Brainfog, dizziness, ear and eye pain ...

Posted , 3 users are following.

Hi everyone!

I don't know where else to go, and was hoping someone could please help me. I'll start off by saying I'm a 26 year old Caucasian female. Going on 14 months now, I have had absolutely debilitating symptoms which have hindered my daily life. I feel these symptoms every moment of every day.

It started with dizziness and a persistent brain fog. I just thought I had a bug, and tried to go on about my life. However, my symptoms have never gone away. This "brain fog" I am talking about is a feeling of complete mental confusion, I have no memory, I cannot concentrate on anything, it feels like there's a dark blanket on my brain clouding all my thoughts. I have extreme disorientation and haziness. I feel like I'm always in a dream like state.

I am constantly dizzy and feel a pulling sensation, as if I'm ready to fall over at any moment. It feels like there's air inside my head, and I'm always very lightheaded. Whenever I try to drive I feel this pulling sensation pulling me down.

Another problem I have is with my vision not only I have a weird pain in my eyes, like someone would pinch me with a needs I also am having very blurred vision and have double vision. Everytime I look at something up close it is extremely blurry and I cannot see at all. My perception on things has completely changed. I feel like everything looks very odd and strange and I don't have the right depth perception. It's like I'm in a horrible dream like state all the time.

I have been having headaches and head pressure as well, and having horrible pains behind my eyes. The pin starts from the back of my head close to my neck and continues up my head and the sides of my temples. My eyes hurt so bad, and it feels like knives are jabbing my eyes. My head also feels extremely heavy all the time.

All these symptoms have been causing me severe anxiety, and I have been having panic attacks from them and feel like I'm dying. It is causing a strange disrespity sensation, where I feel like I'm not even here anymore and there's a detachment from myself and my body. I always think I'm having a heart attack, stroke, blood clot in my head or cancer all the time because doctors still don't know why I get these symptoms. I can’t sleep and if I do get lucky and fall asleep I usually wake up out of no where shaking and my heart beats extremely fast, then I get shivers and my stomach starts to cramp. It’s bad. I don’t know what to do anymore.  My life turned around so much because I’m in bed all day long. If anyone could please help me or know anything as a suggestion to try.

I have been to my general doctor, 2 ENTs, 1 neurologist, have had 1 Head CT, Head EEG, a hearing test, multiple blood tests, and no one knows what is wrong. I can't live like this anymore. Any help is greatly appreciated.

2 likes, 1 reply

1 Reply

  • Posted

    Hi,

    It is aweful and I can sympathise with you as this is what happens to me as well as getting paralised down my left side.  Do you get anything like this?

    One thing I will say is that although you have had a CT scan which can see if you have any bleed or clot an MRI scan in this case is much better and can highlight areas in the head better than a CT, so thats something you could look into.

    I live in UK and have Botox and take Flunarizine for this and its really helped me.  I used to get an attack every other week, now its 3 times a year!

    This condition that I have is Hemiplegic Migraine, and if you get one sided weakness then this could be what you have too.

    Good luck and take care

    Let us know how you get on as you might be able to help us too

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