Breathe easy {i wish)

Hi Carole (I like cats and dogs),

Your FEV 1 is going well. Well done for managing such an impressive prescription list! As for Tessa, I have tried private messages, emails and have had no response. I have also asked Chimera but she has no info other than what we have - so it does not look good does it? Here's hoping Tessa will be back soon and confound us all. Keep smiling

Jacee

xx

Hi Carole, Great to hear your FEV1 news! Thank you also for posting your FEV1's from the past few years - while I know we're all different it still helps to give us 'newbies' some idea of what we can expect.

I'm due my 'official' annual spirometry when I can get round to it between various other hospital appointments. I'm frantically exercising like a hamster on a wheel in the hopes that I may improve on my last reading. I'm working on the theory that I was massively unfit to start with due to inactivity and weight gain , so that may have given a poorer reading. Oh well, I daresay I will find out soon enough whether all this activity is worth it.

Hope the sun has been shining for you further along the coast there. it's been almost like summer here (Cornwall), really lifts the spirits to wake to blue skies!

Stay in touch won't you Carole, don't go doing one of your disappearing tricks again - we would miss you! Besides, we're growing into a nice little bunch here -with Jacee, Flossie, Knittie , Echo and others. Hopefully Tessa too quite soon. Besides, you are our 'Wise Woman' as you are more experienced than us newbies! Lots of love Vanessa xx

what a small world, I have just pitched my tent in polperro, went down to the beach to practise some Thichy, and I bump into a good housewife gone bad.

Forced Expired Volume 1 second readings

Forced Vital Capacity

are regarded as innapropriate for those with car crash lungs so if you are able to get a FEV1 and % of predicted reading as a guideline you have still got a \"working\" set of lungs

spirometry goes up a side street

S.V.C

As I understand it, the measurements appropriate for those with saggy windbags are given a Slow Vital Capacity test

pre and post taking two puffs of salbutamol,

my particular readings for the record are

S.V.C. 0.47 /1.75PRE

S.V.C. 0.43 /2.24POST

this translates as ......salbutamol is effective, although does not translate as increase in actual mobility or activity, noticably

when are you moving Van

silly harry was asking about you

:roll:

Hi Eddy, this good housewife gone bad is now gone useless too with soggy carpets, leaky drainage (the house, not me!) :lol: Not really getting in this room for practical reasons, was just checking dying out situation today, will get back to all hopefully by weekend, love Van xx

PS I wouldn't pitch tent on Polperro beach if I were you - its totally submerged twice daily at high tide - you would be sleeping with the fishes quite literally! :bluefish: :fish: :bluefish:

crikey Van, that is all you need, sorry to hear you have even more to put up with, the fish dont trouble eddy much, he likes cod and chips and it saves filling a bath, but Vanessa I am lost for words other than, you carry on being strong against adversity, just wish I could do something to help

also the FEV1 updating is good plan, as like Vanessa I believe lung function, defined by spirometry results can improve despite all objections from the professionals to the contrary.

they say forced expiry can never improve

vannessa I am looking to you to show better blow results

I am below FEV1 appropriate testing apparently

forced is not a good benchmarker

the steady blow is the one they grade me on

SVC

slow vital capacity

I am a Dumbo and do not pretend to understand as yet, also any questioning is met with they won't be of any use to you etc. and try to steer me away from comprehending the predicted % clarification as to what remaining function exists

so hey ho

in 2005 was 6 month life prognosis

I used to walk pretty normally for a few years after, to shops, but have had a couple of hospital addmissions with pnumonia since

at the moment can walk for 20 mins max very slowly and intend to increase this each day

Eddy, you are amazing!!

Can't say I really understand FEV1 and SVC but I am with you in believing we can improve results. To be given 6 months to live five years ago shows we can fight our way back. 20 minutes walking is a lot more than I can manage but like you I am hoping to improve my fitness. And you should keep fighting for info - don't let them put you off. Good Luck

Jacee

Thanks Jacee,

all you can do is take it one small step at a time, day by day, like a roller coaster ho ho and I'm clinging on ready for next day.

Vanessa please get poppy to visit her other site

I see you at Blf and you are so right about all you say and would love to hear from you there,

Iwas there when you visited the other day but the site was screwing up a bit....please come back and post, left you some messages, its all embryonic, needs ironing out etc. dont give up on us there just yet.

I see you checking at the sterile site being reviewed where we were all at once. just hope it is sorted for the sake of justice and the vulnerable people

hope you enjoy a joke too Van by the resident BLF composter

visit the \"poppy\" field Van speak to us while they are sorting out mess

[i:0969b081dc]Hi Vanessa and Ian - thank you for your input :O)

Were you talking about the 24 hour pulse oxipulse meter that we are sometimes fitted with by the hospital Ian? I'm not sure if this measures co2 arterial gas as well as o2 levels - may be this is a different question to what Mark was answering re my original query.[/i:0969b081dc]