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I’ve suffered from TN for 13 years. I’ve barely been pain free for the last 2 years and been on 3600mcg of gabapentine for over a year. I was using pregabalin before which does work well but I just couldn’t take the withdrawal anymore and the weight gain and drowsiness and other side effects so tried gabapentine instead. It’s helped but the pain still increases to a point that it’s difficult to cope with. Last week blowing my nose was a form of torture. I’m pencilled in for the glycerol injection on December 20th and feeling very anxious and emotional. I’m not eligible for the MVD so destructive procedures are my only option and it’s my surgeons preference. He’s apparently very good, Mr Demetriades in Edinburgh and has done hundreds before but there’s always so many horrible stories of things going wrong and bad side effects I just need to gone stories. I feel stuck between a rock and a hard place as being on such a high dose these meds indefinitely also run risks that are frightening. I’d be so grateful to hear some positive stories from you guys. My biggest fear is making it worse or causing more problems for myself and not even helping the one I already have. Big love to all if you struggling with this awful affliction, my heart goes out to you all. Sometimes I feel so alone.
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