of sufferers.

    Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

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  • Posted

    Hi there, I know this was posted a while ago but I thought I should comment anyways in case you are still monitoring this. My boyfriend has been struggling with an undiagnosed illness as well. He does not have all the physical symptoms you describe but he has brain fog and a pressure feeling in his head (no pain and it is not a headache) when he looks at screens. He went to an athletic therapist that preforms craniosacral therapy and it has made a HUGE difference. You should look into it and try it as it may relieve and eradicate some of your symptoms! I hope you are doing better now than when you made this post!

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