Brain stem aura and hemiplegic migraine

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Hi everyone,

I’ve just been diagnosed with brain stem aura migraine after suffering the past 8 days with this current episode I’ve finally got some clarity on why I’ve been having confusion, memory loss, dizziness, weakness down one side and just a general feeling of ‘not being with it’. All of these symptoms are extremely scary when you’re left disoriented and unable to find the words to speak especially when I’m a public place. I was taken to hospital with suspected stroke but after negative scan results I was left none the wise to why I felt the way I did. 

After finding a brilliant neurologist  I’ve finally been put on epileptic medication. This dr was extremely understanding and would recommend to anyone else suffering with complex migraines!

 I wanted to know if anyone else is suffering and if so does anyone have any tips on how to cope?

Lauren 

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  • Posted

    Hi Lauren I am sorry that you are going through this and yes it is quite scary. I had my first migraine at 14 and I had no idea what was going on and it was very scary for a child to go through. I had visual disturbances with aura flashing zig zag lines and paralysis down one side. At times depending on what side the migraine was on I had trouble writing speaking and understanding words and for over a week i would feel weird in the head. The last straw came when I was pregnant with my second child and had them every day towards the end. I went to a migraine seminar where a chiropractor was talking about the correlation between neck misalignment and migraines so I went to see a chiropractor and he changed my life. I was migraine free for over 10 years until about 2 months ago when i had one but they changed from paralysis to just aura and visual. I went back to the chiropractor and he said he said no wonder i has another migraine as my neck was really bad. I now take care of my neck as best I can as this is a trigger for me. My naturopath also told me to start taking a magnesium supplement. I do still get scared of having another migraine but i just try and not think about it. I hope this helps and you find permanent relief from these debilitating migraines one day. Take care.
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    • Posted

      Hi, 

      Thanks for your reply. I really appreciate the advice smile It’s good to hear I’m not alone! This neurologist actually prescribed me magnesium also so I’m guessing this must be a common deficiency with migraines? 

      Just been reading my brain scan results and also seen that there was a small abnormal white mass and signal flair on he left side of my brain... have you heard of this before? I’ve only just noticed this as I’ve just read the discharge letter I received from hospital. 

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    • Posted

      Hi Lauren

      Yes magnesium is deficient in migraine sufferers apparently. I just wanted to know if you had many migraines before you had those scans as my I read and my dr so eloquently put it that our type of migraines can cause damage to parts of the brain and increase the risk of white matter which did not help me to know. There is an article about it if you would like me to show you.

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  • Posted

    Hi Lauren I'm so pleased I saw your post I too was in A&E this month with a suspected TIA (mini stroke) after various thorough tests it came back as migraine. It was very scary🙊😨 I'm just waiting for my appointment next month with Neurology. Will be interesting to hear his opinion. I do hope you're feeling better now. Take care x

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    • Posted

      Hi,

      Thanks for the reply!glad to hear that it at least wasn’t a stroke you had although the symptoms are scary none the less. Would be good to hear how you get on with your appointment. 

      Is this the first episode like this you’ve had? 

      X

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    • Posted

      Hi yes it was the first one and had several more since unfortunately. I'm hoping my appointment next month will be useful! I never realised there were so many symptoms with migraine. I'll let you know the outcome X hope your day is going okay in this 33°c heat 😓😎

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  • Posted

    Hi me again 

    Just got back from hospital (again) after having the headache part now added to this 2 week migraine I’ve had throbbing pain on my right side of head and behind eye with pressure building on the base of my head.

    My speech went today and I was unable to move both arms. My brother called an ambulance again and the his assessed me gave me sumitriptan and sent me home still in tremendous pain. I have since taken 4 ibuprofen as I read online that this can sometimes help. 

    I believe this is now classed as status migraine due to the length. 

    If anyone can offer any advice it would be much appreciated. Trying to get hold of the private dr I saw last week that put me on epileptic medication but I believe he’s on holiday now 😑.

    X

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