Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP

What Beta Blocker do you take, Propranolol?

I think it's called monopropol - maybe misspelled.  I pos this last night and it's not here now.  So I'm taking norotriptiline and this beta blocker.  I am myself now for a solid 2 weeks.  Starting the day after I started the meds. 

Could it be Manoprolol?  What milligram?

I am also on a beta blocker. Mine is called metoprolol it might be the same one. 

Yes that's it metoprolol- 50 mg. 1x a day. 

Hi moose! I’m so happy to hear you’ve found help! Vestibular migraines was one of the suggestions for me for a diagnosis (I’ve had sooooo many different diagnoses). I did try amitriptyline although it didn’t help at all for me. I have heard though with vestibular migraines they’re very complicated to diagnose and treat, and even if one medication doesn’t work for you for it, you have to trial multiple medications to find one that suits you! 

Are you on propanolol? Or which beta blocker? I’ve also heard good results with verapamil, a calcium channel blocker! 

Hi elise

i am on norotriptiline and metoprolol 50mg.  I have another appointment soon.  This stuff is scary and debilitating.  And I have found most doctors don't know much. I kind of felt they were just throwing diagnosis at me.  Saying you will get better soon.

That’s exactly how it’s been for me, it’s been very stressful and frustrating just trying to find out what’s wrong. I’ve had soooo many diagnoses thrown at me. I’m so happy you found something that worked for you!! What mg of notriptyline are you on? 

Hi elise 

this is is terrifying to be bounced from doctor to doctor and told you will get better with time.  The ENT started me on a low dosage of norotriptiline 10 mg for 2 weeks then increased it to 20mg.  With the beta blocker 50mg. She was going to prescribe amatriptoline.  But my insurance didn't cover it apparently.  I just pray that it stays and I don't go backwards.  It's weird to feel normal again after so many months.  It's really unbelievable how much is not known about this.  It's also unbelievable how many people are suffering from this.  I thought I was alone.  But I'm not-all of you are suffering too. I pray you all find some relief and a doctor takes the time to do the research.  I have never had anxiety in my life- until I had to go out in the community or store.  People just coming near me made me turn the other direction. It scared me. I'm still scared to go grocery shopping even though I feel normal. 

I think notriptyline and a beta blocker are medicines I will try next! I know, it’s soooo frustrating just bring bounced around and having doctors just look at you like they have no idea what’s wrong. I never realized how many people suffered with this until I made the thread and joined a Facebook group! It’s so sad to see honestly that do many people are just dismissed by doctors for having “anxiety” when a lot of people never had it until they were sick. 

Since being ill for so long I have a lot of anxiety now, like going to stores makes me anxious because I have such weird visual symptoms and over stimulation and I always want to pass out in busy environments. I’ll try anything at this point as I’m so desperate to feel like my old self again! 

HI Sarah 

look up vestibular migraines and See if the symptoms match you.  I was misdiagnosed 2x before finally being diagnosed properly with vestibular migraines.  Dizzy, vertigo, brain fog, ect same symptoms as BPPV and vestibular neuritis.  However the difference I had was headaches not always but when I had them painful under one eye.  My right hand went numb on Father's Day and has been numb on and off mostly on.  No doctor could explain.  I asked to be treated for vestibular migraines- just in case- was prescribed norotriptiline.  Had immediate relief.  Within a few days my hand went back to normal.  The information I found is that migraines with aura can have a numb hand.  Try to find an ENT and Nuero who specializes in vestibular issues. Ask to be treated for this to see if it help with the dizzy off balance.  The vestibular migraines sometimes have no headache with it- instead have the dizzy vertigo off balance.  And sometimes does have the headache. My hand is normal now- but was numb for pretty much a couple months.  I also was put on a blood pressure beta blocker too.  All my symptoms have gone and I have my life back.  Never knew migraines could do this - didn't even know I suffered from them. 

