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Not sure if my circumstances are unique but I've been reading through posts for a while and thought I would see if anyone has had similar issues and could offer me any advice.
11/2017 Age 47. After several hours of dealing with pain in my kidney for what I assumed was a kidney stone, I went to the ER. I had been drinking copious amounts of water to flush the suspected stone. The ER confirmed a stone and also said I has lots of fluid in my bladder (1400cc) and wanted to insert a foley. I declined. I figured with all the water I was drinking it was to be expected and I was still peeing normally or so I thought. 4 days later I'm back in the ER for the same pain but this time I did not drink water. The ER takes a measurement of fluid in my bladder and it's at 1000cc. I knew I had a problem then. I allow the foley cath and damn was that painful! I had bloody puss discharge for 3 days after insertion. It was a very traumatic experience.
10 days later and still wearing the foley, I see a urologist who has the bedside manner of a brick wall. He does a DRE & cystoscopy and says my prostate is enlarged but doesn't mention any obstruction during the cystoscopy. He can provide me no answers and shrugs his shoulders as to what might be wrong. He orders a urodynamic study. I'm trained to self cath by the nurse and have been doing it for almost a year now. My psa is a low .59 and cancer is not suspected.
After that visit, I go home and start reviewing 3 CT and ultrasound tests from the prior 3 years and I come to realize that these tests all show I've had a distended bladder since at least 04/2015. For 2.5 years my bladder has been distended but the symptoms were so subtle I did not recognize It. My primary doctor never mentioned it either which I find troubling as well. Looking back now I realize I had issues with weak stream and having to go frequently but given my age and that I was still peeing normally or so I thought most of the time, I didn't give these symptoms much thought. My urodynamic study was finally done 03/2018. The Dr. told me that she didn't think surgical options would help me and she would send the final report to my urologist. That was devastating to hear and I figured I would be self cathing the rest of my life. All during the last year of self cathing, I've had numerous UTI's as well as prostatitis and I almost was hospitalized for an e-coli uti that wasn't responding to antibiotics. Overall I've been pretty miserable. I could deal with self cathing but I seem very susceptible to UTI's and I never had one until I started self cathing.
Finally a month or so ago I see my urologist again who says my Urodynamics shows high pressure and low flow consistent with outlet obstruction and he wants to do a Urolift. My current situation is I have a bladder that was severly distended for a long period of time. I self cath 4-6 times a day. I have no sensation of having to pee unless I have anywhere from 400-600cc in my bladder. When that happens, I can pee out maybe 50-150 cc on my own but my post void residual is 300-500cc which I empty with my cath. Plus the kidney stone I had is now in my bladder and 1.6cm in size. My prostate is 39.9grams. My urologist can't seem to tell me if this Urolift procedure will work and get me off the catheter or if my bladder has irreparable damage. Does anyone have any feedback on my situation? Feel free to ask questions. Thanks!
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