BPH Treatment, I am exhausted

Posted , 23 users are following.

I have been living with BPH symptoms for about 5-8 years and I am only 54 years old. My urologist offers very little help other than drugs or TURP, the so called "Gold Standard".I have been reading endless websites on my condition and how to treat it for many years. This is no solid or logical path to take, it all seems like a gamble.

This forum has been a great help , but each individual has different experience. I have had 2 AUR in 2 years and I plan my day , everyday based on where the toilets are. I am just so tired of it all! I don't know what to do.

To date, I don't take any medications and I have had no procedures done.

I don't want anything called or remotely associated with ROTO-ROOTER!

At this point I MUST do something. My plan is:

  1. Meet with top Urologist at UCLA.
  2. Meet with Dr. Bagla in Virginia.
  3. Meet With Dr. Karamanian in Houston.

Make a decision and DO SOMETHING! ANYTHING!

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  • Posted

    I WENT WITH DR. BAGLA. GO FOR IT.!

    • Posted

      There you are! So you are happy with results?

  • Posted

    when you go to Houston, meet Dr. Gonzalez also. I was pretty much decided to go with Dr. K, but then met Dr. G. and trusted him. He is a very fine urologist, wonderful person. I had issues starting in the 40's and it just got worse with age. I finally had surgery the end of 2017 and I am very happy about it. All functions are there again. My bladder recovered somehow and I can sleep through the night again. It has been a blessing for me. Meanwhile I am 66...had I known, I would have had this done 15 years ago. In my case it had to do with the median lobe. Good luck to you!

    • Posted

      It was a combination of Green Light and Rezum.

      He was very careful and mentioned beforehand that there is a risk with RE. We talked about Dr. K's method and he was against it. I trusted the man for some reason and took his advice. Before surgery I had to go up between 1 and 3 times per night. During day time I went to the restroom every 2 hours at least....traveling was a problem and visiting friends felt often uncomfortable with my frequent restroom visits. When I had to go, it was urgent and if I didn't go the entire system got messed up and I had to go thereafter every 15 minutes until it got normal again. 16 months later there is nor more urgency, I go in the morning, the afternoon, evening twice , before bed time and can sleep through. A true blessing. Over time the bladder improves a bit again. I usually can hold 200 to 250 ml, while before it was probably around 100 ml. I was also lucky not to have RE. A lucky straw after all. Good luck to you. Don't hesitate and do something.

    • Posted

      It seems a strange combination why does he do that ? Does he do them both on the same day and in what sequence does he do them ?

      Your daily output does not seem all that much and 250ml capacity is well below the norm. Despite initially waiting nine years before having GL I avoided bladder problems and after a second laser procedure when my prostate regrew to 135 gm I often ignore the need that passes and eventually pass 600 ml.

      Were it not for chronic insomnia I would probably not need to get up during the night.

    • Posted

      Derek,

      you are definitely an anomaly. After 135 g prostate and two procedures having void volume of 600 g deserves to be recorded in Guinness book. Online medical encyclopedia cites normal void volume 210-300 mL with morning void up to 500 mL. With age our bladders became thicker and can hold less urine for both men and women. Before PAE I used to void 75-100 mL, after up to 250 mL. My bladder slowly improves back to "normal" Of course, during the AUR it could accommodate up to 2L (very painfully though). I don't think that we should aim 600 ml at our age. Time between bathroom visits is the most important. It should be no less than 3 hrs. Currently, I have achieved 3-5 hrs. All that said, PAE produces modest improvements but makes quality of life (and even sex) much better with little or no side effects at all. The improvements tend to deteriorate with time but almost any method of BPH treatment has that shortcoming, unless the patient dies before the the symptoms start to worsen again.

    • Posted

      My bladder seems to be in pretty good condition as I'm coming up to 85! I normally go at about 300 ml but if I get distracted the feeling goes. If I need about 9pm I avoid going as then I would not then need before going to bed. I don't restrict my liquid intake despite advice to the contrary.

      Why does PAE lose its effect in time as the beads are still in position.

    • Posted

      The new blood vessels grow and restore of supply of blood full of testosterone from the testis. Severe BPH is often (if not always) the result of varicocele , typical in older age, when veins from testis are backed up with blood full of testosterone. At least one of the theories claim so. The prostate continues to grow, but at lesser speed in advanced age. Some people claim good benefits in 10 years. Some have repeated the procedure with very modest success. My prostate was 135 g before PAE. Probably around 90 g now, bu can continue to shrink. I don't feel further improvement after 9 months post procedure. So far is a great improvement vs. preop. My PSA dropped from 5 ng/L to 2, where it was 20 years ago. To early to tell, I'm only 12 month postop and hope that it will last 3-5 years at least. Even TURP rarely lasts more than 7-10 years.

    • Posted

      So no procedure except complete removal is final.

      I wonder at what age it really does stop growing as I had GL at 70 for my 75 grm prostate and Thuluium/Holmium at 79 when it was 135 grms.(reduced to 55grms) that surgeon suggested that I take Avodart to reduce the need for another procedure. I said No, do you think t my age that it has time to grow again. He looked at my age on his screen and said 'Perhaps not'

      A friend who also had GL for a relatively small but badly placed prostate in 2004 now has a reduced flow but the Uro said that he has done very well and can get by on Cialis.

    • Posted

      10 year redo rate for Holep is less than 1%, vs 10-15% for TURP.

    • Posted

      I've read that most of prostate growth is between ages of 50 and 70. I so hope that it holds true for me.

    • Posted

      Hank,

      No surprise. Holep is a specialized procedure that really cores out the prostate, but takes specialized training - not done in a lot of places. Mayo Clinic, Cleveland Clinic for example.

  • Posted

    I met with new Urologist at UCLA today. he basically told me the same thing as my local Uro. TURP OR UROLIFT.

    I asked about PAE , he said not much data but he could refer me to the IR dept at UCLA.

  • Posted

    Dr Bagla called me today and spent 20 minutes on the phone.He says come to Virginia and do the PAE procedure. No pre-consultation, just based on my description he thinks he can help. He seems very confident and very kind.

    Then my wife says, why go all the way to Virginia, why not go to UCLA. So she finds a DR. Justin McWilliams and I called him. He is the IR at UCLA. He wants to do a CT PELVIS ANGIOGRAM W CONTRAST as a consultation to let me know the best way to proceed with PAE.

    My gut tells me to just stick with Dr. Bagla.Anyone with PAE experience with other doctors?

    • Posted

      I have no PAE experience but it seems to me that having a local doctor who you can meet face-to-face and discuss things with is a better approach. Sounds like he actually wants to evaluate your condition before deciding if PAE is the correct treatment. I'm with your wife on this one.

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