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Bone pain again!

Posted , 3 users are following.

Gem1384
Gem1384

Hi all, it's been a while since I've posted on here as my symptoms had calmed down. However the last couple of weeks I have once again been hit my horrible pain in my shoulder bone. Just on the tips and along the tops to my collar bone. And new added pain is in my sternum which spreads out. Does anyone else suffer with this? I have low calcium levels and my dr has refered me for a dexa scan (I think that's how is spelt). I've never had a scan or X-ray on my shoulder. My ALP has been up and down for over a year now with no one worried for the reason why. I am scared about bone cancer as the pain is so much worse at night! At the moment it's my left shoulder which is really playing up. It doesn't seem related to use of it. There is no bumps/lumps that I can feel and I have full movement of the joint.

I would be grateful to hear your thoughts on this. Does anyone suffer the same? I thought my amitriptiline has it under control but obviously not sad

I will be returning to my Drs on Monday as I am scared now.

Gem

0 likes, 4 replies

4 Replies

  • Misssy2
    Misssy2 Gem1384

    Posted

    Hi..I also have been tentatively diagnosed with Fibro.

    But in the Neurolgist office last week...the Doctor did an EMG...tests nerves in my arms...and shoulders.

    He got to the shoulder and found something called complex repetitive discharge...which means muscle deterioration and he said it is unusal...I feel all the same as you...all my BONES ache.

    I would suggest seeing your GP and asking for follow up with a Rheumatologist....or Osteoperosis Dr...to check your "bone" and "joint" functions.

    • Gem1384
      Gem1384 Misssy2

      Posted

      Thank you Missy, I will do!

      I saw pain management who diagnosed fibro but refused rheumatologist. But UK going back to pain management so I will mention it again. I've never heard of fibro being effected by the weather and I seem to suffer more during the cold weather. I was the same last year?

      Sorry you've got pains too. It's horrible!

      Thank you again for ur advice!

      Gem x

  • manda08392
    manda08392 Gem1384

    Posted

    An answer is not something I can provide but I can assure you that I also find the amitriptiline doesn't always work. Some days it takes the edge off and other days I wonder if I actually took it because i feel no difference. I actually recently stopped taking all perscription drugs in an attempt to clear out my system since i had a couple of bad reactions to new things perscribed for migraines recently. I can also tell you that my neck/shoulder on my right side and my middle back flare up really bad at night and sometimes when i wake up i cant feel my shoulder and have to get up really carefully. the pain usually fades down a couple of notches after being up and about for an hour or two. I actually just got back from massage therapy where she spent almost the entire time on my collar bone and the neck and i barely feel like i can hold my head straight. So I can at least tell you that you aren't alone but i have never had a dexa scan, I hope you will let us know how it goes.
    • Gem1384
      Gem1384 manda08392

      Posted

      Thank you for your reply Manda.

      My pains are horrible at the moment so much so it's scares me what could be wrong sad

      I will let you know how my scan goes when I've had it.

      It's nice to hear we are all different in our symptoms. And not all the same.

      Thanks again for taking the time to reply!

      Gem x

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