BPPV and sac decompression or Labyrinthectomy

Thank you for sharing. It’s very helpful. I’m happy you got that second opinion. That surgery would have been a tragic mistake.  

I have such a horrible time with the spinning. Closing my eyes makes it worse for me. I guess it’s fear. The eply maneuver does work but episodes eventually return. I’m thankful that my husband can perform them. Will be going to vestibular therapy again to hopefully gain a lengthier period of being BPPV free. 

Best to you..

Rubye, I hope the vestibular therapy brings you some relief. And I wish you the strength to cope with it all.

I've been finding it difficult myself.....the pressure and fullness has more or less cut off the hearing in my menieres ear, and what I can hear is very distorted, plus loud tinnitus. I don't have any hearing in my other ear, so I'm at a terrible disadvantage. I'm on betahistine and a corticosteroid nasal spray for nearly two weeks but it hasn't had an impact yet. But I'm still hoping that it might.....

Wishing you well, take care.

Thank you. I hope that you find relief with your new course of treatment. Never knew that inner ear issues could cause so much difficulty on ones quality of life. But here we are....

Best to you....

Thank you. The maneuvers do work  but return in a short time and unexpected. I guess I’m just tired of the years of fighting bouts of vertigo. I was really hoping that the sac decompression surgery would end it all for a period but apparently not.  I will continue with vestibular therapy as well. 

Best to you...

Reading Ruby’s is making me nervous , I’m going tomorrow to make a appointment for the sac surgery , when you had yours how were you after surgery? I don’t want my issues to be worse. Right now I really don’t have any balance issues unless I’m having a attack with vertigo and my vision is never effected . How did your sac surgery go

Judy I had it done in 2009 and afterwards I was almost symptom free.  It takes longer than the week to heal so plan on being out of work for 2 weeks.  My Menieres has always effected my balance so there was no difference but there was a huge difference in my vertigo attacks. 

Willow 

Does the surgery still give you relief now this many years later? Or did it clog and youbare back to  vertigo attacks

I had been having frequent episodes of vertigo since 2014.  I was hospitalized for a week in early May because my vertigo went completely out of control and landed me in the hospital for a week being sedated.   My sac decompression surgery was in May. I have not had episodic vertigo caused by menieres since June. I continue to have bouts of BPPV if I lie in the affected side or anything position that cause the inner ear crystals to move. My balance has been a problem that I didn’t have before the surgery. It is gradually improving with vestibular therapy.  It will take a while.  Where you are ,right now, sounds similar to where I was prior May. 

I also loss additional hearing in the affected ear.  For the month after my surgery, I had more numerous bouts of vertigo with poor vision, unsteadiness, and poor balance.  It takes time recover.  My vision returned. I remain on a low sodium diet. I also take a diuretic. I’m continuing to explore additional options to combat further deterioration of that ear.  I’m very careful with my good ear and praying that it remains that way. 

It really makes me afraid to get it, I think of it as giving my fluid more room so my virtigo isn’t triggered so often , but like I said I only have issues when I have vertigo but really no balance issues. I have been wearing these wrist band one on each wrist that really seems to help my balance . And I am on a low sodium and water pills. I haven’t had any issues with driving . Should I not get the surgery?

Hi Judy. What are the wrist bands you are wearing for balance?

I have no experience of sac decompression, but I wish you well in your decision and hope it all works out well for you.

Hi. You have to remember that everyone is different in recovering from surgery and with the results. My bouts with vertigo were never easy and very unpredictable. They began increasing in frequency.  My doctor did everything to avoid me having surgery because it is always a risk. I had surgery when I had no choice.  I had a second opinion in the past about options and was told that surgery should be a last resort.  So I didn’t have until I had no choice. How often do you have vertigo attacks. What bands are you using? 

The wrist band I found them at CVS and it has no medicine in them just something for balance. I had Ménière’s for 5 years but it was the May when my son got married my vertigo attacks started, then in June my mom and dog died and then in Aug dropped off my last born at college 7 hours away from where I live . So my attacks seem to come on with stress and hit weather.  I wanted the surgery as a precaution 

Sorry to hear about your family situations. As I understand it, stress can be a major factor in triggering vertigo and so does barometric pressure. I totally agree that both are not good for this condition. I have experienced that too.  I also had numerous episodes that came on out of no where. It is a tough decision. I have been there.  

Best of luck ....

Judy I'm really sorry you've had such a stressful time, and my condolences on the death of your Mother. These things certainly don't help when someone has menieres. But I don't think your attacks happened because of your stress, I think it's more a case of any underlying condition will be exacerbated by it....and not just menieres. So I feel it's important to minimise stress in our lives and that we try to keep well in a holistic way....I'm really trying, but it's not always easy.... I hope you get some relief soon.

Are the wrist bands retailed for travel sickness? (I'm not familiar with CVS as I live in Europe.)

Yes the wrist bands for travel sickness, pregnancy or balance issues. It might be in my head,but it does get rid of the floating feeling for me that I constantly experience. My kids think they r ugly but at this point anything that makes me feel normal I will try. 😀 

That's brilliant, I'm definitely going to try them. And you're right not to care about what they look like....if they help, that's all that matters 👍Take care and all the best.