Brain fog and severe GI symptoms

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I have been struggling with the following symptoms for almost 4 months now and no Doctor has been able to diagnose me. I am now desperate and have lost 30lbs. Severe brain fog, lacking mental clarity, confusion, head fussiness, upper and lower abdominal pain that radiates to upper left. This is so debilitating that I've had to take time off work, since I am constantly in a brain fog and that makes it difficult to drive. I would really like to find out if anyone has any suggestions for me. I have a 5 year old son and I need to get better so that I am able to provide and care for him. I haven't had a meal for almost two months and can barely take in a little bit of liquids. I have had so many tests done and they all show notmal, yet, I feel like I'm slowly dying. Thank you so very much!

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13 Replies

  • Posted

    I'm sorry you're going through this. My symptoms are like yours too, word by word and then some, and my tests also show normal. So far I've lost 20 pounds, and I was already underweight to start with, so I'm heading into a dangerous area of low bodyweight for my age. I'm looking for answers too, but can't seem to find them.
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    • Posted

      I am so sorry to hear that someone else is experiencing the same horrible symptoms. I have had so many tests done and I am being referred to a specialist in a bigger city. What have they done for you? Do you have the brain fog as well? Do your symptoms worsen when you try to eat or drink liquids? I was also relatively thin before this and I have lost 30lbs. I am losing about 6-8lbd a week and I am down to 108lbs. I have a young son and it's getting very difficult to look after him, since there are days that I can barely get around. I pray that someone is able to help us and that we can soon start enjoying out lives again. This sympyoms can literally feel as though you're slowly dying. There has to be an answer to all of this. How can our sympyoms be so severe and yet, nothing shows up! I will be praying for you so that we can soon get an answer. I have been drinking pro-biotic (fermented) yogurt and coconut milk and have found it a little helpful. I also take a table spoon of organic vinegar( the one with the mother) in it, as soon as I wake up, after noon and before bed. Miso soup has also been a bit helpul. Hope you find a little relief if you try these.
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  • Posted

    l guess youve had xray scan for gall bladder problems, being in pain constantly can affect mental state, how can anyone concentrate if in pain and unable to eat.  l lost 2 stone in a fw months, mine due to severe nausea, a gastrologist did a scope which showed gastritus, put on omprazole which helped a lot and got my appetite back, but yours more pain so probably different reason, but seeing a gastrologist might bring an answer,  Have you checked out symptoms for me cfs fibromyalgia, see if they sound like you, and they do can cause gastric disturbance along with other systems in the body, along with mental fog confusion, l barely eat for 9month due to nausea, lived off tea and oat biscuit every hour or so, on a good eve a plain small meal, but not enough for protein vits mins and calcium needed, and my nails hair and skin got worse, although aware of importance of them l didnt really think about it, wrapped in the misery of it, My drs knew, and did in time refer me to gastrologist but months had gone by before scan and treatment which did help,l wonder why they dont prescribe or suggest the importance of vit min protein supplaments, just to prod remind patient importance of it. Go into health shop and get a good supplament, theyll advice, if not see ask gp to see gastrologist, and check out cfs fibro, Oh one telling sentence of yours, sounds dramatic, but many with worsening cfs fibro do more so before diagnoses feel as if theyre slowly dying, my own gp said because they dont have a magic pill how important is a confirmed diagnoses, well very important, so good luck, 
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    • Posted

      Hello. I have had CR scans, MRI, Ultrasounds and nothing so far. I am also taking Omeprazole but it doesn't really help. I am being referred to a specialist in te big city. From what I hear, these Hospital has a reputation for being some of te best in the world when it comes to GI symptoms. It's so devastating to hear Doctors tell you that all the tests are normal when you feel as if though you are dying.
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  • Posted

    Oh my gosh, you all sound like me! I have had all this since January, lost 30 pounds also, nausea, weakness, dizziness, lightheadedness, Gerd, had my gallbladder removed after finding gallstones, tremors, mainly left hand and leg, and now muscle atrophy in arms and legs. Don't know if this is from disease or just from not doing anything since January. Cannot get a diagnosis and feel like I'm dying daily. Even told my husband that I feel like I've been poisoned. What do we do?
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    • Posted