Hi hmoosey

You're giving me some sort of relief by telling me theres a solution to all of this

Hopefully Monday i will try to see a nuero

Yes exactly right i never knew migraines could cause so much stress and i also suffer from anxiety so it makes everything much worse thinking i have the worst or that im going to die lol

About two weeks ago i had constant ringing in my ear and was getting all depressed over it

Stopped eating stopped the gym lost weight and practicality became depressed

Once it was gone i ended up with these symptoms which really scare me

Sorry about the typos and wrong spelling mistakes auto correct does it all

Okay so i just did some research to see if i have similar symptoms of vestibular migraines

And sounds like most of them are what i feel tingling at times head pain that comes and goes and changes spots and dizziness

Never knew this sort of thing even existed

Honestly the Internet just tells u the worst when searching up your symptoms and i think thats whats making me stress even more

Hi Sarah! Yes I’m actually in multiple vestibular groups on Facebook and there’s a vestibular migraine one and it’s very hard to diagnose! Many doctors don’t have knowledge to truly manage it properly. There are people in the groups who have had these migraines for years before getting a proper diagnosis. You don’t have to have “conventional” “normal” migraine symptoms in order to have vestibular migraines. 

A lot of them have had success with ssris Like Zoloft or celexa, and snri like Effexor. Amitriptyline and notriptyline are also used as trycyclic antidepressants. 

I would highly suggest seeing a neuro-ent! 

Hi sarah 

i didnt know about this either.  I was getting bounced from doctor to doctor.  I did some research and asked the doctor to try to treat the headaches to see if it was migraines.  I have my life back.  I've worked 2 weeks straight.  No fogginess.  No dizziness.  And the numbness in my hand is gone too.  My PCP has never heard of this.  Ask them- say what could it hurt to try? I have no quality of life, I'm willing to try anything.  That's what. I said.  And it worked,  I went out with my family last weekend for the first time in 3 months and I'm going away this weekend! These doctors don't know.  They all say BPPV, then Vestibular nueritis.  Ect.  Vestibular migraines- I am on nortyiptyline - almost immediate reaction to it.  I thought I was going to have to quit my job.  Push them.  Don't let them say it's anxiety it's not. 

Sarah I had a buzzing/ringing in my ear for 3 months.  It's gone now. If I just sat and waited - I would still be in the fog and sick every day.  Now that the fog has lifted I started to realize how many headaches I have.  Painful ones in my eye.  This condition doesn't even have to have a headache with the other symptoms.  I was on prednisone for nothing 

Hi hmoosey

okay yes this sounds very interesting and I'm really happy to hear im not the only one going through such symptoms

Hopefully i can get it all organised and see a specialist as soon as possible

So this morning woke up feeling better no hand tingling but slightly have some head pain on the right send which is annoying because it just moves around everyday to different spots but makes me feel nauseous due to having so much concern and worry ugh

Hi elise

Thank you so much for this information also

Hmoosey

Maybe o ask what your symptoms were and how long were you dealing with them ? Were you your own advocate ? 

I been dealing with so many symptoms for 3 months now at this moment I just feel like a drunkness feeling  like wonkyness 24/7 I do feel brain fog like I can’t concentrate or remember things my memory is horrible  also like if I’m wearing the wrong prescription .

I’ve suffered from migraines as long as I can remember as a kid and have had the worst ones where I can’t even concentrate and have to be in a dark room and sleep it off some times it has lasted till the next day .

As the months have past since May 8th I been feeling all types so symptoms I even would get eye pain in back of my eyes  then I’d get a temple headache medicine wouldn’t even take it away I’ve always taken exederin for them or Advil gels . I’m currently depressed and get anxiety because of this I’ve never experienced it before . Also I always feel over stimulated I’m stores it’s so hard to concentrate it’s like my brain and my eyes don’t agree .. it’s been really hard I’ve had so many test done now my next step is to get a hearing test and see a nuero which my insurance don’t even cover so I have to figure it out soon I can’t live like this anymore it’s hard with two children !  

