Bumps/lesions in urethra opening

Posted , 7 users are following.

Hi

Was diagnosed with mild Lichen sclerosus 4 weeks ago with some atrophic lesions on the glans, redness and dryness aswell as redness around meatus. Have used clobetasol since which is working good in terms of softening of the skin.

However what worries me is the inside of the urethra which does not look normal to me. I have not been able to see a dermatologist yet about this, but would like some opinions on whether this looks like it might be LS on the inside - or if there is something else that could possibly cause this kind of marks/bumps/lesions? To me they look blue, almost like swollen blood vessels.

Inside of urethra feels generally not healthy and also sticks together more than I am used to from earlier. But then again reading about LS it looks to be very uncommon for it to "travel" down the urethra atleast in the early stages or mild disease which it seems my condition is...

It's really hard to photograph but I've done my best to make it visible in the photos.

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1 like, 11 replies

11 Replies

  • Edited

    To address what you are highlighting in the photos you would need to see a Urologist, as, with the location you cannot apply any topical applications.

    Did you have a biopsy to prove the presence of LS? How frequently are you applying the clobetasol - was this prescribed to you by the Dermatologist .... ?

    • Posted

      Thank you Wee_Dugie for your reply. I've been on Clobetasol twice daily for 4 weeks, going over to once daily for 2 weeks now on Monday. This was prescribed by my general doctor without biopsy, only visual diagnosis. It's the normal treatment given here in my country for this disease as far as I can tell, where response failure makes circumcision the next option.

      My case looks quite unusual though compared to what I can see here and on Google. I have somewhat hardened skin on glans, but no white lesions, very mild itch sometimes (but more like tingling), mostly just redness and some shiny lesions that does not go away, as well as some slight tightening on the foreskin. Hardened skin has become better now after 1 month of Clobetasol, but glans still looks unhealthy and urethra still feels inflamed/tender which it has been for 4-5 months.

      I'm waiting for a referral to a dermatologist now while anxiously trying to find someone else online with similar symptoms in the urethra/meatus. I must admit I'm not very positive at all because all things point to it being the LS travelling inside causing me these issues.

      I did see a urologist last week and even performed a cystoscopy, but he maintained everything was normal, even though I can feel it isn't since my urethra at times feels swollen/hard from the outside when palpated. He did not spend much time looking for signs of LS inside either, just a quick look into the bladder to see everything was OK there, which it was.

    • Posted

      As far as I am aware it would be quite unusual for LS to travel inside the Meatus and Urethra. If there is an issue present it could be something quite separate from LS.

      And yes, Clobetasol is the internationally recognised treatment for LS - what you need to focus on is getting the application of it right. It needs to be worked into the skin to achieve beneficial impact - what you need to be aware of is that you need to prevent it from getting inside your meatus or urethra as this can cause a major problem, potentially.

      Work the Clob into the skin for 2 to 3 minutes, and try to encourage movement of the skin so that it stretches slightly as this helps with - you will need to do this very gently at first on your glans.

      Do note that it can easily take 5 to 6 or even 8 to 9 months for you to see initial main benefit of using the Clob - it will also be most helpful to restrict masturbation or sex as this can further compromise the skin.

      Apply the Clob after taking a shower, do not apply any cleaning products at all to any of the skin at the top of your penis, so certainly no soap, shower gel or other body wash should ever be applied to the top part of the shaft of your penis.

      No hot water should be applied, use the warm running shower water to clean your penis with using the inside of your hand - just as important is drying the skin so that no moisture remains, best approach is to ensure your entire groin and genital region is completely dried after a shower.

      ONLY use towels that you can access. The other thing that may be worth considering is using Liquid Soap Flakes in which to wash your underclothes and towels with as the chemicals used in most soap powders and other treatments placed in a washing machine can be too harsh for LS infected skin

    • Edited

      Thank you for feedback again Dugie. It is very much appreciated to hear from someone so knowledgable of this disease.

      I have read many of your posts here and am very well aware of the importance of not using soap or other cleaning products.

      I'm still trying to make sense of my LS diagnosis though and am wondering whether there might be something else going on with the glans in addition to the LS. If you don't mind I will list my symptoms here and if you have any knowledge I would appreciate any input...

      • red, shiny plaques and small spots spread around the glans/around the meatus which to me look more like the "planus" kind, not LS
      • never had any white "raised" skin as I read is typical of LS
      • tight/hardened skin on glans (but never "LS white"). The skin has never teared, but just looks pretty raw after sex/masturbation, and generally looks very unhealthy.
      • urethra discomfort as described above

      I am going to see a dermatologist in three weeks for a second opinion, but in the meantime I will continue the clobetasol as it has been good in terms of softening the skin. Main issue is the ongoing redness though, that has not particularly improved in 4 weeks. However I do understand from your posts that this might take many months.

      I have not been swabbed for candida/bacteria, do you think that could be what's causing the redness here in my situation?

      I attached some more photos for reference.

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    • Edited

      i.) - you really need the Biopsy to know for sure what you are dealing with

      ii.) - the Dermatologist is likely to carry this out, unless they think there is another explanation for what you have going on - they may also try an initial treatment prior to doing a Biopsy

      iii.) - Circumcision is by NO MEANS a cure for conditions such as lichen based disorders - one of initial Forum Posts I dealt with on this site was from a guy that had recently been circumcised and he still had LS on the glans afterwards ! CAUTION !!

      iv.) certainly, you can have a mixture of different issues going on, this may be one of the reasons why a Dermatologist may give you several / different treatments to try, or. may say, a Biopsy may give the answer - be guided by them as to the best way forward for you

      v.) - a general doctor does not always have the in-depth knowledge to tell the different conditions, such as the Lichen based disorders from other potential causes, this is why seeing a Dermatologist is essential for you at this stage

      My general guide would be as the months progress of you using the Clobetasol appropriately you will become more certain of what it is you have going on - and hopefully the Dermatologist will treat, or rule out any other conditions that may be present.

      You will do your compromised penile skin a great favour by not masturbating or by having sex - the longer you can abstain the better ......

  • Posted

    Hello @nik53379

    What is update regarding this?

    I, too, seem to have similar ones like your pics - Greyish bumps inside the opening.

    Please tell me if you have any update

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