Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP
Posted , 353 users are following.
Hi everyone!
I don't know where else to go, and was hoping someone could please help me. I'll start off by saying I'm a 23 year old Caucasian female. Going on 5 months now, I have had absolutely debilitating symptoms which have hindered my daily life. I feel these symptoms every moment of every day.
It started with dizziness and a persistent brain fog. I just thought I had a bug, and tried to go on about my life. However, my symptoms have never gone away. This "brain fog" I am talking about is a feeling of complete mental confusion, I have no memory, I cannot concentrate on anything, it feels like there's a dark blanket on my brain clouding all my thoughts. I have extreme disorientation and haziness. I feel like I'm always in a dream like state.
I am constantly dizzy and feel a pulling sensation, as if I'm ready to fall over at any moment. It feels like there's air inside my head, and I'm always very lightheaded. Whenever I try to drive I feel this pulling sensation pulling me down.
Another problem I have is with my vision. I am having very blurred vision and have double vision. Everytime I look at something up close it is extremely blurry and I cannot see at all. My perception on things has completely changed. I feel like everything looks very odd and strange and I don't have the right depth perception. It's like I'm in a horrible dream like state all the time.
I have been having headaches and head pressure as well, and having horrible pains behind my eyes. The pin starts from the back of my head close to my neck and continues up my head and the sides of my temples. My eyes hurt so bad, and it feels like knives are jabbing my eyes. My head also feels extremely heavy all the time.
All these symptoms have been causing me severe anxiety, and I have been having panic attacks from them and feel like I'm dying. It is causing a strange disrespity sensation, where I feel like I'm not even here anymore and there's a detachment from myself and my body. I have had to drop all my classes at college and quit my job because these symptoms make me lay in bed all day long. I have been unable to drive for months and can barely get up to walk around. If anyone could please help me or know anything as a suggestion to try.
I have been to my general doctor, 2 ENTs, 1 neurologist, have had 2 MRIs, a hearing test, VNG, multiple blood tests, and no one knows what is wrong. I can't live like this anymore. Any help is greatly appreciated.
-Elise
14 likes, 1771 replies
camille18217 Elise93
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Wanted to share these little videos I found on you tube Let me know what you think.
Camille
Moderator comment: I have removed the link(s) directing to site(s) as it was broken. If users want this information please use the Private Message service to request the details.
CTh camille18217
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camille18217 CTh
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Camille
CTh camille18217
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Would you mind sending me the links via message? I would be very interested in working on my neck as well.
jerry15331 Elise93
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Elise! I had same problem as you, to a Tee. Went to chiropractors, doctors, ER visits etc. I finally found someone on the internet with the exact same problem, and was cured within days. It turned out to be an upper nasal problem. After spending thousands of dollars on advice and treatment i was cured simply by using Saline Nasal Spray. The brand I use is called "Ocean". No steroids or medicine is in it. It brought me from suicidal thoughts to feeling like myself in 24-48 hours. Please give it a try. I couldn't have gone on much longer. I pray that it does the trick for you too. It can be bought at any drug store over the counter. No prescription needed. I went pretty heavy on it to start....started one morning, and by afternoon I could feel a little relief. It if takes a little longer don't be discouraged, just keep using it. I truly hope and pray that this message finds you and gives you the relief you're looking for.
yolanda0423 jerry15331
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I was reading your comment to Elise sorry but I find it interesting and some relieve my doctor told me last time I had some blockage in my nose and prescribed me allergy medicine but also told me it probably won’t help with my symptoms I also has same symptoms as Elise but mostly all my symptoms are gone I got every symptom bad thoughts also for 3 months now all I have is this drunkness feeling .
How long were you feeling all the symptoms?
Yolanda
yolanda0423 jerry15331
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I’ve also had multiple blood test done MRI’s Ct scan EEg , EKG all they said was I had Mano once ago but didn’t have it anymore . Who knows but it’s good to hear someone found relieve or the problem it keeps hopes for us who are still searching !
Yolanda
debbie82116 yolanda0423
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yolanda0423 debbie82116
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See I also heard of EBV my doctor says that’s Mano but she has never heard of anyone having it this long it’s been 3 months since I’ve been this way so she don’t think it’s the Mano anymore because she said I once had it don’t anymore she checked my blood ten days prior and it shows I don’t have it anymore . So maybe that was a coincidence or it’s what started this who knows . I’ve notice many people have had it also.
Elise93 jerry15331
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How long did you have symptoms for? I have terrible sinuses and nasal problems and swollen adenoids anyway, I used to get sinus infections once a month when I was younger.
I used a ton of saline sprays and prescribed Flonase, is it the specific brand “ocean” that did it for you??? And did you also have derealization and messed up vision where you can’t focus and everything looks sickening fake and weird and you don’t feel right ever?
I will try absolutely ANYTHING at this point, I’m so desperate to feel even just 50% back to myself, I would do anything
yolanda0423 Elise93
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I wanted to ask you have you tried changing your diet when I had really bad derealization I was drinking so much water that’s all I would drink and started eating better I must say it helped me a lot it didn’t happen overnight but I feel 75% better but I’m stuck on that my vision still is weird on and off I use to feel like I was always in a dream state of mind everything didn’t feel real ugh I hated that so much I know what your going through on that it sucked !! It’s been 3 long months of hell! Now I feel more like I’m drunk like if I’m really tipsy I still have brain fog , lethargic brain also .
