bronchiectasis/pseudomonas
Posted , 76 users are following.
I am here to find patients like me with Bronchiectasis and the complication of chronic Pseudomonas Aeruginosa. I am intersted in knowing what kind of treatments they use to stay healthy. I have had theP.A. for seven years but do not have Cystic Fibrosis.[/b]
8 likes, 277 replies
Jeanniemac Guest
Posted
I have the same problem, had it for many years, probably after bronchiectisis op in late 1960s. what have you found out? It have been on ciprofloxin for 6 months but still as bad, or worse.
anything you have found would be appreciated.
Pamathatteras Jeanniemac
Posted
gianet Guest
Edited
all are nature things and proven by research.
it is not expensive even you can get free. it is my own experience.
1.inhale eucalyptus oil. it has so many good things for lungs and antibacterial activity you will feel better instantly as me.
2.take Adhatoda vasica also called vasaka it has antibacterial activity against pseudomonas, this is has been confirmed by NIH and several research (google for "Adhatoda vasica pseudomonas" ). without loosing our body health (taking antibiotic) we can fight with pseudomonas.
3.take cumin ,licorice, thyme. all these are good for lungs funtion every leaf has it own benefit google for these name you get the details.
currenly i am trying few more herbs i will update it soon
Pamathatteras gianet
Posted
pomodoros gianet
Posted
What is vasaka and where would I get it? Hopefully it can be sourced in South Africa.
elizabeth49611 gianet
Edited
This time of the year, Im usually miserable. I cough, wheeze, congested and short of breath which causes low energy.
But, after reading what other people for doing on this website, for the past two weeks, I've had little to no SOB and more energy than I've had in months.
From this website:
I had my specialist put me on a low amount of aznithromycin
(antibiotic). I take 250mg every other day.
I take a teaspoon of Manuka Honey every day.
I take Turmeric with ground pepper twice a day.
These all either have anti-inflammatory or antibiotic properties.
I still use my nebulizer, vest and flutter valve every day as well. I stay as active as I can.
I am hoping that this improvement will be on going.
I may try eucaluptus oil and check into the Adhatoda vasica (which I not sure what it is).
Beth
I'm thinking 'outside the box', than relying on taking another med.
pinksnugsy elizabeth49611
Posted
Has anyone else suffered with aches an pains everyday? I'm only 47.
Thanks
Rachel
debbie15945 pinksnugsy
Posted
I am also 47 and ache every morning i get up even if ive been sitting for a while i feel like an old lady sometimes. I also get exhausted and fatigued.
Debbie
pinksnugsy debbie15945
Posted
I'm glad I'm not the only one! I used to run 4 times a week in the mornings an now I got a job to get out of bed as I feel like an old lady!! I take painkillers an as the day goes on the aches an pains ease.
Are you from the UK Debbie?
I always think if I feel like this now how will I feel in 10 years time...or 20 if I'm still around!! Oh the joys of bronchiectasis.
Rachel.
debbie15945 pinksnugsy
Posted
I am from the uk but i live in Australia now
I feel exactly the same
I had to cut my hrs down at work as i got too tired by the end of the week.
I say the same thing what will i be like in 10 yrs i dont think too far ahead anymore
I no i wont live till im an old lady
I also have diabetes and gerd
But i try to stay positive and deal with whatever comes.
elizabeth49611 pinksnugsy
Posted
It was advised to take pepper with the turmeric to up the effectiveness of the turmeric. I buy the turmeric in capule form and drink it down with juice with pepper in the juice. 1000mg of turmeric twice a day. Thats about half a teaspoon. I don't know if thats too much or not. I may try to lower the amount.
I have not had the issue of aches and pains. I know there are several other people on this website that do.
Elizabeth
christiann74538 elizabeth49611
Posted
elizabeth49611 christiann74538
Posted
I have heard that cannabis oil helps. I live in the states and only a few states (not the one I live in) have legalized the use of cannabis for medical use. I'm too scared to get illegally, I know I would get busted.
Please, keep us updated on your results.
Staying as health as possible: eat healthy, exercise, etc,as you said, is important.
Elizabeth
tabatha84296 debbie15945
Posted
To Debbie and Pink Snugsy - I just saw this now and want to know if you are both till fatigued and achey and tired and pains etc???? You are both 48 now - just wondering whether you've had a bone density test - when i was around 50 and into that menopausal stage I felt the same in fact I felt horrible and come to find out I had severe osteoporosis and those symptoms can be what u describe. Just wanted to mention that because when u have other things going on like the BX and other lung issues it takes over your life and you forget other parts of your body. So if you haven't checked and can have that test that's something you should do. My bones were in such bad state I had to go on the bad drugs for osteoporosis but they did help. Also my thyroid was way low too at the same time and maybe that can make tiredness and fatigue.
Hopefully you are still not experiencing those problems but if you are then maybe look into something else and not assume it's the BX or Pseud. etc. etc. You are the right age for all that 'stuff' to happen.
Tabatha.
maggi_may elizabeth49611
Posted
naila17308 gianet
Posted
mary09122 gianet
Posted
mary09122 christiann74538
Posted
I wonder if the oil helped you? As well did you try the bacteriophage therapy? I have been in touch with a clinic in Ceorgia that specialize in this and need to send them sputum samples, but have to be off antibiotics for at least 7 days.
Thanks