Bronchiecstasis and chest pain
Posted , 2 users are following.
Just found this site and wanted to get some things off my chest (excuse the pun!) I was diagnosed with Bronchiestasis 2 years ago after 2 years of continual chest infections and 2 bouts of pneumonia (hospitalised) within 3 months, which in my opinon was badly managed infections by the GP. I finally after much begging to my GP got to see a specialist. I am currently recovering from my 5th chest infection in 5 months, and being self employed - teaching exercise to children! am at my wits end. I feel like I am not the medical support I need. In fact on going to the Gp on the last infection which showed a bug growth on a sputum sample she just dismissed me and said I looked fine - needless to say the next day.....
I have asked my specialist about a continual low does of antibiotics but he isn't keen, so now I have had almost 5 months of high dose augmenten.
Last winter wasn't much better I ended up in hospital with pnuemonia despite the diagnosis the GP didn't seem on top of things. It seems to me that no-body seems to understand too much about it?????
In addition, I constantly have lower left lung (area of most damage) pain, like some-ones touched a bruise and then other times sharps stapping pains, does any-one else get this???
I am constantly tired - is this normal?
Sorry for the rant, I am just keen to get on with my life, I do all the right things: exercise, healthy diet/weight, flutter, supplements, never smoked, little alchol - any more suggestions would really be appreciated
1 like, 6 replies
Guest
Posted
Some people need inhalers to open up the airways so that mucus can be coughed up.Have you had a full lung function test carried out by your doctor which might show up any lung restriction.
as well as taking antibiotics i use several inhalers to open up my airways so postural drainage works better,these are:
seretide
spiriva
and mucodyne tablet to thin out the mucus
i get lower lung pain often
keep nagging you doctors,i asssume you have had a ct scan
Guest
Posted
I have had a CT scan which shows areas of bronchiectasis across both lungs. I also have had lung function tests.
The Phsio I saw told me that postural drainage was old hat and the way to go was the flutter...what does any-one else think???
I am currantly on 30days of mucadene, this is the first time it has been prescribed I am not seeing my consultant until June now so will see if the GP will perscribe. I do get a level of mucas up but not out which again is frustrating.
I have seritide and ventalin inhalers as I also have chronic asthma, which doesn't help.
I know I teach exercise in the day, but I used to go to the gym 3-4 times a week, but now I am just too tired at the end of the day......is this usual aswell??????
Any advise is greatly appreciated
Guest
Posted
i too have asthma which makes coughing up mucus difficult unless the asthma is well under control.i cant get anything out with a tight chest.
i use a peak flow meter at home and have lung function(spirometer) tests carried out by a consultant from time to time to make sure asthma is controlled. i use the highest dose of seretide 4 puffs a day of seretide 250 and from time to time steroid tablets.
i get tired whenever i have an infection so usually start antibiotics early.my doctor gives me antibiotics in advance so i decide when to take them. the type of antibiotic is chosen based on sputum analysis.after a test result is obtained i discuss the type of bug found and the antibiotic the bugs were sensitive to with my doctor. i have been using augmentin and doxycycline on an alternate basis at the moment. last year i had 7 lots of antibiotic.
i have had to go to a consultant privately to get quick results , i found that the nhs takes too long when you need a lung function test quickly. but my doctor is ok with the antibiotics and other medicines. i have found that the simple peak flow test carried out at home or in the doctors surgery is not good enough to fully evaluate asthma , a full lung fuction test is needed which is not carried out at the gp surgery.
hve gone on too long-- hope this helps
Guest
Posted
Guest
Posted
The trouble I have with the peak flow meter is that depending on exactly the way i blow into it i can get a wide range of readings.i have been told that this is not unusual.
I think the peak flow meter is good for day to day checking on asthma
control if you can use it consistently
the only way to get a complete picture of your lung performance is to use a spirometer which tells you your lung capacity and even what type of lung disease you may have. i have to go to a consultant to get a spirometer test, you just blow into a machine several times. it just takes 5 mins.i do this about once a year or if i have unusual lung problems.
Guest
Posted
This takes at least 30 mins once a day in the afternoon/evening.
Luckily, I only have bronchiectasis mildly, so only bring up about 2 or 3 oz (70 mls) daily. I would like to know what sort of quantities does everyone else bring up - pints or how much???
All the best to you fellow worse-sufferers than me.