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Borderline cyst?

Posted , 4 users are following.

pami56
pami56

I have got myself into a bit of a state again. Had ovaries removed 4 weeks ago. Feel fine. Got a letter Tuesday to say see consultant the next next regarding results. When I saw him he said the cyst on the right ovary was borderline, not to worry, 98% chance it hasn't spread. Got to have ct scan to make sure. All this is fine. I don't have to see him for a year. He said nothing to worry about. But on my notes at the end he wrote stage 1c. That doesn't make sense to me cos surely that means cancer. I'm trying so hard to focus on the 98% and the yearly appointments but obviously now I'm scared the scan may show something despite my ca125 was only 8 and I had an MRI in December which was all clear. They only removed because of family history and as a precaution.

I feel so depressed. Haven't eaten since Tuesday and don't want to get out of bed

0 likes, 12 replies

12 Replies

  • Megg1234
    Megg1234 pami56

    Posted

    Hi pami

    I received a phonecall a week after my surgery to tell me that my cysts were borderline. I haven't got an appointment for another 3 weeks so they cannot be massively concerned. However, my Macmillan nurse said that borderline tumours are staged in the same was as a cancerous tumour is and that the borderline means it appears as cancer but doesn't act/behave like a cancer.

    Sorry that I don't have a massive amount of information but I thought just knowing that may ease your mind a little bit.

    I hope your recovery and next appointment go well for you xx

    • pami56
      pami56 Megg1234

      Posted

      Thank you so much It's all so confusing. It seems they give you good news on one hand then take it away with another. They just don't give you enough information and it's hard when your sitting there to take it all in. You have been so helpful. Thanks again and I hope all goes well with your next appointment x
    • pami56
      pami56 Megg1234

      Posted

      Sorry can I ask why you have a Macmillan nurse. Sorry if I being too intrusive
    • Megg1234
      Megg1234 pami56

      Posted

      You're more than welcome smile

      And I'm not entirely sure why I have a Macmillan nurse. After my MRI scan I was referred to a cancer specialist because of the appearance of the cysts on the MRI and the Macmillan nurse was with me on that appointment and for my pre op. She then saw me at the hospital after my operation and has been my post op support until I see the cancer specialist again. So it's all very daunting that I still have that specialist and a Macmillan nurse but I think they are just following through to the end of my post op treatment so that I have had the same people maybe smile

    • pami56
      pami56 Megg1234

      Posted

      That's great you have that support. It's so different in different hospitals and depends where you are in the country I think. I hope everything goes well for you 😊
    • pami56
      pami56

      Posted

      Iv just fully read that link. I can't thank you enough for how better that's made me feel. People like you truly are a Godsend. Best wishes and please let me know how things go for you x
    • Megg1234
      Megg1234 pami56

      Posted

      You're ever so welcome! Good luck with everything and please also keep me updated on your progress. Best of luck xx
  • allysponies
    allysponies pami56

    Posted

    Was your surgeon a gyn onc? Do you get the CYST scan soon? He seemed to create a lot of questions for the next year!
  • Bexp66
    Bexp66 pami56

    Posted

    I would definately do a double check ... you can always make an appointment with your GP who can go through it but for your peace of mind I would ask to talk it through with someone. Great news it was borderline but be vigilant and never worry to see someone if you are worried.
    • pami56
      pami56 Bexp66

      Posted

      Thank you. People on here have been soooo helpful. I feel a bit better now having read up on things
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