Botox injections, what are your experiences?

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Hi All,

I had Botox injections for the first time on Thursday and I was wondering what results others have had with them?

I suffer as many others do too, with Hemiplegic Migraine and this is one of the last resorts I have been told

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8 Replies

  • Posted

    Hi there, I had botox injections a month ago. They haven't worked yet. I was told the 1st lot probably wouldn't work but the next may. I have unfortunately had a side effect which is a drooping eyelid. Apparently this was picked up when they did the trials. I wasn't told this so was a bit shocked when it happened. I hope they work for you.
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    • Posted

      Hi Alison,

      Thanks for your comments and sorry to hear of the bad experience you had.

      I have cluster headaches also and since the botox, its kind of aggreviated this a bit, but it might just be a coincidence.

      Do you have to keep a dailly headache diary and give feedback after a month Alison?

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    • Posted

      Hi yes I keep a daily migraine diary which i will take to my next clinic. The migraine pain has changed for me. It's more of a severe stabbing pain now which can take your breath away. I think that's down to the botox. I am also been asserted for CFS and have fibromyalgia and they have now decided I need yet another mri scan as they think I may have a tumour in my left ear. It's funny as I told them 2 years ago that I keep loosing my hearing in my left ear they said t can happen with chronicle migraine. Had 4 mri's over 2 year 1 been 3 weeks ago. Also been left with tinnitus after the worst headache ever which they thought was a cluster headache so I really feel for you their unbearable. Let us know how you get on.
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    • Posted

      Well, Alison, what a coincidence!  I have been to see an ENT specialist lately and I have reduced hearing in my left ear and tinitus as well.  I have had numerous MRI scans done and the latest one was last November, so he is going to get that one, to see if I have a tumour in my ear, a bit scarey all this hey.  So, the ENT specialist said he would contact me if he saw anything on the scan.

      Thankfully though, 2 days now without a migraine, which I get in the form of really bad eye pain, photofobia and sometimes I get hospitalised due to total weakness down the left side, slured speach and then semi unconsciousness and they think i am having a stroke!  Then after 2-3 days I am all better again, thankfully.  I am really hoping that these Botox injections work to keep me out of hospital.

      Yes, let me know how you get on Alison too.

      Steve

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    • Posted

      That is a coincidence :-@ I'm just bad 24/7 I'm never symptom free and it fluctuates all day and night. Haven't been to work since October which is gutting. Short term memory and cognitive disorder is awful and forgetting where I'm going is a massive problem. I have a friend with your type of migraine she's had to give up work as she gets 2 a day. Let me know how you get on as well. Take care
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    • Posted

      Goodness Alison!  I have found since I have been in this state, that their are always other people worse off and now I discovered that you are worse off than myself, I do at least go to work, although nearly every other week I am in hospital and yes I forget things too.  It's weird because things I should remember I find I nearly get something out, but then its gone!

      I was off work for ages with my cluster headaches, untill I got on my latest meds, that is Pregabalin and Verapamil and sumatripton injections or tablets when I get an attack and sometimes they are 2 a day also.  When it was really bad I had to have steroids, while they find a med that worked for me.  I take Flunarizine for HM though, but lately it hasnt worked so well.

      What medicines do you take if you dont mind me asking Alison?

       

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    • Posted

      at the moment I'm on naratriptan twice weekly Max but to be honest I could take it every day as it does help sometimes. I've also got injectable sumitriptan but can't have them with the other meds. I don't tolerate side effects well do I've been on nearly every med so far. They prescribed me some beta blockers the other week but I'm a bet hesitant due to the tinnitus been in rytham with my heart beat. I've gone from never taking any meds all my life to taking mostly anything they throw at me. I'm sure they think I'm crazy haha. I still can't believe that an Mri wouldn't pick a tumour up. I've had them with dye as well. A bit worrying that have been referred to ENT 2 years after loosing my hearing totally in the left ear. Everything is left sided can no longer move some of my toes on my left foot it's so strange. And my left pupil has stopped dialating as well. I'm no doctor but I'm sure all these little problems amount to something :-@ life is nothing like it was 2 years ago. I'm sure there's load of us out there
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    • Posted

      Yes, I had the MRI with dye last year too and at least they say I have a brain, so thats always a good start! Lol.  I go to The National Neurological Hospital in London and its right next door to Great Ormand street hospital for sick children and it just puts my conditions into perspective when I see them, with their parents and they have no hair!  Yes the symptoms you describe are similar to mine, I get pins and needles in my face and feels like my ear will explode sometimes.

      Keep in touch please Alison, I would like to know how you progress and what meds you have

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