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Brain tumor fear. Wont go away.

Posted , 4 users are following.

katiemarilyn
katiemarilyn

Went to the ER again todaY. Had a 3rd doctor tell me i dont have a tumor. Ive had 2 neuro tests. Blood work. Eye exam. They all say its stress and anxiety. I cant believe them. Something feels so wrong. They said they wont do a ct because its radiation for nothing. Is it time i listen?

I get weird head pains. Headaches. Nothing ever too painful. Id say mostly mild. Tingling in lips and tongue on occasion. Legs feel like jelly sometimes. Dream like feelings. Burning scalp sensations. I just dont feel right. But its always just anxiety.

Should i just accept they won't give me any testing? And accept their word? Im so afraid something is growing and getting worse and im just wasting time on treatment. Im terrified that itll finally be a seizure that will confirm it. What should i do!? Very scared and feel like i dont know what else to do. Just want this to stop!

1 like, 16 replies

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  • christian66261
    christian66261 katiemarilyn

    Posted

    Wow, I am almost experiencing the same symptoms and I am really scared myself. I always search the chances of getting something like that and I know it is pretty rare but I always think why cant that stuff happen to me. Heres my story... I started having bad sleep patterns and then muscle spasms started to happen and now I have had a headache almost two and a half weeks. I went to the ER and the doctor did a neuro test on me also and said he did not suspect anything to be wrong with my brain. Im going to my neurologist because I am not convinced. I also do not feel like myself lately. I hope we feel better soon but I do suffer greatly from anxiety I always feel like I have a horrible disease. and I will get the odd tingle also around my face area but who knows why
    • katiemarilyn
      katiemarilyn christian66261

      Posted

      The chances of us both having a brain tumor are probably like 0. Lol. Idk sometimes i do feel okay. But like 90% of the time i dont feel normal. doctors keep telling me if it was in need of immediate attention id be having debilitating headaches or seizures or i would fall over or lose feeling somewhere and not be able to move something. So my mild headaches and tingling occasionally doesnt seem like a big deal to anyone but me. sad i just want to know im okay and not worry.
    • samuels
      samuels christian66261

      Posted

      That tingling feeling around your face area would be from where you are hyperventilating, you can hyperventilate without even realising it.
    • christian66261
      christian66261 katiemarilyn

      Posted

      Some days I feel pretty good but once I feel a twitch or a bit of head pain my mood goes downhill and I feel like im dying once again. The jelly legs was actually the first reason as to why I went to the doctors. They did strength tests on me and he just said anxiety. Depending on the day I will feel jelly like sometimes and others I will feel pretty close to normal. Anxiety is crazy. Does not help that I am a hypochondriac either. In addition, I was also told that if it was a brain tumor you would experience complete numbness and weakness, sudden memory loss, falling over, and dragging a leg or something like that. Everyone tells me not to worry but it is easier said than done!!
    • katiemarilyn
      katiemarilyn christian66261

      Posted

      Same here.

      sad

      Maybe it really is just anxiety. The doctor today said its not worrisome because mine goes away and comes back. And i dont need to worry unless it wont go away with or without pain reliever or it gets more painful. Or i start throwing up. Or any other symptom you mentioned. Im just afraid one day one of those will happen. Like im a ticking time bomb or something. Everyone tells me im irrational. But it seems very real and scary to me.

    • samuels
      samuels christian66261

      Posted

      Have you had a blood work up, one that springs to mind is the  hb1ac, that's for diabetes, there is also another condition, I always get it mixed up but it's kind of a reversal of diabetes, As I said I get the 2 mixed up, hyperglycemic and hypoglycemic they can give you head aches and jelly legs, well weakness everywhere and even passing out, My brother in law and mother suffer this condition, I don't know the name of it and it's not diabetes even though it's sugar level related.

    • samuels
      samuels katiemarilyn

      Posted

      You would know if it was a pulmonary embolism smile If it wasn't for a switched on triage nurse who knows where I'd be now. I'm into 6 months of recovery and I still get bouts of pain, lethargy,  my leg and foot still swell up every now and then, I had a job to shower, just got way out of breath,

      To start off with they thought it was my prinzmetal angina just acting up, As I was taken in by ambulance for my chest pain they asked why I was limping, I told them I think I have strained a muscle and both my GP and me were treating it accordingly, well this nurse looked at my leg and said I'm actually more worried about your leg than your chest pain, so tests were done and multiple blood clots found in both lungs. I am now only experiencing the "text book" symptoms of sharp stabbing pains in the back and chest and occasionally hurts to breath, yet had none of these before other than the swollen leg to indicate a PE 

    • katiemarilyn
      katiemarilyn samuels

      Posted

      Im pregnant so blood clots can be a problem. I had swollen varicose veins in the back of my leg that hurt. I was having chest pains (from my panic attack i know now) but they did a chest ct and ultrasound of both legs. And found nothing. I felt stupid. But i was terrified during the whole thing. Anxiety can really make you believe things are seriously wrong. And now my seriously wrong is a brain tumor. sad
    • samuels
      samuels katiemarilyn

      Posted

      so am I . But thankyou. I would of still been treating it for a strained muscle and I'm sure my GP would of only sent me for an ultrasound and that wouldn't of shown anything up, well from what I have been told ultrasound doesn't pick up DVT's .

    • samuels
      samuels katiemarilyn

      Posted

      As I said if it wasn't for a switched on triage nurse it would of been missed until it was to late

    • samuels
      samuels katiemarilyn

      Posted

      Ahhh yes Pregnancies do pose a problem in getting PE's and now I understand why they didn't do the CT Scan with the dye contrast .

  • samuels
    samuels katiemarilyn

    Posted

    Talk to your GP, depending on where you are from, they can order CT Scans. Your brain plays weird and wonderful tricks on the human body, it tricks us into thinking something is organically wrong when in fact there's not, it's a complex issue and is also an over diagnosed condition simply because doctors can't find anything so they simply just put it down to panic/anxiety or stress.

    Cut a long story short, I had suffered for 26 years, doctors now listen and treat me differently since my heart attack, as they couldn't work out why a very clever doctor came up with a diagnosis and cardiologists concurred with the emergency doctors diagnosis.

    • katiemarilyn
      katiemarilyn samuels

      Posted

      Mine wont order one. And no ER doctor figured i needed one either. They said they wont put me through radiation i dont need. All my tests come back perfect. Eye exam and neurological tests seem perfect. It's just how i feel thats making me think theyre missing something. But how many doctors could really misdiagnose something that serious? I try to tell myself someone would have at least suggested a ct if they had even a little worry. Everyone says no way i have anything wrong and i need therapy. Lol

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