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Brain MRI Images attached. An expert eyes with opinions?

Posted , 4 users are following.

Oddity
Oddity

The MS Specialist I saw says my brain lesions are not consistent with MS.  They diagnosed me with Small Fiber Neuropathy.  I have attached some images. 

MS Specialists says my lesions are old.  She compared them to an MRI I had 7 months ago and concluded they have been there for a while.  This is very confusing to me. 

My Current Symptoms:

Itchy burning bilateral leg pain that radiates from my groin and buttocks down my legs.  This is more pronounced in the afternoons.

A weird cold bilateral calf pain that is more pronounced in the afternoons or if my skin is exposed.  This makes it almost impossible for me to wear shorts even though I live in a very hot dry climate.  I think this is called dystonia.

Daily pressure headaches.

Weird teeth chattering.

A tightness that radiates across my upper back.

All of these symptoms are relieved by taking 300mg Neurontin 3 times a day.

I am a male in my mid-40's.

I'm just curious if there is anyone on this forum that is knowledgeable with MRI Images and can give me an opinion.

0 likes, 5 replies

5 Replies

  • wendy80842
    wendy80842 Oddity

    Posted

    You might reach a larger, specialised group of people on a site that's specific to MS? I know that there are MS specialists who keep an eye on posts in the forum in to the UK version of a charity raising funds for awareness/research etc.

    • Oddity
      Oddity wendy80842

      Posted

      Hi Wendy,

      I did also post this in THISISMS.  Thank you.

    • wendy80842
      wendy80842 Oddity

      Posted

      Have you had any MRI's done of your upper spine? It's awful being in a position where your Dr's are saying one thing, but your body is screaming another, I sympathise .

    • Oddity
      Oddity wendy80842

      Posted

      I have had both an MRI of my thoracic and cervical spine. Both were normal. I appreciate your support.
  • tesreg
    tesreg Oddity

    Posted

    I know this was posted 3 years ago, but I'm just digging for answers. My MRIs are similar to yours. Current symptoms:

    Arm pain, weakness, slight tremors in hands

    Lower leg cramping, tremor

    Dizziness

    Fatigue

    I'm 37, female

    Personal history of papillary thyroid carcinoma, Grave's disease.

    Family history of MS (father and paternal aunt)

    My neurologist is still looking for answers as he says it is not a "typical" presentation of MS.

    Any insight or feedback would be great.

    Thank you

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