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I have been back and forth to doctors for many years now with what I initially described as fatigue, inability to concentrate, brain fog, blocked ear, strange uncharacteristic mood swings + a whole host of other little things like sudden chills, body aches and pains, frequent diarrhea etc
Now I have never had any luck with any of the doctors I've seen but to be truly honest I only have myself to blame. I've been frightfully bad at explaining and zoning in at what the main issues are and instead just name a myriad of symptoms. I've had a full blood planel which came back negative.
Now after thorough analysis I can at least rule out many things. It is NOT depression or anxiety, but when my symptoms strike they can exasperate my problems. It is not ADD inattentive type, however the reactions I get lead to almost identical symptoms. I tested negative for celiac and a whole host of other conditions. I seem to react to everything. I often feel the fog attaching itself to my brain and the brain switching off 5 minutes after eating a normal sized meal
What is happening is that I am in a nearly perpetual state of brain fog. I would call it a zombie state. Everyday, the level of the spaciness varies continually as I react to everything I consume - literally everything. I'm very wary about driving and will only drive when feeling near 90% ok. When it completely lifts , which happens most days for an hour or so, I am my old self again. Happy go-lucky, able to take things in with ease, focussed and motivated. And my memory recall suddenly comes back.
Now this evening for example, I was going about my day with what I would call mild spaciness. Everything a little slower than I would like but not debillitating enough to stop me getting on. I popped to the chemist to buy some sudafed as I had decided to see if it would help lift my spaciness as I had read positive comments regarding pseudoephedrine. I took it at 7.45 then sat down to watch University Challenge at 8. All was fine but as I sat there I started to feel the fog build. It got stronger and stronger and eventually I spent the last 20 minutes of the show staring blankly at the screen, unable to take anything in. Zilch. Just constant blank staring which I would pull myself out of every 5 or so seconds for it to just happen again. I felt nothing, no emotion, no connection, yet not tired. Just a complete sedation of my brain like I'd taken a whole bunch of Valium pills (i've never taken any so just guessing what it feels like!)
The zombie state was too much so I decided to get away and have a lie down. After about half an hour, I Iiterally felt the fog disappearing, the brain switching back on, the mental energy slowly coming back.
This reaction happens all the time. I've never found consistent triggers but have found that any mild substance (caffeine, alcohol) definitely brings it on, as well as medium sized meals.
Now the only thing I've ever felt lift the brain fog is an almost fasting state. I am however borderline underweight despite consuming a good 2500 calories a day. I've never been able to gain weight and the one week I cut my calories in half I lost a stone immediately. However I was starting to feel like a proper person for the first time in many, many years.
Does anyone have any ideas what is going on? It's almost as if my brain is unable to tolerate anything. I've recently given up caffeine as I've had debilitating brain fog and spaciness after a single cup of tea.
My doctor suggested Narcolepsy when I told him about waking up unrefreshed most mornings, fall asleep at the click of my fingers, and feeling whacked and like a zombie for no reason, but I really don't think that is causing the weird reactions and terrible zoning out most times of the day. He referred me to a Neurologist but the NHS waiting times are 6 months and I can't really afford to go private and spend £250 on a consultation unless I'm sure the neurologist will provide answers, as I currently jobless due to battling each day through the haziness.
My life is falling apart and although I am starting to spot more and more strange reactions, I'm not managing to find any concrete answers.
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