Bronchiectasis

Posted , 4 users are following.

I have Dry Bronchiectasis does anyone else have this form of it?

 

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  • Posted

    We do have folks with the dry form on here, Irene, tho I definitely have the wet cough form. I'm sure they'll pop in in a day or so.

    It is an exhausting disease and infections get scary sometimes.

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  • Posted

    Hi Irene,

    Yes I'm one of the dry bx. My pulmonary rehab physio told me that 70% are wet and 30% are dry. 

    I don't seem to get coughs or colds just a bug or bacteria that goes straight to the lungs and tightens my breathing. The last episode took from Oct - Jan to clear up with abs and steroids

    BTW I'm 67 now and didn't really have any issues until 2016. My consultant said I could have had bx for a long time but it had never shown itself. The CT scan shows it in the base and sides of my lungs. 

    Can I ask how does it affects you? 

     

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    • Posted

      Hi Janet, nice to hear from you, sometimes I wonder about having the wet Bronchietasis at least with that you can cough some of the junk in your lungs up, but with the dry Im lucky if I ever even get a cough! so the same stuff keeps getting re-infected all the time. Right now I have another infection and I get a dull pain in the back of my lungs and my breathing gets very shallow and laboured and God forbid if I try to hurry....I am just clutching at the air to breathe it is very scary at times I have just turned 66 this month but I have had this condition about twelve years by now.
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    • Posted

      Morning Irene (UK time)

      I also get the dull pain in one lung, it's the one I had pleurisy in during the last flare up. My consultant said it ends up like a 'shingles' pain and can take a long time to settle. I think the problem for my bouts lasting so long is not being able to cough and get a sputum sample so they know the type of ab to treat it. Do you have a nebuliser to help you stabilise your breathing? I've only used mine twice since I've had the machine but it did help. Can you ring your consultant to get an appointment? 

      Sounds like we're just a year apart in age...my birthday was in April too...Happy Birthday!! 

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