Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP
Posted , 353 users are following.
Hi everyone!
I don't know where else to go, and was hoping someone could please help me. I'll start off by saying I'm a 23 year old Caucasian female. Going on 5 months now, I have had absolutely debilitating symptoms which have hindered my daily life. I feel these symptoms every moment of every day.
It started with dizziness and a persistent brain fog. I just thought I had a bug, and tried to go on about my life. However, my symptoms have never gone away. This "brain fog" I am talking about is a feeling of complete mental confusion, I have no memory, I cannot concentrate on anything, it feels like there's a dark blanket on my brain clouding all my thoughts. I have extreme disorientation and haziness. I feel like I'm always in a dream like state.
I am constantly dizzy and feel a pulling sensation, as if I'm ready to fall over at any moment. It feels like there's air inside my head, and I'm always very lightheaded. Whenever I try to drive I feel this pulling sensation pulling me down.
Another problem I have is with my vision. I am having very blurred vision and have double vision. Everytime I look at something up close it is extremely blurry and I cannot see at all. My perception on things has completely changed. I feel like everything looks very odd and strange and I don't have the right depth perception. It's like I'm in a horrible dream like state all the time.
I have been having headaches and head pressure as well, and having horrible pains behind my eyes. The pin starts from the back of my head close to my neck and continues up my head and the sides of my temples. My eyes hurt so bad, and it feels like knives are jabbing my eyes. My head also feels extremely heavy all the time.
All these symptoms have been causing me severe anxiety, and I have been having panic attacks from them and feel like I'm dying. It is causing a strange disrespity sensation, where I feel like I'm not even here anymore and there's a detachment from myself and my body. I have had to drop all my classes at college and quit my job because these symptoms make me lay in bed all day long. I have been unable to drive for months and can barely get up to walk around. If anyone could please help me or know anything as a suggestion to try.
I have been to my general doctor, 2 ENTs, 1 neurologist, have had 2 MRIs, a hearing test, VNG, multiple blood tests, and no one knows what is wrong. I can't live like this anymore. Any help is greatly appreciated.
-Elise
14 likes, 1771 replies
sadmichaela Elise93
Posted
Hi Elise,
I commented four long months ago and I finally can bear some good news! I started going to vestibular therapy which helped a lot but I realized just exercising and experiencing things on my own help much more. My dizziness has pretty much gone completely away and only pops up when I don't drink or sleep enough or I am worrying about getting dizzy. I found a great doctor that has gone through the same thing and explained that dizziness and anxiety is a wheel that goes round and round. I did not used to have anxiety but I now have low level just worrying about my dizziness. I really first started feeling better when I went on Sertaline which is depression medication but I can now happily say I am off and doing great! A few other things I found that helped are taking B 12 vitamins which if you are deficient can cause dizziness. I will start my sophomore year of high school next year and I know that if I just take it a day at a time I'll get through it. I have one last neuro appointment next Friday so I will let you know how that goes. Best wishes to you and your crummy vertigo!
-a happy michaela
sab65033 sadmichaela
Posted
Yes I agree with you, vestibular therapy helps a lot.
My story is long one but I suffered since June 2017 with the dizziness too and all above symptoms people talk about.
I have a seen million of specialist doctors all test MRI all normal.
I just done balance test and the Audiologist found that my left ear balance is low and that is what causing my dizziness.
I am going to see my ENT consultant in September so what treatment I will start but diffinetly vestibular therapy as Audiologist advised me.
Please Let me know, how they dignose you and what os your symptoms.
I wish you quick recovery,
Sab
Elise93 sadmichaela
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Elise93 sab65033
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debbie82116 sab65033
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Excellent! Vestibular therapy over a 4 month period healed me! Don't give up! Good luck!
Debbie
debbie82116 sadmichaela
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melissa06538 Elise93
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Hi Elise,
I'm reading all these posts because I'm suffering from dizziness when I let down or tilt my head way back. It's been almost 1 month now. I told my mother about it and she said she had it and they did tests in her. She had hypoglaucemia and Candida. If your toungue is white, that's a symptom. Too much yeast in your body can cause systemic Candida. Just Google "hypoglaucemia with candida". I'm trying the Candida diet put to starve it out of my body and hopefully recover my endocrine system. Candida can effect your organs (eyes, brai , heart) it's very scary and doctors usually don't pick up on it. It might or might not be. If your feeling aweful and need answers, it doesn't hurt to research it. Go to a naturopath if you have symptoms. That's how my mom healed hers. She was so dizzy, double vision, nauseaus. She says that's what I have. The diet is really strict. I have been doing the diet for 2 weeks, heaviness in my head lifted. One day I cheated and I felt like I had the worst hangover ever without drinking alcohol. I'm starting to believe that's what I have. The ringing in my ears is going away too. Hope you feel better and I hope my dizziness goes away as I'm scared to go to the dr. If this diet doesn't cure it in 2 more weeks, I'm going to get checked....prayers sent🙏
Elise93 melissa06538
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Hannahirene28 Elise93
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Update: I'm now almost 32 weeks pregnant. Due to my pregnancy it was picked up on that my blood sugar is low. I have yet to find out if it was related or not. I went out and bought a blood sugar meter (fairly cheap,) and some test strips. The one I bought was Relion BLU. I tested at night and every morning it was saying "hypo" I did some online research and found out that the symptoms of hypoglycemia are very similar to what we are all experiencing. The treatment is having sugar on hand and keeping watching of sugar levels. Many docs won't acknowledge the illness because they can't throw meds at it. It is very dangerous long term if left untreated. The symptoms are anxiety, dizziness, central nervous system issues, confusion..etc. can lead to seizures and coma. I still don't know if this is the answer but it has certainly been helping my symptoms so I felt I should throw it out there as food for thought for my fellow sufferers.
