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My dad has been diagnosed with parkinsonisms. At first he was told it was Parkinson's itself, but an appointment with a private specialist confirmed it was 'parkinsonisms' instead. His main symptom is a facial tremor which is causing severe cluster headaches. When the headaches start, he's almost beside himself with pain and has to knock himself out with diazepam!
Anyway, he's been referred for Botox treatment. It took a lot of nagging, after I read about it online. The GP and the specialist both said 'no' but then he paid privately and was told he'd be a good candidate. I think they're reluctant to refer people, as it's just so expensive. That is understandable!
Anyway, does anyone have any experience in Botox in treatment of headaches and/or/tremor? It would be fantastic if it helped my dad. At the moment, he's not got great quality of life...he's always concerned about doing something which will irritate the nerves in his head and set off the pain...so he's mostly just pottering about.
He's got an appointment with a medical Botox specialist soon. What can he expect?
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