Brain fog, dizziness, vision problems, head pressure, headache PLEASE HELP

Hi Henry!

Physical therapy for what? Are you referring to vestibule therapy? After physical therapy and counseling are you able to function and feel a bit better and try to live a normal life? Thank you for answering, right now my life just consists of laying in my bed going on 5 months

Funny enough. I recently sent to the eye doctors and he said I have similar issues, but after all the incorrect diagnosis I'm hesitant to believe that's the root cause. I'm supposed to start vision therapy. Have you done something similar?

I believe that this condition stems from my eyes and having the doctors find evidence of that confirms it. I've been given glasses first which i will need to wear for awhile before starting eye therapy. I think the eye therapy will help. I did vestibular therapy which didn't help because it was targeting the wrong thing.

I found out a had a hugely incorrect prescription, but I haven't started the new one yet. How has it made you feel this far?

Thanks for the information. I do suspect it might be something to do with my eyes as well because i feel dizzy when looking at objects/people when i am out. 

However i have been to an eye specialist last month and he didn't find anything wrong with it. May i know what is this eye condition of yours called?

I also had an incorrect prescription given by a previous doctor (prism lens) but never wore them. It's taking awhile to adjust to the glasses (bifocals) but they have helped with the dizziness. Ps I saw three opthamologist before one of them picked up a problem, so keep on trying.

Hi Amanda!

Thank you so much for answering. One doctor said I have vestibular migraines and another said I have vestibular neuritis while a third said it's just anxiety (this really upset me, because my anxiety is stemming from all these problems). One doctor recommended I see an ophthalmologist and I'm seeing one soon!! Have your symptoms gone away? If so, how long did it take?

-Elise

Hi Max, if you feel it is in your eyes there's a big chance it is. For awhile i thought it was in my brain because the first opthamologist told me

my eyes were fine (which they definitely weren't). Different doctors run different tests. I would highly recommend seeing another eye specialist for a second option. What i specifically have is called accommodative esotropia.

Thanks for the info, Amanda.

May i know when did you started to have this condition? My dizziness started following my appendectomy. 

Hi Elise, you're welcome. I know how desperate and hopeless these symptoms can make you feel so if i can help anyone in any way with my experience i will

I was also told it was different things by different doctors - vestibular migraine, vertigo, anxiety induced, psychogenic, etc. The sad thing is i saw an opthamologist at the beginning who tested my eyes and told me everything was fine which is why i went to other specialists to find out what was wrong. It was my gut instinct that told me to get

another opinion about my eyes. Lucky i did. If i can suggest one thing which was KEY for me before seeing another opthamologist it would be to see a separate 'binocular or orthoptics specialist' to get specialized testing done then taking these results to the opthamologist. Get them to write out a referral if you can. This is what helped me get diagnosed properly. A standard optometrist will not do this testing.

Welcome. My symptoms started a year ago after a stressful period in my life.

I see. 

I can't get much information about accommodative esotropia in adults but i will find a optometrist soon to check.

Thanks.

Hi Amanda!

Sorry I'm a little confused with the difference of a binocular specialist and an ophthalmologist. Does the opthamologist Not do the testing??? Thanks!

An opthamologist does do some binocular testing to check basics but it wasn't as detailed as the binocular specialist.

An optometrist only checks your prescription and how well your eyes can see or whether you're far sighted or nearsighted not these problems! Make sure to see an opthomologisy, my neurologist said an optometrist can't help me! Good luck!

Oh so a binocular specialist does more specified testing but doesn't read results as well and aren't as knowledgeable as an opthomologist is???

Yes a binocular specialist does more specified testing for vision problems. An opthamologist is more qualified than a binocular specialist but in a different way - they're more focused on the pathology side of things. Hope that makes sense

Okay that makes sense! Thank you so much for trying to help me, I'm so scared and desperate for an answer. I hope I find one soon and that you start feeling better as well. Good luck to you!

You're welcome. I hope you do get an answer but if not this time, don't give up! It took me over a year. The answer is out there, we just have to keep searching till we find it for each of us. Feel free to contact me if you need any more info or support 😊

Thank you so much for your support! I would love to keep in contact for support and discuss our symptoms and see what is working or not working for each of us!

thank you so much for posting this I have been lost for 8 years with dizziness panic disorder and I didn't know where to turn to even the start to look what it could be I'm definitely going to start

Hello,

This sounds like exactly what I have going on!! 

Sorry I got cut off. I have been to many drs including having a full dilated eye exam, and they only told me I have slight near sighted issues. Would seeing an orthoptic specialist as you mentioned do something different to find these focusing issues? I have never even heard of that but it makes total sense with what I have going on, which is all the symptoms you've listed. Thanks! 

Hi Bonni! I'm so sorry you're going through this too. :,( if you believe you have something going on with your eyes than just a normal near sighted issue (in which you would just need glasses or contacts) I would definitely suggest seeing a neuro-opthamologist or find a binocular specialist who can do testing on your eyes. 