Elise93 Hannahirene28
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yolanda0423 Elise93
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Have tried to stay away from caffeine I know with having depersonalization / Derealization they say stay away from it and also try and change your diet if possible it’s worth a try but no results over night. Do you take any multivitamin? I been taking these one pills called “Me Vale Madre” on Amazon they help with anxiety and depression , irritability. Migraines , bad memory, trouble sleeping . I take two before bed and a multivitamin I’m staying away from caffeine and trying to put some healthy stuff in my gut which I hear that’s like our second brain . Worth a try I’m willing to try anything I tried working out but it made my derealization come back hard and I was real shaky so I don’t think I wanna try that yet.
Hannahirene28 Elise93
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I've had it about the same length of time as you. My neurologist that I saw earlier this pregnancy suggested it could be some sort of aura migraine. He said he would not be able to try migraine med while I am preg, but did recommend 400 mg of magnesium daily, he also tested my b12 levels. I have been taking the magnesium and sublingual b12 that starts with an "m" daily. My b12 was not technically low by U.S. standards but was considered low by other countrie's standards so I'm taking it, it can't hurt in the event I have an absorption issue. A b12 deficiency causes many neurological issues as well. As far as the blood sugar, my glucose screening was high so they sent me for a 3 hr test. It was completely normal except for my reading at 3 hrs my sugar was 61. I tried to drive myself home that day and almost collapsed. My obgyn said it was all fine but I felt something was seriously wrong so I went and bought my own meter. They cost under $30 after buying strips. You can always try to talk to your doc about testing you but they won't do anything if your levels are in the "normal" range..even if you're symptomatic like I get. I actually had an episode this morning where I got very disoriented and couldn't function right..tested my sugar and it was 63, saying I was "hypoglycemic." I drank some juice and finally felt better about an hour later. Idk if it is related to my pregnancy but I think it may have been my problem all along or at least part of it.
Elise93 Hannahirene28
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Hannahirene28 Elise93
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It is very frustrating and hard not to be anxious and isolate yourself when you feel so out of it. The hardest part for me is feeling like those around me think I'm just making it up or using it as an excuse to not work or to be lazy. I'm 28 and I've always held down a job, I was a specialist in the military. Everyone thinks I've just gone off the deep end and become a hypochondriac, like I f*****g enjoy being disabled with no answers. I am scared to have a baby again too, I have an 8 and 4 yr old as well. I am scared I will drop him or not be able to care for him properly. This is very sad for us at a time when we should be celebrating the life inside us. I am so sorry you're going through this, just to let you know this forum you created has gotten me through a lot of days when I felt so alone I wanted to die. I am here for you and I hope we all find answers some day soon!
Elise93 yolanda0423
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Elise93 Hannahirene28
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Yes exactly! Social environments are soo hard for me now, I just like to stay by myself. YES!i feel like so many people don’t understand. They think it’s not as bad as it really is. Just because they can’t see on the outside how bad we are, it’s an invisible illness. It’s not like we have a known condition like cancer that someone understands, or a broken back people can see. And that makes me feel even more alone and anxious that so many people don’t get how bad it is, or they just say “how are you still sick” or “why aren’t you better yet”
Thank you for your service! That’s great. I’m so sorrry to heat that though
that’s how it is for me. Everyone’s like just go home and relax you’ll be fine, as if I’m making all this crap up. I’m not a hypochondriac, neither are you, we KNOW something is not right. Why the hell would anyone CHOOSE this? Why would anyone fake this? No one would ever choose to be so isolated and sick 24/7. It makes me so upset, exactly what you said, we all just enjoy being disabled and sick with no diagnosis 🙄🙄🙄 no one would ever want this or choose this if they knew the hell we go through everyday inside our heads.
That’s what I’m so so worried about! Like what if I did drop him? Or when I’m severely out of it how can I properly nurture him? It’s so scary. I cannot believe you have 2 other children, I have so much respect for you as a person and mother. It’s so sad because this should be such a happy time for us and it’s been so stressful. I have my baby shower tomorrow and Im going have to keep laying down so much and take breaks from people. Im really embarrassed
I feel like a failure I can’t even have a shower and talk to friends and family. Some of the responses from people and talking to people like you are honestly the ONLY thing that has kept me going. It sounds dramatic to people but I’m being 100% honest. There are days I truly truly don’t want to go on and don’t want to live anymore. The only thing that’s helped is knowing I’m not completely alone. You’re in my prayers and I truly hope you find relief!!
Hannahirene28 Elise93
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Thank you for the kind words, I can't take credit for motherly instincts. You will see soon, I really hope you are able to enjoy your shower I've only had one with my first child and it was nice to feel others are excited about the baby too. We both have alot of trying days ahead of us...love for my children is the only thing that keeps me going (besides this post.) My whole family also has bronchitis right now ugh...life loves to s**t on the same people over and over it seems lol. Just try to relax and get through today.
Elise93 Hannahirene28
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