Breathlss

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hi, I have had copd 10+ years, my medical team don't talk in stages but mild, moderate and severe, I am severe. I'm on oxygen 24/7 2L, I've been feeling fine no hospital stays for almost a year. My community nurse visited yesterday and all seemed good although a little more breathless than usual. As the day went on the breathlessness increased and by last night I was extremely breathless just lying in bed, I used my nebuliser which helped a little according to my oxy/ pulse probe my oxygen was 96 , pulse 118. This morning I'm still breathless just sitting in my chair. Has anyone been like this ? Thanks for any advice. Regards Julia

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7 Replies

  • Posted

    Julia, I think if our breathing deteriorated that quickly you need to be contacting your community nurse or gp, not strangers on an online forum
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  • Posted

    Hi Julia,your obviously concernered about your breathlessnes ,,,,concerned enough to write on here ,,,,if I was you and that concerned I wouldn't hesitate in contacting your copd nurse or GP ,take care ,best wishes,

     

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  • Posted

    hi i have had this for the last 18 years on oxy gen the same it always gets worse in the evening i gave up useing my neb about 18 months ago as in the end it did not seem to make any differance i have also been on a bypac machine to sleep at night and that i find is good and i find when it is damp my breathing is worse i am 74yrs
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  • Posted

    Hi Julia, are you sure you're not allowing yourself to become anxious making you feel more breathless.  But I agree with Jude and Nanny, a call to your GP or COPD nurse is the sensible thing.  Hope you breathing improves soon.
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    • Posted

      Hi pippa thanks for your reply, yes I could be getting more anxious. Just to let everyone know I'm feeling much better. When my matron examined me yesterday she could hear very fine crackles at both lower lobes, I have crackles in right lung all the time, probably bronchiectasis . I've only just finished a course of antibiotics and steroids. Usually when I'm breathless my oxygen level drops but yesterday it didn't, my pulse increased to 118. Last night I thought I was going to have to call an ambulance but I got thru it and as I said I'm feeling much better, Thankyou everyone for your good wishes and advice. Warm regards julia x
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  • Posted

    Hi julia14760,

    I had something similiar lately and my Dr said if it lasts more than 2 days then you should be seen and it's probably an exacerbation that everyone talks about. That's my advice....please let us know!

    Ladyjack51

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