I went to a behavioral optometrist who did some testing on my eyes on said I have a convergence disorder (but said it doesn't explain all my symptoms), but I did not have the extensive testing that a binocular specialist would have done. 

I hope you find some answers! If you truly believe it has something to do with your eyes, go seek out help from a specialist. It is worth it to find a proper diagnosis. 

Thanks for the reply! I can't seem to find a binocular or orthoptics specialist... is there a specific place to look or a website? I did find a neuro ophthalmologist but I'm sure I'll need a referall, right? I did some across Binocular vision disorder while searching and that seems like a possibility, however they don't mention the brain fog or out of it feelings. There are only several places in the US that do that BVD testing, though. 

Hi Amanda! What did you finally get diagnosed with?  Did you need a referall to a bincoular or orthoptics specialist? I have all the symptoms you are describing. I saw a regular optometrist and full eye exam and came up with nothing besides very slight near sighted. Would a neuro ophthalmologist be able to do the same testing you describe? And have your heard of BVD? Binocular vision disorder? seems similar to what we're all describing here. Only select drs and places in the US do it. Thanks! 

Elise, I have a 24 yr old son that has been suffering with alot of these same symptoms for 11 months now. He too went to family Dr, 2 ENTs, 2 nuerologist, a couple of ER visits from mediaction reactions to vertigo. He is now seeing a balance and ear Dr. I pray he gets answers. You might want to check if you have a balance ear center near you. The Dr is thinking it is debarquement syndrome. Best wishes for answers for you.

Hi Amanda,

I know the post is about 2 years  ago, I suffers too with the same symptoms as every on in this chat, please let me know if you healed and what treatment did you get?

Thanks

Sab 💐

Hi Leatha,

I hope you are better now, I has been diagnosed with balance disorders last 3 weeks, after suffering with dizziness for a year and half.

I have been to many different sepecialist doctors exactly like you did but no result.

I have appointment with ENT for the final diagnosis in September hopefully I will get some answer and start the treatment.

Please let me know what diagnosis for your condition and the treatment you had.

I hope you are 100 % your self now.

Sab💐

Hi Amanda,

I had my symptoms for a year and half.

I have seeing different Doctors.

2 Neurologist, 2 ENT, ophtalmogist, cardio, talking therapist, private ostheopath.

MRI, blood test all normal

I have disc degineration in my Neck and Back.

ALL Doctor saying in stress and anxiety.

I Had epidural in my Neck to relief the pain but passes 10 days since i had the epidural but the pain got worst and my symptoms too.

I won't recommend the epidural to no one.

now i have 3 rd opinion with neurologist on Monday hopefully they may do more test.

MY ENT diagnosed me with balance is low in my left ear.

so i will start therapy for an hour at hospital next week.

Last year i couldn't move from the house and couldn't drive for a while, been off sick of work, i had horrible year in my life.

i had to push my self, now even am dizzy,i still go out, work and go to gym, walk and cycle which you feel better and my symptoms reduced a bit.

i had accupuncture which helps me a lot .

please let me know,how you get on.

best luck.

Sab

Hi Sab

i just saw your messages.

im sorry to hear you having been having a difficult time with your symptoms. i'm glad youre seeing specialists to help you.

i has an extremely hard time coping with my symptoms during the first year. but now i am doing much better and my symptoms have eased a lot. i've learnt to manage and get on with life with the other symptoms that remain.

For me, most of my problems were coming from my vision. Once i saw the right opthamologist,they gave me glasses and it helped a lot

with my dizziness and visual symptoms. i saw many many specialists and tried so many things. The doctors are right, stress and anxiety make everything worse. and now looking back on it, i was in a very stressful place when all my symptoms initially began.

I wish you all the best and have faith that things will get better even when you think they wont.

Amanda

hi im 16 and i got sick . at first one day i had this brain fog then i fell ill and they said it was a virus . then the next week i went back and they said it was a sinus infection. then i went back again and they said it was just the virus hanging on . yesterday i went to the ER to see if they could find whats wrong and they didnt . i went back to my normal doctor today and they reffered me to a neurologist . im waiting now but my only symtoms are this brain fog / dizziness and my neck hurts and i got to blow my nose a lot . ive never had a serious fall or injury so i dont know whats wrong .

wow...you and i both have the same symptoms. i have anxiety but these symptoms are whats causing most of my anxiety.

i do think its my eyes though

im having the same symptoms, Nothing is blurry but its cloudy and like im in a dream, ive been dizzy off and on when i try to walk very far and its so frustrating. ive had so many tests and everything has came back negative.. i just dont know what to do anymore, i like to overthink and then it makes me anxious and it all gets worse. it usually feels the worst at night. i also get headaches alot

Hi my name is Lauren, ive been suffering with brain fog and off balance when i walk, it's like im on a boat in choppy waters! Its making me depressed! Ive had full bloods done, all came back good apart from Thyroid antibodies they were high coz i have Hashimotos Thyroiditis. My doctor wants me to try Chinese Acupuncture. I'm a little skeptical about it though. How did u find it? Did it help with your dizziness?