Brain fog and severe GI symptoms

I am so sorry to hear that someone else is experiencing the same horrible symptoms. I have had so many tests done and I am being referred to a specialist in a bigger city. What have they done for you? Do you have the brain fog as well? Do your symptoms worsen when you try to eat or drink liquids? I was also relatively thin before this and I have lost 30lbs. I am losing about 6-8lbd a week and I am down to 108lbs. I have a young son and it's getting very difficult to look after him, since there are days that I can barely get around. I pray that someone is able to help us and that we can soon start enjoying out lives again. This sympyoms can literally feel as though you're slowly dying. There has to be an answer to all of this. How can our sympyoms be so severe and yet, nothing shows up! I will be praying for you so that we can soon get an answer. I have been drinking pro-biotic (fermented) yogurt and coconut milk and have found it a little helpful. I also take a table spoon of organic vinegar( the one with the mother) in it, as soon as I wake up, after noon and before bed. Miso soup has also been a bit helpul. Hope you find a little relief if you try these.

Hello. I have had CR scans, MRI, Ultrasounds and nothing so far. I am also taking Omeprazole but it doesn't really help. I am being referred to a specialist in te big city. From what I hear, these Hospital has a reputation for being some of te best in the world when it comes to GI symptoms. It's so devastating to hear Doctors tell you that all the tests are normal when you feel as if though you are dying.

Hello Debbie, thank you so much for posting. I am so sad to hear you have some of the same symptoms as I do. I find it so unbelievable that as serious as our symptoms are, we are not getting any answers. I completely understand you when you say you feel like you are dying, I too, have thought the same. I have expressed the severity of my symptoms to every specialist I have seen, some are more understanding and willing to help, than others. No one will ever understand us, unless they feel what we feel. I have started to do some research and trying to come up with an answer as to why this is happening. This isn't normal. It is not normal to not be able to eat anything and to barely be able to drink enough to keep hydrated. I am currently 108lbs since my symptoms started in mid Decrmber and every week I lose 6-8 lbs. I truly hope that by dating our sympyoms and experiences that we can find support in one another, and hopefully soon find the answer to our sitauation.

l agree with you all, and although after months of severe debilitating nausea and loss of appetite and weight, the omprazole have helped me wit nausea 90pecent, but after a few month had to put dose up from one 20 a day to two, still a bit now and again, but big relief its not severe and daily, but still the other symptoms, mianly  fatigue have been slowly getting worse, l guess started over a year ago, but its not as noticeable at first as you can still function quite well, do jobs out and about, bit slower, but over last few month its go that much worse, ability to do things decreased a lot, now struggle slowly with minor acitivity.very low energy, weakness, poor sleep night times, but nap a lot day time, random aches and pain, also recently getting a bit of spontaneous tremors, spasm, cramps. sore eyes , thirst, temp all over the place, hot then chills. l started telling drs, and put in writing months back about dterorating, and l have, but water off a ducks back to them, they dont even examine me, they agree it could be fibromyalgia, cfs, but no real concern to even give official diagnoses.lve also times l feel like l,m dying, not in a dramatic way, and l,m not a dramatic person, just how l feel, when you know your getting tireder weaker and less able as felt weekly monthly your bound to wonder whats going on, l think when you feel youve not reached a bottom line makes it worse wondering how bad it can get. l do know some with me cfs fibro feel simular and some do become bedfast, for a period of time, with rest many do improve a bit, But the meds are so slow and casual diagnoseing cfs and simular immune conditions, but not coming up with other reasons, cant they see the affect of that on people, their mental state as well as physical, l also wonder at times if some of us are more vunerable to envoiramental pollution, those with poorer immune systems, lve always been an allergic person.  But so many on mbs with simular problems, many with no diagnoses, At present l,m just reading others info advice, just ordered supplaments to try help, already tried some, now new type. herbs vit mins. Keep looking on mbs for advice, try various supplaments, know your not alone, keep battling with symptoms, and docs if poss, After all that ramble ready for drink and try to not drop off to sleep,  Best wishes to all, more so if younger, l,m not, and still hard to deal with. 

Thank you for replying. I may have gotten some sort of an answer today....came home from urologist appointment and there was lab paperwork waiting for me. It states that my ANA bloods are positive and are homogeneous. Looking this up, it looks like Lupus. I have a GP appointment next week, so will be taking it with me to show her. Also, I will be having a ct scan of abdomen next week,as I have a recurrent UTI. Will keep you informed. 

I wish you the best of luck.

Today was a bad day for me. My sympyoms were so debilitating. I hope you get some answers and please do keep me informed.

hi, not sure what the ana blood being posative and homogeneous mean, will look it up. l think for many with widespread chronic symptoms that make them feel very ill physically and mentally, with no cause showing on standard tests, it often does come down to immune conditions, me cfs fibromyalgia intersticial cystitus, and lupus seems to  be also increasing, l have started to get spontaneous tremouring, not severe or long lasting, but just comes an goes, new symptom, but have you got skin problem like rash,s, more so on face, though dont think its always goes with lupus, but often does. Surely you will get answers next week, be interesting to see what they are.

I'm so sorry you are feeling so poorly. You need to have tha blood test done....ANA, creatine kinase, b12, and folate. You sound like me, and could be your answer. I so hope you start feeling better, I know how debilitating this is. Keep us informed. 

That test is for autoimmune disease, as well as other diseases. No rash that I am aware of, but I fit several of the other criteria. Could also be one of the other autoimmune disorders, but at least I have a start. Don't know if answers will be forthcoming next week, but I am going to press for more extensive testing, either by GP or her sending me to a rheumatologist ASAP 

l dont think all do get the butterfly rash with lupus, and there is quite a few auto immune diseases, all simular because they affect whole systmem. l,m on \ a wiating list for rheumy, always waitng, thinking its fibro, Keep at them and good luck.  

Thank you and good luck to you too. Keep in touch