Posted , 4 users are following.
Oct 31,16 they found my PE. I'm on Xarelto. I have bruises all up my right leg lately and I know I have not been hurting myself. And I have been a little more short of breath. Dr gave me a once a day medicated inhaler for asthma and I use it but darn I still get confused with the bruises. They are tender to touch. Suggestions?
0 likes, 9 replies
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lizzie70061 Windy8000
Posted
Hi I should have the bruises checked out . Are they dark purple sort of patches ? This is usually blood collecting under the skin. Not worth taking any chances. Hope all is ok. 😊
samuels Windy8000
Posted
Hi Windy,
It's a common side effect with blood thinners, I had the exact same thing happen to me, I was on Xarelto but had to be taken off them due to a side effect, angina chest pain 1 - 2 hours after taking it, I was then put onto Pradaxa and no problems with that, no chest pain after taking it and no more unexplained bruising ( bleeds underneath the soft tissue ) as for the shortness of breath, expect this to last up to 6 months maybe more, depending on the severity of the PE.
lizzie70061 samuels
Posted
That sounds right. I had multiple bilateral PE in August 2016. Doctor said 6-12 months for 90% recovery. About right. Almost back to normal. Back pain but no breathing problems. Just need to get fit.!!!!😊
samuels lizzie70061
Posted
Hi lizzie,
I'm new to the PE scene, I was recently diagnosed as having multiple clots in both lungs. I was actually treating it for a strained calf muscle in left leg and after not improving after a week or so I mentioned it to my GP, he had a quick look and also said that he thought it was only a strained calf muscle. about another week later, if that, I had to attend our emergency department with angina chest pain and I was also complaining about my left leg being swollen and sore to walk on, not to the touch though , The triage nurse checked my leg and actually told me she was more concerned about my leg than my angina pain, to shorten the story I had a contrast CT Scan done and the emergency doctor had told me they had found lots of clots in both lungs and was caused by a DVT in the left calf muscle, next morning the doctor doing rounds had called in to see me and his terminology was as you say multiple clots in both my lungs, he told me what to keep an eye out for , you know complications as sometimes they happen. That's all I know about my PE's, I haven't been told how big, how many in each lung, I know they said multiple but I would kind of like to know exactly how many in each lung.
My GP hasn't any records of size etc etc, just that I have been put on at that time Xarelto and it would be life long, my GP is the one that explained approximate healing times etc etc. I still get breathless from time to time and like you back pain, I'm into my third month after official diagnosis. Not a nice thing to have these PE's .
lizzie70061 samuels
Posted
I have found this forum very helpful. Doctors can only pass on information they have studied but not often experienced themselves. Although everyone is different it helps to discuss with similar sufferers. Good luck with your recovery. Little steps and listen to your body. I would have liked a scan to make sure my clots have dispersed but doctor says. "trust me they have gone"!!!!!!. 😊
elizabeth05322 Windy8000
Posted
This reply was intended for Lizzie, I s reading all these - she said her octor said "trust me they're gone". No, don't! Find a new GP and insist on a contrast study and make sure you get a copy of the report.
?Always get a copy for your own records - even blood tests.
When my 3 months on Xarelto are up in about 3 weeks I will be insisting on a CT to see exactly what is going on.
PE is too awful and dangerous a thing to have anyone guessing.
Its your life that is at stake here. These things are life threatening!
?Best wishes to all
samuels elizabeth05322
Posted
Hi elizabeth, Yes I agree these PE's are life threatening and blood thinners will not remove a blood clot they prevent them from returning, suppose to. From what I have been told the body will naturally heal the clots, generally they will break away into small uninvasive material in which the body can dispose of, but sometimes the clots will stay and scar over.
elizabeth05322 samuels
Posted
Samuela hi, my understanding is that the clots can & do stay and hopefully scar & stay firm however from what I gathered there is always the possibility (not probability) that a bit can break off and travel.
For me, this is why I plan on insisting on the further CT to know what is/isn't there.
?It's also my understanding that no-one, ie doctors/medical profession, can truly say definitively what clots will & won't do.
It's what they mostly do that is mentioned.
?Regarding the unexplained bruising, last year I was experiencing bad bruising with only a slight knock, but certainly was not on blood thinners.
?I wonder now if some blood disorder somewhere and resulted in clots? We'll never know, I suppose.
?I feel that being vigilant and ask questions & researching what we can is the way we'll all maybe get, if not answers, at least clues to what to do for our own individual health.
Good luck to all of us.
lizzie70061 samuels
Posted
Yes I have read up so much over the last year.😊 I understand from this that the clots either dissolve due to the thinner blood flow. or they scar over. I am on Apixaban for life as they not sure of the cause of PE.. Thanks for all the advise given on this forum it had so helped me through this year. Good health to everyone.😍