BPPV and Vestibular Neuritis the same? GP wont send for testing!

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Went to the doctor today and asked if it was possible that I had vestibular neuritis instead of the BPPV that the ENT diagnosed me with, as my symptoms didnt match exactly. ( earlier post help nausea, dizziness for 3 months). My GP told me that Bppv, Vestibular Neuritis, and Lab are all the same thing and that they are all just names for a problem with the inner ear that they cant diagnose. I asked him about sending me for Calorics and he said that test is unreliable and a waste of time. he also said you can have BPPV and not respond the hal pike manouver and the emply manouver. Is this true is there no test that will truely work or should I find a new doctor. I left my last GP as he would not send me for any testing and just gave me a bottle of betahistine. Now this GP says because I had a clear MRI come back that there is nothing sinister and that I will just have to live with it. Refuses to send me to any other specialist or  testing.

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  • Posted

    From my understanding all three are different but labs and VN have similar symptoms except with LABS u have hearing loss/tinnitus and VN u don't. BPPV is loose crystals in the ear. My doctor has also fobbed me off so I went on YouTube and I do a home vestibular therapy video. It's helped me a lot and also going for walks.
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  • Posted

    No they are not the same. Get a new doctor. BPPV involves loose crystals, otoconia, in the inner ear canals and is treated with Epley. VNG is the gold standard for diagnosing a inner ear vestibular issue.
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  • Posted

    I would also recommend a new doctor, and hopefully this one will refer to you  a specialist for testing, and then to vestibular therapy.  You may have to live with it your dizziness, but therapy helps you retrain your brain so you won't feel as dizzy and wobbly.  It is a slow recovery, but it does help.
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  • Posted

    They're not the same.  Get a new doctor.  BPPV is when the crystals become dislodged and make their way into the semi circular tubes in your ears causing your brain to think you're moving when you're not.  There are maneuvers such as the Eply to get the crystals back where they belong.  Vestibular neuritis is more sinister and long lasting.  There is damage to the vestibular nerve in the ear.  No one knows how it happens.  It can't be corrected with the Eply.  A sufferer has to do hatibuation exercises -Vestibular Rehab Therapy and hope it works.  If he/she will not send you for caloric testing get a new doctor.  You need to see an Otologist.  
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  • Posted

    Hi Logannncc

    you absolutely MUST keep trying to get a proper diagnosis, and if you need to find a different GP, or pay to go privately, they you should do this.

    i had dizziness for SEVEN YEARS, and had every test, scan and meds you can think of. After the first three years I gave up as I was told they couldn't find the cause and it was "nothing sinister" and should just get on with life. It left me anxious and miserable for the following years. Then about 4 years on I was admitted to hospital for something else - and the Doctor (young chap) asked me a series of questions to see how I was doing (I had pains in my neck and down my left arm - so the fear was a heart attack - actually turned about to be a torn tendon) and when he asked me if I was dizzy and I responded "yes, but that's normal for me" he said "no it isn't, that's not 'normal' for anyone" and recommended a specialist in Leicester (UK). I paid to go and see the specialist privately - and long story short, he diagnosed me with BPPV in both ears, and fixed it with specific physio and an ongoing care programme. 

    Seven years of misery was fixed almost immediately. I still have reoccurring episodes, but have been taught how to manage it at home using the Epley Manouvre. I did have to go through vestibular rehab, because I had the condition so so long my brain had retrained itself to compensate for the 'error' it was experiencing. 

    Whether it is BPPV or Labs, or whatever it is - keep insisting you get proper attention until you have the answers. 

    Please don't give up - I wish I had been more insistent earlier on and maybe I could have saved myself years of upset and worry.

    now everything is back to normal and I the only thing that lingers is my anger at being fobbed off for so many years.

    Good luck.

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  • Posted

    Thanks for the replies. I definetly think i need to find a new doctor. My family is starting to think iam crazy now as they dont know why the doctors cant figure it out. They said i should just trust the doctor. However i know that the doctors for some reason seem to have no interest in figuring it out. It seems like your a burden upon them. I will try and see if i can get another opinion at a clinic. As for going private, there is no private health care in Canada. So that option is out unless i went to the states. The only way i can see a specialist is if iam recommend by a gp. If anyone has any other ideas please let me know. As for myself today has been my best day so far. And i started taking b12 supplements as i was told they might help.
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    • Posted

      I'm also in Canada and it seems we are struggling with the same thing.

      I read your recent post about feeling better. What do you think is causing you to feel better and be on the mend?

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