Burning mouth syndrome

Posted , 15 users are following.

Hello ladies,

Is anyone dealing with burning mouth syndrome? If so, how do you cope and deal with it?

I had seen the dr in March for that reason, run b12 level, it came back normal.  He prescribed gabapentin which I took one time and nasty side effects, so I stopped.

Also, is anyone feel like some her back is on fire?

I mean this is just too much for human beings. Why my Lord? At my age of 57 I am going thru all these.

I thank you in advance for your reply.

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  • Posted

    I haven’t yet.  But I am dealing with oral thrush right now.  Unbelievable!!  What’s next.  
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  • Posted

    Hi there , So sorry to hear your having a rough time with some of these crazy symptoms we all get in one way or another . I know it’s frustrating and scary at the same time because our bodies go through so much change that we worry and stress more because of it .

     I do not have the symptom your describing however ,  I do wish you the best of luck with finding ways to kinda help relieve some of this stuff and send hugs to ya from Canada here . Keep positive and strong the best you can and remember this is only a temporary time and it will pass at some point .

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  • Posted

    Burning Mouth was the very first thing that sent me to the Dr back in June of 17'. I went to an ENT and he diagnosed it. I was relieved it wasn't something really sinister but the Dr told me there is no treatment for it. I stopped all mint gum and candies. Bought the toothpaste that promotes saliva and drank lots of water. Mine would move to different spots in my mouth and my throat. Felt like I had burned it on very hot coffee. Awful sensation! My peri symptoms blew up in July of 17, so my burning mouth syndrome was trumped by other, more debilitating symptoms. I don't know when it went away, but I was in such a horrible state I didn't notice it starting in July of 17! When I started feeling better in general a couple months later, the sensation was gone. It has not returned. I wish I had some advice to give you. I hope it doesn't last too long for you. Hugs xxx

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  • Posted

    Yes! I thought I was the only one. It’s a weird phenomenon. No cure but it just goes away one day.  It can drive people mad but the more you ignore it the faster it goes away.  Hormone based as our estrogen leaves it opens us up to our pain receptors. We lose our sense of smell and taste and our nerve endings make function. It can’t kill you but will be uncomfortable. Chewing gum and increasing saliva is beneficial. Anxiety drugs etc. just make you have to withdraw from them so they are a burden.
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    • Posted

      Yes, the ENT told me if it got too bad he could Rx me an anti anxiety drug to help me cope. He advised against starting them unless it got really bad and was debilitating as the drug side effects and possible addiction/ withdrawal could get tricky. I opted to not take the anti anxiety meds. The BMS was very uncomfortable and annoying, but wasn't bad enough for me to take the anxiety meds. I hope yours isnt too bad and that it subsides soon.

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  • Posted

    Hello

    I have this. The tip of my tongue is bright red and I get sores appear. It started about 5 years ago and has gotten worse over time. The doctors never seem interested when I mention it. I did also lose my sense of smell and taste for over a year - it has now almost returned.

    Xx

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  • Posted

    Hi there. This mouth problem started when my hot flashes started and scared the living crap out of me. It felt like terrible shooting nerve pain in the roof of my mouth and gums and tongue. Mouth also had a HORRIBLE metallic taste and I felt like I nonstop salivated. The taste was so awful I could not eat. Went to ENT and dentist to rule out anything sinister. I think they thought I was crazy. I chewed a lot of gum and constantly had a glass of ice water with me. After 3 months of agony it has passed. Still having hot flashes and night sweats and all kinds of weird symptoms though. Don’t worry, this too shall pass! 
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  • Posted

    Hello Seraphine. Yes, I have hot, burning, dry mouth. Not diagnosed with anything (tested for Sjogrens but negative)...neither doctors nor my dentist could explain it. None of them even suggested it could be peri/and, or/menopause, which is now what I think it is. It makes me angry that professionals could not think "outside the box" and consider my age. It started when I was about 47 and I'm 54 today...I'm sorry to say that it has never let up. 7 years!! Some days are just worse than others but I have it every single day. And I assume I'll always have to endure it. I cannot use OTC toothpaste. They really irritate my mouth. Natures Gate is the only one I can use now (I'm screwed if I travel and can't bring it!) I use Biotene sometimes too and it helps slightly. Please try those. Drink lots of cold water every day...it helps soothe the discomfort. I don't trust doctors anymore. They prescribe pills that have more side effects than the issue at hand. $$ for them. And yes, I get terrible hot flashes, and night sweats - mostly affecting my face and back. So hot! This whole meno thing blows. I just put one foot in front of the other and move on. I hope you find comfort. -Kazjo 

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    • Posted

      Yes, I used the Biotene toothpaste as well. I also bought some ACT moisturizing gum but never chewed it because I was afraid the mint flavoring would make the burning feel worse. I kept fruit flavored Tic Tacs and fruit Life Savors with me at all times which seemed to help. 

      Im sorry you've been experiencing BMS for so long! Wow!! That must be very hard! I can't believe your ENT and dentist couldn't diagnose it for you! How frustrating! i know after 7 years with no relief you expect it to go on forever. I have had a sensation of something stuck in my throat for 14 months now! At first, I panicked and it bothered me so much as I thought my throat was closing and I would suffocate! Many, many dr visits and scopes with nothing found... I've resolved myself to it. I just live with it now. On bad days, I find eating something frozen like a popsicle or a Slurpee helps! I'm ever hopeful that it will just vanish one day! 

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  • Posted

    I have been taking penicillin and it seems to have given me BMS. I had pregabilan for a back problem but like you had to stop because of the side effects. I have had it for a couple of weeks or so now and horrified to see how long it can last. I have a sore throat and my tougue is on fire plus dry mouth. Has yours gone yet. I am the same age as you.

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