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bronchiectasis/pseudomonas

Posted , 5 users are following.

RAK
RAK

I have been diagnosed for bronchiectasis long time ago, I am 29 years old, I used to have only one infection per year.

But since April-2013 till today I’ve had around 6 pneumonias incidents where most of the time I’ve been hospitalized for IV (tazocin) and then only one I had a long nebulizer cure for one month under colistin nebulizer.

Then after I used to have a long Zithromax cure, but then I again I fall and get sick.

Since 2008 and I have the pseudomonas, but I wonder why lately I am having that much of infections.

In Jan-2014 I had the infection and then from that month till April-2014 I was again under Zithromax cure, but last week I got a pneumonia again(Cyprobay and Suprax antibio)

.Now Dr are speaking about a lobectomy to remove the bronchiectasis part as well the pseudomonas.

So I am lost I am not sure if this is gonna really help me, and does the pseudomonas will really go away with the surgery.

Did anyone have such surgery it’s an open surgery and not through VATS technique.

These repetitive infections are really affecting my work,my life, I cannot do plan anything…

Thank you,

BR//Roula

0 likes, 7 replies

7 Replies

  • lesley05714
    lesley05714 RAK

    Posted

    Hi Rak,

    I do hope things are working out for you; could you have a vacination for the pneumonia? I had one this winter. When I get a lung infection, my doctor sends a sputem sample to the hospital and they tell him the results and the names of the bugs, so we have the correct antibiotics for the bugs in my lungs.

    Physio' using a 'flutter' helps to bring up the phlem that harbours the bugs. 

    I am sure it would be worth a second opinion before submitting to an operation.

    I am managing to control my bronchiectasis with the help of a very good doctor and a good specialist team at the local hospital. Hope this helps,

    Blessings,

    Lesley

    • RAK
      RAK lesley05714

      Posted

      Thank you Lesley,

      Yeahd i do have vaccination for the pneumonia (pneumo 23)i do it each 5 years .

      i dont have any immunitty diffency but now i am checking if there's a cilia immotily, if it's there so the operation will not help.

      what im really looking for is that why the infection is repetitive suddenly, before it was like once per year, im over protected though im getting infected.

      BR//Roula

    • lesley05714
      lesley05714 RAK

      Posted

      Hi Rak,

      There is a good web site that may help; 'bronchiectasis r us' and they have lots of advice. My thoughts are that you may need more physiotherapy to bring up the 'gung' daily. If this is kept under control, maybe with the help of a 'flutter' you could control it and the infection can't get a hold so easily. It is an ongoing situation, and the hope is to 'manage' the problem. Try the 'bronchiectasis r us' site, I learnt a lot from them.

      Blessings,

      Lesley

  • ruthie2673
    ruthie2673 RAK

    Posted

    surgery is helpful if the bronchiectasis is confined to a small portion of your lungs and the rest of the tissue is healthy. Presumably your consultant has checked these things before recommending this procedure.
  • lynne58044
    lynne58044 RAK

    Posted

    If you have the bronchiectasis in one area than you have the choice to have it removed and hence no problems. Most people do not have this option. You can live with one lung no problems. Good luck
    • RAK
      RAK lynne58044

      Posted

      Hello,

      yeah but the problem is that i have the immotile cilia syndrom, so if we removed a part from the lungs, another part will be later on affected since cilia doesn't function well..

  • mizsuzyq
    mizsuzyq RAK

    Posted

    Hi Rak,

    I was hping to see update from you. Did you have the surgery? Did it help?  

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