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Bronchiectasis - is it really uncurable?

Posted , 4 users are following.

cecile18191
cecile18191

Hi. I was diagnosed of Bronchiectasis 2 months ago after coughing of blood and Shortness of breadth where I could imagine that already the end of my life. I was rushed in the emergency and the doctors done all the test and thats the findings.. The doctor said that this kind of disease is non curable and I have to accept. I really dont understand why the doctor ever said that. She said that anytime anywhere this can be happen again.. I am really confused and really nervous.. I have shots of pnuemococcal vaccine but since the flu vaccine is not available yet I am staying at home for almost 2 months now without mingling to anybody.. Im depressed.. 

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  • jude65855
    jude65855 cecile18191

    Posted

    Cecile, it's not curable but that doesn't mean you're going to die in the near future.  You need to ask more questions about medication, rehab groups and what your lung percentage is so that if you want to, you can check on your deterioration rate.

    Bronchiectasis is one of the group of conditions under the umbrella of COPD and while you shouldn't be exposing yourself to situations where you might catch someone else's illness, no wonder you're depressed if you've hardly been out of the house for that long - that would depress me too!

    There must be places you can go, friends and family you can visit where you won't be exposed to cigarette smoke or other pollutants?  Try a rehab group for a strart:  as I just said in another post, you really can't be rehabilitated from COPD but you can learn heaps of useful information like breathing techniques to conserve energy and not get so tired and breathless, lifestyle changes generally, medication and exercise.

    All the best to you and stay on this site, it's full of supportive and helpful people

    • cecile18191
      cecile18191 jude65855

      Posted

      Jude, I am very glad that I saw this helpful site that helped me answering my concerns which by any means lessen my burden.. I will do all the advises and support the fullest I can. I want to live longer Im 48 years old now and this kind of disease brought a big trouble to me. Thanks a lot for the support. 
    • jude65855
      jude65855 cecile18191

      Posted

      Glad if it helps - hang in there, our lungs won't get better but our attitudes can!
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