BPH vs. Voiding Dysfunction
Posted , 7 users are following.
I have been told that I have overactive bladder (though no incontinence or leaking), pelvic floor dysfunction, and a small but nonetheless obstructing prostate (PSA 0.5) which my current urologist wants to operate on. Despite being on numerous medications for some time (Myrbetriq, Tamsulosin (FloMax), Tadalafil (Cialis), Methocarbamol, and Gabapentin), my symptoms have progressively deteriorated to the point where (1) I cannot urinate standing up, (2) it takes me 15 to 45 minutes to initiate urination at all times (and I void about 12 times a day), (3) I often have to strain mightily to initiate urination, which is exacerbating my pelvic floor dysfunction, (4) I am in bladder/urethra/pelvic floor pain most of the day, which gets worse as my bladder fills with urine, and which usually is temporarily relieved by voiding, and (5) I am now self-catheterizing up to 3 times a day when the pain is too great and I can't take it any more, a process which often increases the irritation and pain in my urethra/external urethral sphincter. I measure my urine output when catheterizing and the most I have ever voided is 7 ounces (200 ml). Does this sound like BPH or something else with my bladder and/or pelvic floor/external urethral sphincter? I am at my rope's end and am quickly becoming an invalid.
1 like, 16 replies
hank1953 steven54301
Posted
Did you check to see if you have UTI?
steven54301 hank1953
Posted
No, but was thinking earlier today that I should check. I've been using single-use self-lubcricated Coloplast speedicath catheters for about 6 weeks and am careful about hygiene, but you never know. I will get a UTI home test today and go to an urgent care clinic if anything shows up. Thanks.
hank1953 steven54301
Posted
How successful are you with self cathing? Is it easy ? Are you having any pain or bleeding as a result? Self cathing if not done properly may cause problems and worsen your symptoms. Are the Coloplast catheters housed in green pouches?
steven54301 hank1953
Posted
It is generally pretty easy I guess, but lately I seem to have some pain/difficulty when I try to get through the external urethral sphincter (I think), and the prostate right after that seems tighter than before (but not painful). I agree that I often am sore after catheterizing, and am now going to avoid doing it when at all possible. I had some light bleeding for a couple of days last week, but that has passed (it was only visible on the catheter tip and tissue paper). The catheters are in gray pouches (SpeediCath Flex Coudé Pro). I am using size French 14, but just received some French 12 samples which might be more comfortable. I was really hoping self-catheterizing would improve the quality of my life, based on some threads I read on this site, but you are right it does seem to be worsening my symptoms. I am now trying to reserve it for absolute emergencies when I'm in excruciating pain and cannot void within 30 minutes without heavy straining. I need to stop straining.
I tested negative for a UTI today (home test) and will check again in the morning.
hank1953 steven54301
Posted
The good thing is you are not using the Coloplast SpeediCath with green pouches. Those are very stiff and caused many injuries, especially among newbies. I am very familiar with the SpeediCath Flex Coudé Pro, and still use them on occasion. They're nice in term of convenience. However I did notice some minor bleeding using them, similar to you, blood at the tips of the catheters. Hopefully size 12 will solve your problems.
michael31017 steven54301
Posted
Hi Steven. The fact that you are having trouble emptying your bladder and are also having pain when you try to void without catheters seems to indicate that your bladder is trying really hard to empty but it cannot due to the prostatic channel being pinched/blocked. The problem with this situation is that if you let it go too long, the bladder gets flabby (weak muscles) or thick (too much tissue) and cannot be repaired from what my urologist tells me. Pain is your body's way to say that things aren't working! Brings back memories of me a few years ago before TURP when I was doubled over in a parking lot with pain and spasms since I couldn't pee and I couldn't drive. Ugh.
If you are going to self-catheter, you should get enough supplies (including the travel-type caths that fold up into your jacket pocket) so you can cath when you feel a need to empty your bladder. Your brain and bladder are sort of freaking out now to drain urine out of the body and something needs to change.
What procedure does your urologist want to do for relief?
steven54301 michael31017
Posted
My current urologist has only mentioned Urolift, which I'm not interested in, though I haven't told him, mostly because I haven't met with him since last August -- the last few visits I have met with his assistant, who has been focused on trying new medications and showing me how to catheterize. My family and friends have strongly encouraged me to get a second opinion, so I have an appointment with a new urologist in about ten days. Hopefully he lives up to his excellent reputation.
