Botox and Migraine
Posted , 3 users are following.
I'm waiting to have Botox treatment for Migraine and wondered if anyone can tell me if they have had this treatment and what their experience has been like with regards to effectiveness and side effects?
0 likes, 5 replies
duvet
Posted
Side effects are low for me which is why I'm persevering despite self paying as I have been unable to tolerate most meds. Mainly soreness at the 25+injection sites, forehead, scalp, neck and shoulders - basically where the headaches hurt! This wears off after about 24-48 hrs. You should not wash your hair for a day so don't book a party night out as any tiny pin pricks are visible for a day or so. I seem to be worse for the first week, then the headaches tail off giving me a really good month or so before ramping back up by the end of 3 months and the next injections.
Nb the Botox can sting going in but this fades quite quickly. However it is best not to drive straight away, my consultant makes me wait at least 30mins and be checked by him or a nurse that I am ok and not having a rare allergic reaction.
I'm also trying high doses of Riboflavin at present - see Migraine Trust website for dosage. Some decent clinic evidence it is effective at 400mg per day.
Good luck and hope that helps,
Helen
diane82573
Posted
I'm pleased you have found some relief from it and hope you will be migraine free very soon.
As for the party nights they're pretty much a thing of the past, sadly
By the way I have got NHS funding for my treatment, would you not be eligible for this?
Wishing you well & thanks again
Diane
duvet
Posted
I had 4 hrs head pain free this year - just to confirm its not my imagination.
Have you tried indometacin? Vv strong anti inflammatory. Gives me best relief for head and back pain but I canot take it routinely as it spikes my blood pressure, but I suspect I have hemicrania migraine, which is one of a suite of indometacin responsive migraine.
Good luck with the Botox and watch out for neon yellow pee on the B2!
Lets hope 2014 brings us some relief
Xx
diane82573
Posted
I can relate to having to explain your history to a different gp, mine is on maternity leave for 6 months, it's such a trial having to explain everything all over again to someone who doesn't know you !
I really hope you can get more than 4 hours relief, I used to think it was hard when I had migraines every 4to 6 weeks now I wish I could go back to that, Oh to feel normal !!
Thanks for the neon pee warning, you weren't wrong there!
Hope it can be a happy new year for you too.
Best wishes
Diane x
diane82573
Posted
Diane x