bronchi saga, neverending

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heya, so its a couple of months since my diagnosis and I'm struggling to get my head and indeed my body through this neverending nightmare. for instance I decided to try continue my work as a gardener involving everything from grass cutting to log cutting etc, manage a couple of hours then Im knackered, totally. next day amazing aches in my back, and feels like in my lungs, really hurt. recently had an antifungal tablet for 2 weeks due to fungal bacteria in sputum, did.nt help as in still feeling the same, got montekulast tablets a couple days ago as they thought seasonal allergy thing was happening, so far no change at all! my peak flow fluctuating madly recently despite the Symbicort, having asthma as well apparently. this is soul destroying, I'm at the end of my tether, should I give up work? or persevere? I'm a stubborn s.o.b. so I do like a fight but this is one way traffic here, big sighs...

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6 Replies

  • Posted

    Sympathies david. You are doing what I do - carrying on.and taking no notice. However, you are not sorted out yet and it appears to me that you haven't quite accepted where you are with this complaint. As you know there is no cure for it and it won't go away. It's all trial and error to find what works for you. Monteleukast changed my life-but it usually works very quickly and it may not be for you. Try to go.back to basics. Rest lots, work steady, drink loads of water, and keep pestering the medics.

    This week we are having a new bathroom installed. This means that the house has been full of work people and I have found it hard to get the privacy I need to do my physio. I skipped a couple of days. I ended up feeling awful.and now I have an infection. What I am saying is you have to do what needs to be done every day. And there are no miracles only a slog through.

    Maybe gardening at a very energetic level is too much but fresh air and exercise are good for you.

    Hope you soon feel a bit better.

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  • Posted

    It is one illness that when under control you can work through. I have empathy with you for trying to carry on working, especially when your a gardener. As Operalyn stated some medications may not be suitable for you.

    I have also been on Monteleukast for 10 years and find if I miss any days of my medication, I start to go into a downward spiral. You Need to work with your medical team to find out what works for you.

    Hopefully David you will get something that will work for you. Take things easy and one day at a time. Trying to do too much at one time is not the best idea in the world.

    Not long out of the hospital myself for a flare up of an infection. Had been in twice in the past 8 weeks. Though hope to be going back to work soon. 

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  • Posted

    Hi David,

    The two replies have sound advice from Operalyn and Petered;

    I spent an hour in the garden yesterday and it was great, but I wasn't working as you are for regular work (I am retired).

    Have your rests and physio' if you can break up your day.

    Blessings,

    Lesley

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  • Posted

    Hi David, I echo what the others have said, one day at a time, one day its good next its a downer but the next will be good! Although this is in our lungs its also in our heads, and it is a worry. I teach aerobics twice a week and I am on the go all the time with two young children, but rest when you can.  My doctor said to exercise every day as its a great way to clear the lungs - chin up Samantha
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  • Posted

    Hi David Have you not been told that the grass could have a detrimental effect on your breathing. I love the smell of freshly cut grass but cannot go anywhere near now as it starts my chest off. I cannot wear any perfume or deodorant and my hubby has to apply his downstairs. Cannot use plugins of any sort either so it could be one of the things in your work which aggravates the situation. If you are still suffering after your course of tablets then you need another sample taken and maybe they find another antibiotic for you. Do you do any physio to get rid of the phlegm from your chest.
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  • Posted

    Hi David....I just recentlly was told that this is probably what I have...When I connected the dots & did the reasearch it all fell together...I found this forum by accident...it has helped me a lot to know that we are all in the same boat....it is trial & error David..some things work & others will not for you...I cannot do the things I used to but I try..I love to work in my yard but I have to do a little at a time...When I get to tired are hot I go inside and play on the computer awhile...and then go back out and do some more...it is really hot here in Texas...The wheezing at night is what bothers me the most....I have one of those sound machines to help drown out my wheezing...it helps...I usually put it on Mountain Stream or Rain...lol....David stay strong and remember we all have it & when you need someone to listen we are all here...I had a melt down a couple of week ago...and everyone was really thoughtful.....Cynthia in Texas
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