bronchiectasis/pseudomonas

hi  guest i have bronchiectis  im taking  carbocistine montilukast for asthma and  azithromycin antibyotic for  bronchiectis   witch i find works with the mucus  hope you fell better soon can u tell me what pseudomanas aeginosa is please not heard of it

I'm on an inhaled antibiotic called cayston. I use it 3 times a day for 28 days then off. I also have asthma. It has been very trying times for me dealing with this illness. The only time I get a break from the mucus is when I'm on the cayston.

The tobramycin we get from Walgreens in Pensacola Fl. We mix it at home and it cost us $40.00 a month on Medicare. Premixed was going to be $750.00 our cost deductable amount after Medicare so my sister who is a Doctor of Pharmacy with a PHD told me how to do it and she did it this way before they had premixed when she was just a pharmacist 30 years ago. My doctor does 28 days tobramycin mixed with .9 sodium chloride twice a day in nebulizer then 28 with 3% Sodium chloride. Helps to bring up mucus some. I do 4 more neb treatments with Albuterol, 2 different inhalers, mucinex, oxygen 24/7, and Azithromycin 5 days off 2. I just went on morphine to help breathing when it gets hard to breath. If you need help getting the medicine send me an email and I will send the phone number of Pharmacy and maybe they can help you. They don't give me much hope maybe I can help someone else.

The European Respiratory Society guidelines states that people with bronchiectasis who also have a

specific type of infection-causing bacterium (or “bug”) in their lungs called P. aeruginosa (also called Pseudomonas) should be offered eradication treatment – a targeted type of antibiotic treatment that aims to get rid of the bug completely, lasting up to 3 months.

I've had bronchiectasis for most of my 67 years, and developed pseudomonas approx 4 years ago.  I was told the only antibiotic that will work for me now is ciprofloxacin which has nasty side effects.  I was also told that it's virtually impossible to eradicate pseudomonas once it's colonised.

Other half has the same as you.  He was being treated with the wrong antibiotics for two and a half years slowly getting worse.  Following an admission to a leading hospital and their CT scanning the marking areas were located.  Washing of the lungs was undertaken and pseudomonas aeruginosa  was confirmed.  One month ciprofloxacin followed by six monthly azithromyacin has done its job. Latest CT scan shows improvement.  New action plan was put in place of when each of these antibiotic were to be used.   Knowing which to use when is the important part.

Pseudomonas lays dormant and future flare ups will occur being prepared is now a useful tool.  

Exercise is important,  as is clearing phlegm with pep device.

i did a lot of research and ciprofloxacin and azithromyacin remain best practice for most countries.

yes Cystic Fibrosis is what they look for via regular CT scans to keep on top of any further changes happening within your lungs

 

Hi, I have had Pseudonmonas for quite some time and yes it is also resistant to antibiotics. The doctors have me on a combination of Colomycin and 7% hypertonic Saline. it helps a little bit but not much change unfortunately. In terms of Phlegm I use autogenic drainage exercise which has helped me massively. its crude to say but you kind of do have to be 'intune' with your phlegm. if you type into google autogenic drainage exercises, there are a good set of instructions on how to do this by Sandwell and West Birmingham hospitals.

hope this helps. 

Hello! Just to reassure you that you can live long and prosper as they say on Star Trek. I have had bronchiectasis with pseudomonous for years . I have had bronchiectasis since I was a baby and I'm still here just two months away from my 70th birthday. The main thing I do is to spend time every day clearing my chest of phlegm by doing postural drainage . I take antibiotics when I need to and use a steroid puffer night and morning. If ever I feel the need to clear my chest I always go to the nearest toilet or find a private place to cough it up. I try to keep my chest as clear as possible.always. I produce a lot of mucous and always have. I worked all my life and have done most things I've wanted to do. Good luck and be brave.