Body gets stuck

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Hi, does anyone else experience parts or the whole of their body getting stuck in one position?  It turns out I am bafferling my doctor.  It especially happens when I am over tired.  All of me or just my legs or arms will stop moving.  It feels like the signals are at equal pressure making the limb or limbs move in opposite directions, hence they are stuck.

I takes someone else to move one of the limbs that a stuck to then 'free-up' my movement.  If no-one is available it takes me between 5mins to  1.5hrs to release the stuck motion.  It can affect my ability to speak by not being able to move my lips.

Anybody else suffer from similar?

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9 Replies

  • Posted

    Hi Julie,

    I have mobility issues when awaking from sleep it’s like the sleep paralysis hasn’t switched off to allow free movement again. It scared me to death when it first started to happen the Doctor did not have a clue and told me it is a new one to him... so I thought Oh well and just have live with it.

    If i sit too long it happens but on a smaller scale, I can move but I really have to think hard to move the joints etc, I tend to think its like a old steam train trying to move out of a railway station... a lot of work has to go in just to get the wheels to move a bit. I might have to think more about it now you have brought the subject up.

     

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    • Posted

      Sorry, didn't mean to give you more worries.  someone else has private messaged me that they too have suffered with them.  They have also heard of someone who locked up on a train.  Needing people to carry them off - poor them.

      So far I've hidden it from the public.  It has got so bad that I've had to let my children and mother-in-law know so that they know how and why they need to move an arm for me.

      x

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    • Posted

      Hi Julie

      I'm more thankful I'm not the only person who has experience of it?

      Wonder how many more people will reply to your question?

      Regards

      Dragon..

       

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    • Posted

      I previously named it 'paralysis'. Which didn't get much of a come back. Then I was talking with my O.T. yesterday and rethought of it as 'being stuck'.  He also said for paraylsis it is more commonly thought of that you wouldn't be able to remain standing up, you would drop to the ground.

       

      This is not the case for me.  I am more like a statue, I am stuck in whatever position I was in when the 'getting stuck' happens.  My hubby awhile back moved me from kneeling upright to laying down on my side. This got my fingers trapped under me which hurt, so I tried to tell him that with difficulty.  It was also strange cross as he rolled me onto my side I stayed in the kneeling position all the time, like moving a rock.  Very strange sensation!

      It would be good to hear from any others before I see the M.E. doctor at the end of the month.

      Regards, Julie

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    • Posted

      Hi Julie

      Please keep me posted on what the ME doctor thinks of it please.

      My Dr is not brill on the old ME subject, and the specialist I saw at the local hospital just said go home and rest you have ME! Which was of little to no help.

      He also cheered me up no end by saying my ME was Incurable and untreatable with the present medical knowledge of the illness/disease. Which may be true but hard to take on the chin like that.

      Regards,

      Dragon

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    • Posted

      What lovely bedside manor he has ...

      My local Gp does her best.  She has an interest in it and fights our case against the hospital.  She tried to write Cop-out to the Cardiac specialist cos he is refusing to see me although I have obvious Cardiac problems, her boss wouldn't let her. The Cardia guy just says I have M.E. so I should just accept I have Sinus Tachycardia with Ischemia times. That will be nice carved on my headstonefrown.

      We have a good M.E. section about 10 miles away who diagnosed me and gave my Gp a bit of advice about 2 years ago.  So I am going back to see them cos I'm much worse now than I was then and my Gp needs some advice re the Cardiac symptoms.

      I'll happily update you once I've seen her end of this month.

      Juliex

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  • Posted

    Hi, I get stuck, too.  My mind tells my body to move and nothing happens.  My husband usually has to give me a little shove to get me un-stuck.  It's annoying, but since I've been sick for 11 years, I've just learned to deal with it.  My doctors have no idea why this happens.  They just shrug and tell me it's a part of being sick.  So, anyway, if you've have had all the tests to make sure nothing else is wrong, I'd say not to worry.  I hope everything will be better for you.
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    • Posted

      Drat, I've had ME/cfs & Fibro for 23yrs, looks like I'm really stuck with it.  My problem is it's getting more frequent.  When it was like once a fortnight it wasn't really a problem, it just happened.  Now it's more like twice a week.  Really worried if it could get worse sad
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