Breathless
Posted , 4 users are following.
Hi everyone, Just returned from a two day break with my cousinin Blackpool. This was arranged before I was diagnosed with PMR and couldn`t let her down as she`s had such a lot of heartache recently.
Howver I`m glad to be back as i found it very heavy going. Thanks to the steroids(27.5mg) I didn`t sleep more than two hours total each night, cramp and generally high. Used to that when I`m on them for COPD exacerbations but the breathlessness when walking was dreadful. Do any of you find this or should I be looking at my lung condition ? All the best Shebob :?:
0 likes, 8 replies
Nefret
Posted
I believe both PMR and Pred can make you breathless anyway, also of course you were away from home and if you're like me, almost anything out of the norm can set it off. It might have been the ozone or possibly the candy-floss?? (wish I could make these little icons work; I'd have put in a wink there!). Hope you enjoyed your stay - have you a photo of you wearing your kiss-me-quick hat?
Love from Nefret, who's feeling mischievous today!
shebob
Posted
Spammy
Posted
I too get out of breath with the steroids, I know I have put weight on but it is a different feeling of being out of breath, if you can understand. Just to put my shoes on some days takes my breath away.
What gets me is some people don't understand PMG and how you feel.
they say \"maybe you should loose weight, it would help your legs\", but the pain is not just in your legs it's in your neck, arms, hands and fingers. And the creeping feeling up your neck and the internal shaking. Sometimes I wonder if it is the steroids or the complaint.
Unless you have had it you cannot understand, that's why this site is so helpful to us sufferers.
So keep up the good work with the news.
Spammy
:wink:
Guest
Posted
Do hope the breathlessness is easing - it could just be the steroids as they do make you feel so exhausted on the higher doses and I feel that could manifest itself in a feeling of breathlessness. However, as Nefret suggested, it would probably be wise to get it checked out especially as you suffer from COPD.
Do hope the ENT appointment went well, and, as you say, it does sound as though those problems were caused by the untreated PMR (or the linked GCA) in view of the relief you found once on steroids.
You're a girl after my own heart with liking dark fruit and nut chocolate and it's making my mouth water just to think about it. I'm glad I'm upstairs on this computer and away from my supply! Lost a couple of pounds this week and have just bought an evening dress to wear to a 'do' in October :P , so I am not going to be tempted or the dress will have to go back!
Spammy - no, healthy people don't have a clue what we go through with PMR and although they say we look healthy, they can't SEE the pain can they. At least we all know what each other is going through and I'll always be grateful for finding this forum.
MrsO
Nefret
Posted
Let us know how it goes! If you do get your chest checked out I'll be interested in the results.
Nefret
shebob
Posted
They don`t do my oesophagitis any good either and doc thinks I may have a water infection !! So- I`ve now got- asthma, COPD, oesophagitis, pharyngitis,PMR, cystitis and a huge stomach !!
Ain`t life grand. Honestly though I am so grateful that there are worse things that I haven`t got. This site is such a help even if only to have a little moan to others who know how you feel.Keep positive folks. Life is good Shebob
eap6217
Posted
Are all those side effects?
shebob
Posted