Bph scared of turp

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i have frequency and urgency go about 10-15 x day .ihave been on just about all meds in the last 3 months with no help.i do not want to have turp done to many horror stories anybody got any ideas? If I leave it go and just live like this do I have a chance of ruining my bladder or kidneys? No burning no blood just keep on voiding. Anyone with the same symptoms? Help

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  • Posted

    I had those symptoms for two or three years before my system completely stopped voiding, resulting in an emergency insertion of a catheter. Due to the large size of my prostate, the consultant recommended a a HOLEP op which uses lasers to cut away the inside of the prostate. It is now one week since the op and my voiding is becoming more normal each day. It was a significant operation taking three hours under a general anaesthetic.

    hope that helps your situation.

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    • Posted

      Hi Roy,

       Where did you get HOLEP done? Do you know if HOLEP is done in Ontario, Canada? 

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    • Posted

      NKtoronto  I know that it is done at one of the hospital in Quebec  One of the men on here name John T had it done  Ken
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    • Posted

      I live in UK. It is only offerred privately here as the op is tooexpensive to be provided by the NHS. However it has worked very well for me . Fortunately I had the means to pay for it. Mine was necessary due to the unusually large size of my prostate.
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  • Posted

    Have you had an MRI yet to see the size of your prostate and whether there is an enlarged median lobe pressing in to the bladder/urethra?

    If there is, then you may want to research the PAE procedure.  Keep in mind that it works much better for an enlarged prostate that doesn't have an enlarged median lobe.

    I was in your situation, let it go just thinking it was part and parcel of aging, and then went in to acute urinary retention from taking antihistamines for hives.  (that was over 2 years ago and I still am in retntion and need to self catheterize.

    Good luck!

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  • Posted

    Sorry that your having a problem  Have you had any test to see what is the problem.  If it is your prostate there is PAE and Uro-lift that may help you  Ken 
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  • Posted

    Hi Rayluca,  in one respect you are lucky to be living in today's age of 'advance medicine'; there are so many alteratives other than a TURP.   After managing BPH for +15 years with meds, I recently had a Rezum procedure done:  Here is a link to the Rezum blog

    http://patient.info/forums/discuss/rezum-have-you-had-this-done--499675?page=2

    Others on this site should be able to tell you about other options.  Also, Google it, you'll find alternatives to meds and TURP.  Once you zero in on one that you think might work for you come back to the blog and ask others for feedback.  This site is invaluable in that respect

    For sure, to avoid damage to your bladder or kidneys you need to void yourself. 

    Don’t get discourage.  Plenty have the BPH issue.  If you look for it you’ll find lots of support, tips and guidance.  You've got plent of company!

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    • Posted

      Your situation is similar to mine.  About 10 times per 24 hours, never had acute retention, but went for TURP in hopes of sleeping better at night.  Ended up incontinent, at least up to now, 7 months post surgery.

      I woud learn about self catherization and have all the supplies at hand in case you ever have an acute retention episode.

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    • Posted

      Glenn  That is why I feel that a turp is not all ways good.We should try the less invasive procedure first.  I hope that the doctor that did the turp is trying to help you  I will put you on the list for prayers my friend  Ken
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  • Posted

    Hi Ray,

        I don't know if PAE would be appropriate for you but you shouild definitely inestigate whether it might be. It is the least invasive of the many procedures that are out there. There are several discussions in this forum about PAE, and the procedure is performed in the US, AUS, UK, Portugal and I suspect other places as well.

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  • Posted

    Thanks for coming here, Ray!   You can learn much from our experiences, and much about the pluses and minuses of each of many alternatives.  I had Urolift done in Decmber, for my situation, which was iffy.  It is the ONLY procedure that can be "undone," so it stands apart form all the others.  But there are some restrictions.

    As to your question about ruining your bladder or kidneys:  YES YOU CAN DO PERMANENT DAMAGE!  If you do not completely void, you can wind up with a permanently stretched-out bladder (as I have) or with infections in the kidneys--- you don't want that.

    I would strongly suggest that you have both the strength of your streammeansured, AND be measured for the amount of pee that remains after you have voided what you can void.   If that amoiunt is notable (more than 50cc), you should consider learning to self-cath.  Easy to do and we can advise you on better ways than the nurse will teach you!  If the retained amount is 300cc or greater, DEFINITELY learn to self-cath.  Much better, emotionally and mental health-wise, than getting stuck with a Foley catheter and a leg bag.  Seriously.

    Good luck!

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    • Posted

      I sure wish my doctor had mentioned self cathing rather than giving me a sales pitch for having TURP.  I didn't know there was such a procedure until afer my GL procedure led to inflammation and swelling that led to an acute retention episode, and then I went on-line where I learned about it.   I very well would have skipped the TURP and would still have a normal life, rather than living in diapers and pads.

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    • Posted

      Hi Glenn,  So unfortunate, your situation!  I hope that you are able to regain some sense of normalcy in the coming months/years!  From the stories shared here, either the TURP procedure is flawed, or there are surgeons who don't deserve the title!  There are too many cases of people who were sold this as a solution, for me to believe that it's only 4% of the patients who experience problems.  Those were the figures used by my uro-doc, when I said, "No thanks!"  

      Well, until a solution is found for you, at least you can offer your cautionary tale!  :-/

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    • Posted

      Hey Cman,  I think you are so right about the statistics about good outcomes being highly distorted.  When I visited the surgeon who will be doing my artificial urinary sphincter (AUS) surgery, I mentioned the published claim that only 0.5% of TURP survivors end up with significant incontinence, he quickly discounted that number and went on to explain the factors leading to that unreasonably low number, such as a lot of men just keep it to themselves and live with the consequences and suffer in silence.  Being a specialist in AUS surgery, cases like mine funnel down to him to be fixed.  So he's the one who sees surgical errors and damaged external sphincters.

      BTW, was it Kwajalein Island where you once worked for a stint?  I think you mentioned it but couldn't mention the name.

      Glenn

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    • Posted

      WOW, GLenn I think you are correct!  " Construction, started in early 1968 on a prototype Missile Site Radar (MSR), was completed at the Kwajalein Island test area, and the radar installation's data processing and programming activities became partially operational. Static tests were held on the Sprint missile's ground support equip"                                                Ever go there?

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    • Posted

      No, but I worked on some of the engineering doing systems engineering for target simulation.  Do Pinefroft and  Guilford Center mean anything to you?
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    • Posted

      No, sorry, they don't.  I was doing work (via a subcontractor) for Bell Labs/Whippany NJ and Mountainside (Mountainville?) , during the Summer of '69...Seond-to-last actual job I ever had.  (Being self-employed since 1971 doesn't count!  :-)  wink

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    • Posted

      My job moved to Whippany in 1977 where I stayed until about 1992, and then I went to Murray Hill until 1998.
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    • Posted

      AH!  Murray Hill!  That's the name that escaped this old brain.  My very first job after high school was night clean up at Whippany... 1967.  Small world! 

       

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