I always have a catheter and baby wipes with me when I leave the house in case of an emergency. Your parking lot story is familiar. Last summer coming back from the beach/dinner with friends I had to pull over in the middle of nowhere and go into the woods to void and it took me nearly an hour. Extremely painful, and painfully embarrassing.
TKM steven54301
Edited
Your PSA is low at 0.5. 7 ounces is not a lot to void. I usually void 8 ounces but it varies from 2 to 13 ounces. I have been using catheters for 5 years now, usually Speedy Cath size 12 in the green package 5 to 6 times per day. I have become used to it and does not bother me. For the first week I was using catheters I used the red rubber type with external lube. They are very soft and flexible, and do not cause irritation, good for beginners.
I am surprised your urologist wants to operate, but then you haven't said much about your symptoms, prostate size, flow rate, post void residual, median lobe, etc. Be sure to get all the proper testing done before rushing to surgery. In the meantime you can use intermittent catheterization.
steven54301 TKM
Edited
I have received mixed messages about my prostate from urologists. When my symptoms started over five years ago (frequency with pain at end of voiding and persistent microscopic hematuria (per urine tests)), the first urologist I saw did a bunch of tests which found nothing, tried a bunch of medications which did nothing, and then told me he didn't know what else to do for me and suggested I get a second opinion. He apparently ruled out BPH based on a DRE.
A couple of months later I got a second opinion from another urologist and he also ruled out BPH based on a DRE and a PSA test result under 1. He suggested dietary changes, which did in fact help, though there were a lot of ups and downs as I figured out what I could and couldn't eat or drink. At the time I was satisfied that there was nothing serious wrong with me (although I urinated on average 15 times per day), such as bladder or prostate cancer.
Things went downhill about a year and half ago when I started waking up in the night in pain and had extreme difficulty in voiding -- sometimes it would take me more than an hour to go, and in one awful case it took me 3.5 hours. I would have gone to the emergency room, but the thought of driving over and then getting processed in and probably waiting for hours to see someone was too much. I was then referred to a new urologist, the current one, who noted after a cystoscopy in January 2022 that I have a "Small but obstructing gland with central zone elevation and lateral lobe obstruction close to bladder neck," but he also referred me to a pelvic floor physical therapist (who by the way told me "it's not your prostate"). I was recently looking at my urologist's notes from our first visit in December 2021 and he estimated my prostate size at 50 grams (in bold), which I don't believe is "small." Meanwhile, every time the urologist's office checks my post-void residual after I produce a urine sample, they tell me my bladder is nearly empty. Yet last night I woke in severe pain and had to catheterize just 1.5 hours after a natural (although strained) void and out came 8 ounces (a new record), so I do seem to be retaining at times.
I had a pelvic MRI in January which found nothing abnormal (other than lumbar disc issues I already knew about). Interestingly, the urologist's assistant told me that I did not meet the criteria for having a prostate MRI (I believe she said it was because my PSA was so low). She also said a transrectal ultrasound of my prostate would not be useful.
I've never had a flow test. I was going to mention it to the urologist's assistant at our last visit in February, but she brought it up first and it is scheduled for the end of April. But I am getting a second opinion from another urologist on all this in about ten days.
blair37744 steven54301
Posted
I had my first urine flow test last week after many years of issues. It seems like a urine flow test should be the first test done on a man with BPH symptoms
bob00486 steven54301
Edited
Get a second or third opinion from urologists. If you keep doing what you are doing you may have very serious permanent damage to your bladder
steven54301 bob00486
Posted
I am getting a second opinion in about ten days. If he can convince me that BPH is the source of my troubles, he is one of the few urologists in the area who does HoLEP, which seems to me to be the least awful of all the options.
blair37744 steven54301
Posted
Why do you consider HoLEP to be the least awful option? I don't know much about it
steven54301 blair37744
Posted
HoLEP enucleates the interior of the prostate within the outer capsule (sort of like separating and then removing the guts of an orange from the surrounding peel, from the inside). Because so much material is removed, it is unlikely you will ever need another procedure again. Recovery also apparently is easier because you don't really have to worry about inflammation or blood clots or chunks of dead prostate tissue clogging the passage. And it appears that you only need to have a Foley catheter in you overnight after the procedure.
Not that I think that this or any other procedure is going to be a risk-free picnic. But if I need to have a procedure, this is the one I'd pick.
blair37744 steven54301
Posted
What is the expected outcome regarding ejaculation and erectile function?
steven54301 blair37744
Edited
From what I've read, retrograde ejaculation is guaranteed, but ED is very rare unless you already had problems.