Yolanda 

Hi Yolanda 

mine started may 7 and I was hospitalized May 8th so  same time as you! I was nauseous and dizzy and sweating all day May 7. I thought I might have food poisoning.  I woke up in the middle of night May 8- and when I went to get out of bed- I literally saw the floor on the wall.  I fell and crawled and called my husband for help.  I began to vomit violently and had to hug the wall to walk.  He took me to the ER- they immediately diagnosed me with BPPV, stabilized me and told me it could last for several weeks.  For weeks, I was dizzy, naseus but I kept saying to myself they told it would last this long.  I had to stop working and driving AND really just laid on couch.  And movement made me dizzy. They gave me mecclizine and zofran.  I tried really hard to get back to a routine because I am a mom and work.  I pushed thru everything.  Grocery stores were terrifying.  My brain was all foggy- I had trouble retaining information.  I had trouble talking.  It felt like I had a brain injury.  By May 24th - I had declined again and was worse than before.  Just moving my eyes made me violently vomit. I was hugging the wall and I saw the floor on the wall again   My husband took me back to the hospital.  I. Had an MRI and cat scan both negative.  I was there 3 days.  I was in and out of consciousness.  I now remember everyone asking me if I had a headache.  I kept saying yes and they put an eye mask on me.  A nuerologist and ENT came in because I asked! They immediately said you have vestibular neuritis- and started me on prednisone. I came home still out of work- no energy, dizzy every time I moved my eyes but the world stopped spinning around me.  I went back to work because the PT I started said push thru you have to train your brain and ear to work together again.  I really have no idea how I worked and survived.  I did have to take days off in between because I was all foggy and dizzy.  I had appt with neurologist and ENT- they both continued to say vestibular neuritis it can take weeks or months to go away. I asked for a Lyme disease test.  Negative.  My PCP had never heard of these disorders.  My second follow up appt-- now 3 months- the Nuero said maybe you just might be disabled.  Nice- I asked for antiviral meds they refused to give prior because of side effects- I said I'll try anything- I have no life! I can't think clearly, I can't walk straight, I can't take care of my child.  She gave it to me.  I told her my hand went numb on Father's Day- she wasn't interested. I told her that I was starting to realthat I get a lot of headaches-I had read some things about vestibular migraines- I asked if she would try to treat them to see if it works.  She said this is an ENT issue.  I went back to the ENT- told her what the Nuero said and she was p****d! She said "your hand being numb is an ENT issue?"" I asked her to try to treat the headaches-I explained same thing.  She prescribed me norotriptiline.  Next day I started to feel better.  By day 4 or so I felt normal ME and my hand wasn't numb anymore.  I was my own advocate.  I kept pushing.  Had I not- I know I would still be sitting here dizzy, nausea, waiting for the world to spin, brain fog, headaches.  No life. Oh yeah- they gave me a hearing test.  Normal.  The ENT was so mad that she called the director of vestibular clinic in the city -which I couldn't get in on my own. and got me an appointment.  I have one next month.  They say it's all clinical diagnosis based on symptoms and ruling things out. Do you have an ENT? Neuronotogist? Not neurologist-if your going to pay. Keep pushing. Keep asking to try new things. I was so debilitated- it was the confusion and brain fog that scared me so much.  I wasn't normal- I wasn't me. 

Hi Yolanda!

Me and you share the exact symptoms!! Wow.. I can definitely relate to feeling my eyesight feeling over stimulated in stores, malls, crowded areas, or certain bright colors, or patterns! Makes me dizzy.. feeling like I’m going to tip over! 

I’ve been dealing with this since I had my son in 2015! I’ve been on this chat room for about a year and it’s comfortu knowing many people suffer from this. 

I remember when I was pregnant I would get lots of migraines.. I’ve suffered from migraines all my life.

I’ve had so many test done and seen so many doctors I’ve kind of lost hope. You get to a point where you just get tired of trying to pursue doctors to do more..

I recently saw a holistic doctor.. he said my symptoms sounded like it might be “Cándida”.. he wants me to get blood tests.. everything is so expensive bc insurance doesn’t really cover the holistic approach.

I’m so sketchy about taking meds..But it might be my last resort if I find a diagnosis.

I just started seeing a chiro for my neck and it helps my symptoms a bit. He said my symptoms sound like it might be benign positional vertigo.. he wants me to get a hearing test and balance test. I’ve had one done 2 yrs ago but he wants me to repeat the test..,

Sounds a bit crazy but I also spoke to my gynecologist about it and she also said it sounded like it might be Bennign Positional Vertigo. She actually suggested I take that one motion sickness pill.. it’s kinda like a vitamin and it’s over the counter, called Dramamine for a week and see if I feel some relief, and she also suggested I take vitamin D3 5,000 one per day. I will try it this week.

I have good and bad days with my symptoms and there are times driving is difficult.

The eye sight thing is something so relatable! It’s oike snytimr in stores or busy, big environments, i get osebdory overload and my eyes are so over stimulated they can’t focus and feel like they’re trying to separate and pull out of my head! 

Can the holistic doctor do the blood tests for you? I hope they found the root cause and if it is candidia they can treat it properly for you!!!