Posted , 16 users are following.
i have frequency and urgency go about 10-15 x day .ihave been on just about all meds in the last 3 months with no help.i do not want to have turp done to many horror stories anybody got any ideas? If I leave it go and just live like this do I have a chance of ruining my bladder or kidneys? No burning no blood just keep on voiding. Anyone with the same symptoms? Help
0 likes, 32 replies
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roy79542 Rayluca10
Posted
hope that helps your situation.
nktoronto roy79542
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Where did you get HOLEP done? Do you know if HOLEP is done in Ontario, Canada?
kenneth1955 nktoronto
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roy79542 nktoronto
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arlington Rayluca10
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Have you had an MRI yet to see the size of your prostate and whether there is an enlarged median lobe pressing in to the bladder/urethra?
If there is, then you may want to research the PAE procedure. Keep in mind that it works much better for an enlarged prostate that doesn't have an enlarged median lobe.
I was in your situation, let it go just thinking it was part and parcel of aging, and then went in to acute urinary retention from taking antihistamines for hives. (that was over 2 years ago and I still am in retntion and need to self catheterize.
Good luck!
kenneth1955 Rayluca10
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johnguild Rayluca10
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Hi Rayluca, in one respect you are lucky to be living in today's age of 'advance medicine'; there are so many alteratives other than a TURP. After managing BPH for +15 years with meds, I recently had a Rezum procedure done: Here is a link to the Rezum blog
https://patient.info/forums/discuss/rezum-have-you-had-this-done--499675?page=2
Others on this site should be able to tell you about other options. Also, Google it, you'll find alternatives to meds and TURP. Once you zero in on one that you think might work for you come back to the blog and ask others for feedback. This site is invaluable in that respect
For sure, to avoid damage to your bladder or kidneys you need to void yourself.
Don’t get discourage. Plenty have the BPH issue. If you look for it you’ll find lots of support, tips and guidance. You've got plent of company!
glenn77 johnguild
Posted
I woud learn about self catherization and have all the supplies at hand in case you ever have an acute retention episode.
kenneth1955 glenn77
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richp21 Rayluca10
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Hi Ray,
I don't know if PAE would be appropriate for you but you shouild definitely inestigate whether it might be. It is the least invasive of the many procedures that are out there. There are several discussions in this forum about PAE, and the procedure is performed in the US, AUS, UK, Portugal and I suspect other places as well.
cartoonman Rayluca10
Posted
Thanks for coming here, Ray! You can learn much from our experiences, and much about the pluses and minuses of each of many alternatives. I had Urolift done in Decmber, for my situation, which was iffy. It is the ONLY procedure that can be "undone," so it stands apart form all the others. But there are some restrictions.
As to your question about ruining your bladder or kidneys: YES YOU CAN DO PERMANENT DAMAGE! If you do not completely void, you can wind up with a permanently stretched-out bladder (as I have) or with infections in the kidneys--- you don't want that.
I would strongly suggest that you have both the strength of your streammeansured, AND be measured for the amount of pee that remains after you have voided what you can void. If that amoiunt is notable (more than 50cc), you should consider learning to self-cath. Easy to do and we can advise you on better ways than the nurse will teach you! If the retained amount is 300cc or greater, DEFINITELY learn to self-cath. Much better, emotionally and mental health-wise, than getting stuck with a Foley catheter and a leg bag. Seriously.
Good luck!
glenn77 cartoonman
Posted
I sure wish my doctor had mentioned self cathing rather than giving me a sales pitch for having TURP. I didn't know there was such a procedure until afer my GL procedure led to inflammation and swelling that led to an acute retention episode, and then I went on-line where I learned about it. I very well would have skipped the TURP and would still have a normal life, rather than living in diapers and pads.
cartoonman glenn77
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Hi Glenn, So unfortunate, your situation! I hope that you are able to regain some sense of normalcy in the coming months/years! From the stories shared here, either the TURP procedure is flawed, or there are surgeons who don't deserve the title! There are too many cases of people who were sold this as a solution, for me to believe that it's only 4% of the patients who experience problems. Those were the figures used by my uro-doc, when I said, "No thanks!"
Well, until a solution is found for you, at least you can offer your cautionary tale! :-/
glenn77 cartoonman
Posted
Hey Cman, I think you are so right about the statistics about good outcomes being highly distorted. When I visited the surgeon who will be doing my artificial urinary sphincter (AUS) surgery, I mentioned the published claim that only 0.5% of TURP survivors end up with significant incontinence, he quickly discounted that number and went on to explain the factors leading to that unreasonably low number, such as a lot of men just keep it to themselves and live with the consequences and suffer in silence. Being a specialist in AUS surgery, cases like mine funnel down to him to be fixed. So he's the one who sees surgical errors and damaged external sphincters.
BTW, was it Kwajalein Island where you once worked for a stint? I think you mentioned it but couldn't mention the name.
Glenn
cartoonman glenn77
Posted
WOW, GLenn I think you are correct! " Construction, started in early 1968 on a prototype Missile Site Radar (MSR), was completed at the Kwajalein Island test area, and the radar installation's data processing and programming activities became partially operational. Static tests were held on the Sprint missile's ground support equip" Ever go there?
glenn77 cartoonman
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cartoonman glenn77
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No, sorry, they don't. I was doing work (via a subcontractor) for Bell Labs/Whippany NJ and Mountainside (Mountainville?) , during the Summer of '69...Seond-to-last actual job I ever had. (Being self-employed since 1971 doesn't count! :-)
glenn77 cartoonman
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cartoonman glenn77
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AH! Murray Hill! That's the name that escaped this old brain. My very first job after high school was night clean up at Whippany... 1967. Small world!