Elise93 yolanda0423
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It’s just so frustrating. Yea I have been in a few different diets such as the migraine diet and Mediterranean diet but neither helped
it’s so frustrating
yolanda0423 Elise93
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Elise
I know how you feel I remember feeling so out of it like I’m in a dream I literally wouldn’t even know what I would do all day and I even would forget the days it was so hard and very scary just waking up one day like this I felt completely not my self I felt I wasn’t even alive or there anymore I even went to the ER first just freaked out and scared ... so you ever have a good day at all?
I remember also I was so numb like I had no taste buds and completely brain fogged .
I know your pregnant and I pray that you feel some what better after birth there has to be a reason for why we feel this way I believe whatever is going on is what is causing us derealization I can function sometimes I can walk around I have to I have two small children but I always feel weird like I guess a drunkness now and my vision is always so off like I’m wearing the wrong prescription but I remover when I found your post is when I had every symptom as you and that was 3 months ago .. it sucks so much I really hope you find relieve soon thanks for responding !! Also try and drink lots and lots of water .🙂 I’m sure you know that by now stay away from caffeine .
Yolanda
matt85331 Elise93
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jerry15331 Elise93
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Elise,
Mine lasted about 3-4 months before I found relief (ocean brand saline). I used it very liberal. Two good pumps in each nostril every couple hours (pumps, not just sprays). Did this for a couple days and found a massive improvement. I felt like even after one day I could tell it was subsiding. I also was very prone to sinus infections as a child. All colds basically turned into sinus infection. And yes, I know what you mean about the vision. I can see, but I can't. I had trouble actually focusing on things. I also felt like when I would look around it took a second for my brain to catch up and process the movements. I found that when I would stress or have anxiety over it that it would get worse. The doctors put me on prozac and ativan, which made things much worse. I threw those out after several months. There are many people online that describe the exact same problem that we are having / have had. Almost all of them come down to a sinus issue, wether or not you feel plugged up. My opinion given my experience is that its some kind of dust / fungi / or bacteria causing the issue. I would often have dreams that my nose was plugged, or that something was in it, but would wake up and have no problem breathing through my nose. Early on in the problem, i did find that excersise, sleep and eating better helped the problem a bit, but didn't ever clear it up entirely. Try the ocean saline solution, use very liberally for a couple days (you will need a couple bottles) and see if it helps. I pray that it does. Best wishes my friend <3
jerry15331 Elise93
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Just re-read your original post. I too had major anxiety during this issue, where I wound up in the ER barely able to stand or breathe normally, heart beating out of my chest. Just thought you'd like to know that other people have had the exact same problems. It seems to be "normal" while this weird head thing is going on. It will pass. I promise. Mine actually got about 50-75 percent better over time all on its own, even before I found "ocean saline spray". But it would still come and go, i'd have decent days and bad days. But it was the spray that got me to a consistant 95% feeling better. Praying for you Elise <3
Jerry the "ocean saline guy"
jerry15331 yolanda0423
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Hi Yolanda,
I'm really trying to do the math here on how long it lasted. I think it was about 3-5 months or so before I got any random relief. I do think that the prozac they tried me on was quite counter productive and may have prolonged it. Getting adequate sleep seemed to help a bit. The symptoms at there worst would keep me in bed for days at a time. It wasn't until I "over-used" the Ocean Saline Spray that I found substantial relief. I would only recommend using it heavily for about 3 days or so. That's enough time to decide wether its working for you or not. I'll also add that on lots of these forums people have confessed to some cocaine usage in the past. Just throwing that out there, but I think that's even more evidence that it is primarily a nasal infection of some kind wether or not you've ever used it. I read countless posts for months trying to find a cure\remedy. That seemed to be a common reoccurence, even people that had forgotten they ever tried it before. The good news for those users\experimenters is that it seems totally treatable and goes away. There is a bright future, it will pass. Hang in there
jaycee60137 jerry15331
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CTh jaycee60137
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Elise93 yolanda0423
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No unfortunately I don’t have good days :c there was a period where I wold have really bad days and then days that weren’t as severe, but now it’s just gotten so bad. I think a lot of the pregnancy hormones and stuff have made it a lot worse too though! I’ve never had a day where I feel completltr normal like my old self though
I don’t even remember what that feels like anymore!
That’s exactky what my vision feels like all the time!!! I feel like I’m wearing the wrong prescription and everything is visually out of whack and I can’t focus or see anything properly!!
Thank you so much Yolanda ❤️ I’m praying so much that I can be s good mom and everything will be okay with my little boy! I have so much respect for you for having little children with this going on, you are so strong!
Elise93 jerry15331
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My mom is going to pick up some of the ocean saline for me today! Thank you SO much for all your help, I hope so so much it can help me too. I’m so happy for you that it helped you.
Literally so many doctors I’ve seen have told me it’s just anxiety and give me medication for it. None of them listen when I explain that I’ve only had anxiety after I was sick with this for a while.
I’m very excited to try the spray!
Elise93 jerry15331
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Thank you so much for your kind words jerry! ?? It’s posts like this that really help me to keep going and pushing forward. It’s so reassuring to know I’m not alone with this because I feel so alone all the time (even though I feel horrible other people are going through this horrible stuff too 😢
I will update about the ocean saline! ??
Elise93 jaycee60137
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jaycee60137 jerry15331
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Elise93 jaycee60137
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Are you using the ocean spray vertically or horizontally? On the bottle I got it says vertical makes a “spray” and horizontal makes a “stream” but I’m having trouble using it horizontally