Budesonide?

Hi Mel, completely sympathise with your situation. I'm just wondering why they started you on only 10mg oral pred, I've always had to start on 40mg and taper down by 5 weekly. Also the Mesalazine enemas are so much better than the pred foam, they come in a liquid so go further in the colon therfore reaching where they need to.

I've been given budesonide as clipper didn't work for me either and I can no longer tolerate Prednisolone, im also now on Remicade infusions. The budesonide pretty much works just in the colon so you don't get any of the side effects that you get with the pred. So far I haven't noticed any side effects but you do need 2 full 30 day courses for it to have an effect.

But if you can get the liquid Mesalazine enemas and budesonide that should hopefully do the trick.

I hope thats of some help.

?

Hi Mel. so sorry to hear you are suffering with a flare at present. as a colitis sufferer i know how you feel hun. it's a shame oral pred doesn't agree with you as i always found it so effective in calming a flare down, but i agree with Shal that 10mg is not enough. i always used to start on 35-40mg for about 10days then taper down by 5mg wk to a stop & it always worked.i tried clipper once which was useless - did nothing for me. i have read about budesonide - i think its a newer one - there is info on this on the crohns & colitis website if you want to read more. I've never been on that one myself. I've been off work since mid may now with what was thought to be a colitis flare following a usual flare symtpoms except no blood this time but a high positive calprotectin stool test. my colonoscopy biopsies in july were "within normal limits" & they also removed another polyp from my ascending colon. i also have ibs-d(controlled with diet & daily liquid quality probiotic), bile acid malabsorption (controlled with prescription meds) fructose malabsorption (no fruit or juices in diet). my gastro consultant is now doing small bowel investigations because of continuing symptoms & i am currently awaiting result of a contrast mri scan on my small bowel. i also tested negative for coeliac. when my colitis is in flare  i also found the best enemas were the liquid ones. they are a bit trickier to administer but once you have got it in & laid down on your front for 10mins before bed to let it circulate, you can feel the relief from pain as it cirulates right round the entire colon.  hope this helps, do let us know on here how you get on at your appointment. x