      Hello Debbie, thank you so much for posting. I am so sad to hear you have some of the same symptoms as I do. I find it so unbelievable that as serious as our symptoms are, we are not getting any answers. I completely understand you when you say you feel like you are dying, I too, have thought the same. I have expressed the severity of my symptoms to every specialist I have seen, some are more understanding and willing to help, than others. No one will ever understand us, unless they feel what we feel. I have started to do some research and trying to come up with an answer as to why this is happening. This isn't normal. It is not normal to not be able to eat anything and to barely be able to drink enough to keep hydrated. I am currently 108lbs since my symptoms started in mid Decrmber and every week I lose 6-8 lbs. I truly hope that by dating our sympyoms and experiences that we can find support in one another, and hopefully soon find the answer to our sitauation.
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    • Posted

      l agree with you all, and although after months of severe debilitating nausea and loss of appetite and weight, the omprazole have helped me wit nausea 90pecent, but after a few month had to put dose up from one 20 a day to two, still a bit now and again, but big relief its not severe and daily, but still the other symptoms, mianly  fatigue have been slowly getting worse, l guess started over a year ago, but its not as noticeable at first as you can still function quite well, do jobs out and about, bit slower, but over last few month its go that much worse, ability to do things decreased a lot, now struggle slowly with minor acitivity.very low energy, weakness, poor sleep night times, but nap a lot day time, random aches and pain, also recently getting a bit of spontaneous tremors, spasm, cramps. sore eyes , thirst, temp all over the place, hot then chills. l started telling drs, and put in writing months back about dterorating, and l have, but water off a ducks back to them, they dont even examine me, they agree it could be fibromyalgia, cfs, but no real concern to even give official diagnoses.lve also times l feel like l,m dying, not in a dramatic way, and l,m not a dramatic person, just how l feel, when you know your getting tireder weaker and less able as felt weekly monthly your bound to wonder whats going on, l think when you feel youve not reached a bottom line makes it worse wondering how bad it can get. l do know some with me cfs fibro feel simular and some do become bedfast, for a period of time, with rest many do improve a bit, But the meds are so slow and casual diagnoseing cfs and simular immune conditions, but not coming up with other reasons, cant they see the affect of that on people, their mental state as well as physical, l also wonder at times if some of us are more vunerable to envoiramental pollution, those with poorer immune systems, lve always been an allergic person.  But so many on mbs with simular problems, many with no diagnoses, At present l,m just reading others info advice, just ordered supplaments to try help, already tried some, now new type. herbs vit mins. Keep looking on mbs for advice, try various supplaments, know your not alone, keep battling with symptoms, and docs if poss, After all that ramble ready for drink and try to not drop off to sleep,  Best wishes to all, more so if younger, l,m not, and still hard to deal with. 
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    • Posted

      Thank you for replying. I may have gotten some sort of an answer today....came home from urologist appointment and there was lab paperwork waiting for me. It states that my ANA bloods are positive and are homogeneous. Looking this up, it looks like Lupus. I have a GP appointment next week, so will be taking it with me to show her. Also, I will be having a ct scan of abdomen next week,as I have a recurrent UTI. Will keep you informed. 
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    • Posted

      I wish you the best of luck.

      Today was a bad day for me. My sympyoms were so debilitating. I hope you get some answers and please do keep me informed.

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    • Posted

      hi, not sure what the ana blood being posative and homogeneous mean, will look it up. l think for many with widespread chronic symptoms that make them feel very ill physically and mentally, with no cause showing on standard tests, it often does come down to immune conditions, me cfs fibromyalgia intersticial cystitus, and lupus seems to  be also increasing, l have started to get spontaneous tremouring, not severe or long lasting, but just comes an goes, new symptom, but have you got skin problem like rash,s, more so on face, though dont think its always goes with lupus, but often does. Surely you will get answers next week, be interesting to see what they are.
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    • Posted

      I'm so sorry you are feeling so poorly. You need to have tha blood test done....ANA, creatine kinase, b12, and folate. You sound like me, and could be your answer. I so hope you start feeling better, I know how debilitating this is. Keep us informed. 
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    • Posted

      That test is for autoimmune disease, as well as other diseases. No rash that I am aware of, but I fit several of the other criteria. Could also be one of the other autoimmune disorders, but at least I have a start. Don't know if answers will be forthcoming next week, but I am going to press for more extensive testing, either by GP or her sending me to a rheumatologist ASAP 
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    • Posted

      l dont think all do get the butterfly rash with lupus, and there is quite a few auto immune diseases, all simular because they affect whole systmem. l,m on \ a wiating list for rheumy, always waitng, thinking its fibro, Keep at them and good luck.  
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