BPH several procedures NONE worked
Posted , 13 users are following.
May 2018 had a Urolilft in Toronto at a cost of $17,000 That worked for about a year.
More and more Acute Urinary Retention (visits to emerg screaming in pain, hours waiting for a catheter) from December 2019 on, then finally a Turp February 2020. 6 weeks later, and several
attempts of trying to pee without a catheter all end with failure and more screaming pain.
Starting to feel suicidal and just wanting to give up.
Modern urology seems less of an exact science and more of 'lets try this or let's try that'.
I'm 64, in great shape and just retired.
0 likes, 47 replies
pluff_mud ScotsCanuck
Edited
Have you learned clean intermittent self catheterization (CIC)? It is stories like yours that keep me from pursuing other options. I am a few years older than you, and I have been doing CIC for nearly three years. it has become second nature. My uro can't guarantee any surgical remedy would end in a better result.
Motto pluff_mud
Posted
my my euro is terrific in Chicago. If you feel like taking a trip here I can highly recommend him.
And And yes CIC is a savior. first It will help give you relief while you figure it out. second it means you'll never have to go to the ER for an emergency capth. And three it'll help when you need to recover from whatever surgery they're going to want to put you on a catheter but you won't need to
patrick45945 pluff_mud
Edited
I'm with pluffmud! I am going on 6 months of CIC after having over 5 liters of bloody urine drained in the ER after a spill from my bicycle. The uro gives a 20-30% success rate for any procedure at this point so I'm ready to give CIC a long-term try at rehabbing my bladder enough to walk away from catheters at some point without any intrusive surgical procedures as others here have done.
I have become habituated to CIC and it is a non-issue for me and is as routine as flossing my teeth and takes less time. Especially with your history, I highly recommend you give it a try. You can do a search here for more info.
Good Luck!
Patrick
rdemyan pluff_mud
Posted
Yes. You should absolutely learn CIC. Knowing that you can handle emergency situations without having to go to the ER will greatly ease your mind.
Best of luck.
pluff_mud Motto
Edited
My issue is more with the bladder than the prostate. I am supposed to see my uro for a 6 month check mid April, but I suspect that will be canceled. So far my bladder hasn't rehabbed.
patrick45945 pluff_mud
Posted
I have learned here that the key to rehabbing your bladder is to keep your PVRs (post void residual) to less than 400 ml. This is easy to measure while doing CIC.
Patrick
derek76 patrick45945
Posted
Are you saying that retaining 300 ml. will rehab a bladder ?
I was retaining 400 ml. prior to GL in 2004 and less than 50ml.after the procedure.
When my prostate regrew to 135 grms by 2013 I was retaining about 300ml. I then had Thulium/Holmium similar to HoLep. Then not only was retention negligible but my PSA came down to 0.74 from nearly 8.0 and no more prostate infections since.
patrick45945 derek76
Posted
No, I was suggesting that CIC should be scheduled so that bladder volume never exceeds 400 ml to facilitate rehabbing the bladder.
derek76 patrick45945
Edited
I understand now what you meant. So self cathing emptied your bladder more or less completely ?
patrick45945 derek76
Posted
Yes, as far as I know it does.
derek76 patrick45945
Posted
A friend of mine was doing it prior to his GL in 2004.
Sixteen years later his flow has slowed a bit but sorted by Cialis. He went back to his same Uro who is still doing GL who told him no need for another procedure at this time.
andrewcalgary ScotsCanuck
Posted
I had FLA for BPH with Dr.Karamanian, with excellent results, you can read about my experience in another thread below
rdemyan andrewcalgary
Posted
Hi Andrew.
ScotsCanuck has already had a TURP 6 weeks ago. If the TURP isn't providing at least some relief, then doesn't it seem likely that his problem now might be with his bladder? If that's the case, it doesn't seem likely to me that another procedure for the prostate will help. Of course, I am assuming that the uro didn't botch the TURP.
Also, if I understand FLA correctly, the urethra is left intact; but TURP destroys the section of the urethra that goes through the prostate. I'm not sure if this is an issue now for an FLA performed after a TURP (although I guess the prostate now is the "ersatz" urethra so maybe it isn't an issue at all).
Do you see some reason why another procedure at this stage would be helpful? Thanks.
andrewcalgary rdemyan
Posted
Hi RDEMYAN,
you making good points, but the best advise someone can get is to contact Dr.Karamanian, or any other FLA practitioner, they all do FLA for BPH and ask, cost nothing for consultation, I have a friend who had GL, uros are saying urethra/rostate is clear, but he has some problems, had botox injection for overactive bladder, so far not much improvements, and uros don't offer him much help.
Clean intermittent self catheterization (CIC) would be a good short term solution but longer term I wouldn't be satisfied, that is why I went for FLA, so far with great results, hope this last for few years.
Howard31850 rdemyan
Posted
FLA is not for everyone. If you have a median lobe blocking the bladder neck and no other issues then FLA is the way to go for sure if you can afford it. But first you have to determine the cause of your retention. There are many possible causes that FLA does not address. Having said that I love Dr. K - there is no doctor in the world like him. He did a biopsy for me years ago.